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Bev Bentley

Posts: 1
Joined: Dec 27, 2011

Secondary Progressive Multiple Sclerosis

Posted by @bevbentley, Dec 28, 2011

My son has SPMS. With this he to cope with; cognitive issues, tremor, spasms, myoclonic jerks, seizures, memory loss, bladder and bowel issues, nastagmus, balance, very little ability to walk, etc etc. I am looking for NO sympathy….no time for this, thank you anyway. I would very much like to speak with another parent who is caring for an adult child with similar, if not all, issues that my son copes with everyday. We live on the west coast of Canada, near Vancouver British Columbia. My son has had 2 treatments for CCSVI. He use to have chronic pain and since the 1st CCSVI treatment he no longer lives with pain. His head fails around at times also. My son was dx with MS at age 25, he is now 41. Thank you for all and any help to connect with some one coping in the same way as my son. My email address is I will respond to any questions, here or at my email address. Bless all of you coping with this disease………………..I have HOPE.


Alex Simon

Posts: 179
Joined: Feb 08, 2011
Posted by @alexsimon, Feb 3, 2012

Hello -
Mayo Clinic has lots of information available online that may be useful to you:

Also, if you are interested in bringing your son to Mayo Clinic to see a physician in MN, FL, or AZ for an appointment please click on the “request an appointment” link on the upper right hand corner of your screen.

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