Rhabdomyolysis - Long-Term Recovery & Chronic Pain
Hello everyone! After searching through discussion groups, I couldn't find any posts that specifically discussed experiences with rhabdomyolysis. I am hoping to connect with anyone who has had a similar experience. Long story short, June 2018, I went by ambulance to the ER as my entire body was cramped up and in severe pain. I was diagnosed with rhabdo with a CK peaking at 6,000. While that is considered "mild", it doesn't consider the effects. I spent 5 days in the hospital undergoing every test possible: blood, CT, ENT, X-rays, etc. My phosphorus was undetectable. I was pumped with fluids. My leg muscles, specifically my calves had completely atrophied and I could not walk. I needed nurse support to get out of bed. The doctors called me a "medical mystery" since I did not get rhabdo a typical way (exertional, crush, etc.). Since I had a significant cough for two weeks prior, they settled on it being virally induced. Diagnosis by elimination. I did PT and OT for 2 days in the hospital working with a walker. At home I used a walker for a few weeks until I could get my feet and legs in the position to walk. Then I used a cane. I had in-home PT and OT throughout that summer and did PT at a clinic for 5 months, dismissed to do PT on my own at my gym. I regained my ability to walk independently, but a year and 2 months later I am still dealing with chronic pain in my calves, low stamina and endurance, chronic fatigue, difficulty walking any long distance or on terrain that is not flat. I started seeing a musculoskeletal specialist who diagnosed me with fibromyalgia. I've been on gabapentin and cyclobenzprine (Flexeril) since February and the doctor is convinced I will recover with this treatment, but now I'm not convinced…I have really plateaued. This has caused me to take a leave of absence from work and affects my life profoundly. If you have also suffered from rhabdo and the physical effects sustained from it, I would love to chat more. I'm looking for answers as I want to recover as completely as possible. Thanks!