Seeking treatment and evaluation
After moving to Connecticut from Maryland in 2008 and beginning to experience lowering hormone symptoms, I also began to experience neuropathy, severe vertigo, severe weight loss, chronic joint pain, Raynauds syndrome in my fingers, my veins in my arms and legs enlarged so much that they appeared like tree roots on top of skin, I was weak, dizzy felt completely out of control. I spent the night in a hospital due to heart palpitations. When my heart rate right dropped during the night, the nurse came, took notice, administered morphine, phoned the doctor and attributed the drop to the morphine she gave me after the event. I later developed mouth sores. I went to 5 different doctors took blood tests, that included HIV, lupus, cancer screenings. I was accused of being a chronic alcoholic who was jealous of my sisters success and told to stop drinking. I cried when this judgement was made, I was too hurt to be offended. My symptoms improved after 3 years, except my white blood cell count has remained low. I did get treatment for my hormones, with hormone replacement. No more hot flashes and I haven't had fibroids since, after two surgeries.
I recently began taking collagen supplements and three months later had a massive hsv2 outbreak. I stopped having outbreaks over 20 years ago. Only have had very mild ones off and on that were never a real issue. This time was different. I stopped taking the collagen, and paid $700 for brand Valtrex after about 2 weeks, outbreaks stopped. I researched about how arginine can cause outbreaks, I was skeptical because I had never been diet sensitive before. Because I loved what the collagen did for me, physically, I do have arthritis in my thumb I didn't want to stop, so I did insane research and stumbled upon the Goop article about the medical medium, Anthony Williams. Reading that I finally had a diagnosis, CAEBV. One doctor did test me for Epstein Barr during my initial infection in 2008 and the results were off the charts. My EB VCA IGG was 3119, EB EA IGG 108, EB NA IGG 793.
I have had CAEBV for 10 years without a diagnosis. The whole body collagen supplement I took this past summer has reactivated EBV. I now have very swollen lymph glands, pins and needles. I did start taking Lauridicin to help with the herpes outbreak. Now I am looking for a specialist.
I am now in Highland Park, Il. My primary care doctor rejected that my Epstein Barr test result from 2008 was significant. I recently saw a functional doctor who did not diagnose or comment on the same test. I began juicing celery and taking oil of oregano. I am pretty sure I overdosed with oil of oregano last Friday. I just don’t know what to do.