Relief for hot flashes during the night

Posted by robertmizek @robertmizek, May 26, 2024

I found something that helps reduce the number of disruptive hot flashes that wake me up during the night and want to share it with the group. I am on both Orgovyx and Zytiga. The hot flashes during the day are just annoying, but the ones at night have been disruptive to my sleep, which adds to my fatigue during the day. I have been using a ceiling fan with mixed results and needed something better.

I recently bought a “Dual Temp” cooling mattress pad from my local Sleep Number store. The pad goes on top of the mattress (and mattress pad if you use one) and is covered by a fitted breathable sheet. The cooling and heating unit goes under the bed. It has three settings for warming or cooling. The way it works is that you cover the fitted sheet with a top sheet and or a blanket, bedspread, or comforter. You turn the unit on about 20 minutes before you plan to get into bed to cool off the bed. This it’s important. It won’t work as well if you don’t pre cool the bed. The unit under the bed blows chilled air through a flattened tube and into the mattress pad. The pad blows the chilled air through the fitting sheet and the top sheet / blanket trapping it underneath. I found the highest setting helps keep me stay cool and it greatly reduced the number of hot flashes that wake me up. It’s so cool that I have to wear light sleep pants! I set a timer for the number of hours you want it to run. If I do get a hot flash the cool air seems to reduce sweating and quickly wicks moisture away.

It’s a bit pricey; typically $1,199 for 1/2 for a King sized bed when not on sale. On sale it may cost $200-$300 less and may include free shipping. It’s also not silent. On HIGH I was concerned that the fan noise would be a problem. It wasn’t a problem for me but it might be for you.

There are other less expensive units that blow air around you however I don’t believe that they provide cooling from beneath you. For the record, I have no affiliation with Sleep Number. I’m just sharing what I learned to provide information that might help other PCa patients whose sleep is being disrupted by hot flashes.

Here are a couple links for more information
https://www.sleepnumber.com/products/dualtemp-layer


Good luck to all on their journey with PCa!

Interested in more discussions like this? Go to the Prostate Cancer Support Group.

Profile picture for brianjarvis @brianjarvis

(This is not medical advice; just mine and my brother’s different prostate cancer treatment experiences as it relates to minimizing hormone therapy side-effects.)

Diagnosed with a localized 4+3=7 and PSA of 7.976 at 65y, I had 28 sessions of proton radiation (during April-May 2021) + 6 months of Eligard. To minimize side-effects from the hormone therapy, my medical oncologist advised me to engage in robust resistance-training exercises. (I chose to lift weights 6 days/week & added cardio each day, either jogging or swimming.)

My oldest brother, recently diagnosed with a localized 4+3=7 and PSA of 5.70 at 79y, just had his 19th (of 28) IMRT treatment + his 2nd injection of Eligard. To minimize side-effects from the hormone therapy, his radiation oncologist has recommended the following:

Mild hot flashes:
-Moderate exercise 30 minutes per day at least three times per week
-Avoid tobacco products
-Limit alcohol and caffeine
-Limit spicy food
-Use fans to keep air moving
-Avoid plastic, microfiber, satin, jersey sheets

Moderate hot flashes:
-Apple cider vinegar, 1-2 tablespoons daily diluted in 8 oz glass of water or may try over-the-counter tablets

Severe hot flashes:
-Medications such as venlafaxine, megestrol, gabapentin, oxybutynin
-Acupuncture

Different recommendations for minimizing hormone therapy side-effects. I hope his methods are as successful as mine were.

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How does venlafaxine work in this scenario? I thought it was for anxiety/depression. But if it has a use in curtailing hot flashes that would be excellent!

REPLY
Profile picture for brianjarvis @brianjarvis

(This is not medical advice; just mine and my brother’s different prostate cancer treatment experiences as it relates to minimizing hormone therapy side-effects.)

Diagnosed with a localized 4+3=7 and PSA of 7.976 at 65y, I had 28 sessions of proton radiation (during April-May 2021) + 6 months of Eligard. To minimize side-effects from the hormone therapy, my medical oncologist advised me to engage in robust resistance-training exercises. (I chose to lift weights 6 days/week & added cardio each day, either jogging or swimming.)

My oldest brother, recently diagnosed with a localized 4+3=7 and PSA of 5.70 at 79y, just had his 19th (of 28) IMRT treatment + his 2nd injection of Eligard. To minimize side-effects from the hormone therapy, his radiation oncologist has recommended the following:

Mild hot flashes:
-Moderate exercise 30 minutes per day at least three times per week
-Avoid tobacco products
-Limit alcohol and caffeine
-Limit spicy food
-Use fans to keep air moving
-Avoid plastic, microfiber, satin, jersey sheets

Moderate hot flashes:
-Apple cider vinegar, 1-2 tablespoons daily diluted in 8 oz glass of water or may try over-the-counter tablets

Severe hot flashes:
-Medications such as venlafaxine, megestrol, gabapentin, oxybutynin
-Acupuncture

Different recommendations for minimizing hormone therapy side-effects. I hope his methods are as successful as mine were.

Jump to this post

Big big fan of the embrlabs.com wave product (wave 2) “watch’’ I find it works really well and has helped me sleep much better. Also great during the day if you catch the hot flash, hit the button twice and within a minute or so the hot flash quickly fades. Works better for me than a fan. I was pretty bothered by them but didn’t want to mix another drug into the mix. The battery needs to be charged every day, but this is a small price to pay for the relief the device gives. As a bonus I purchased it when it was on sale for $100 off so for a bit over $200 it was definitely worth it. Best to all of you, what a long, strange trip it’s been!

REPLY
Profile picture for clarkb @clarkb

Big big fan of the embrlabs.com wave product (wave 2) “watch’’ I find it works really well and has helped me sleep much better. Also great during the day if you catch the hot flash, hit the button twice and within a minute or so the hot flash quickly fades. Works better for me than a fan. I was pretty bothered by them but didn’t want to mix another drug into the mix. The battery needs to be charged every day, but this is a small price to pay for the relief the device gives. As a bonus I purchased it when it was on sale for $100 off so for a bit over $200 it was definitely worth it. Best to all of you, what a long, strange trip it’s been!

Jump to this post

@clarkb
I like to combine my Embr wave 2 With a fan a lot of the time. It just makes it easier even if it it’s a somewhat mild hot flash. I have been using the Embr wave for about five years started with the wave 1.

REPLY
Profile picture for brianjarvis @brianjarvis

(This is not medical advice; just mine and my brother’s different prostate cancer treatment experiences as it relates to minimizing hormone therapy side-effects.)

Diagnosed with a localized 4+3=7 and PSA of 7.976 at 65y, I had 28 sessions of proton radiation (during April-May 2021) + 6 months of Eligard. To minimize side-effects from the hormone therapy, my medical oncologist advised me to engage in robust resistance-training exercises. (I chose to lift weights 6 days/week & added cardio each day, either jogging or swimming.)

My oldest brother, recently diagnosed with a localized 4+3=7 and PSA of 5.70 at 79y, just had his 19th (of 28) IMRT treatment + his 2nd injection of Eligard. To minimize side-effects from the hormone therapy, his radiation oncologist has recommended the following:

Mild hot flashes:
-Moderate exercise 30 minutes per day at least three times per week
-Avoid tobacco products
-Limit alcohol and caffeine
-Limit spicy food
-Use fans to keep air moving
-Avoid plastic, microfiber, satin, jersey sheets

Moderate hot flashes:
-Apple cider vinegar, 1-2 tablespoons daily diluted in 8 oz glass of water or may try over-the-counter tablets

Severe hot flashes:
-Medications such as venlafaxine, megestrol, gabapentin, oxybutynin
-Acupuncture

Different recommendations for minimizing hormone therapy side-effects. I hope his methods are as successful as mine were.

Jump to this post

I had moderate hot flashes while on ADT (Eligard, Zytiga, prednisone) for two years. Hot showers, hot drinks, and caffeine were definite triggers. Modifying those helped, but the hot flashes were still bothersome. Biggest help was acupuncture. After a few treatments, I was able to go for several months before I needed to repeat them. After stopping ADT, hot flashes were worse for a few months (oncologist said this is normal) and then disappeared as my testosterone returned to normal levels after 6-9 months from when I stopped ADT.

REPLY
Profile picture for clarkb @clarkb

Big big fan of the embrlabs.com wave product (wave 2) “watch’’ I find it works really well and has helped me sleep much better. Also great during the day if you catch the hot flash, hit the button twice and within a minute or so the hot flash quickly fades. Works better for me than a fan. I was pretty bothered by them but didn’t want to mix another drug into the mix. The battery needs to be charged every day, but this is a small price to pay for the relief the device gives. As a bonus I purchased it when it was on sale for $100 off so for a bit over $200 it was definitely worth it. Best to all of you, what a long, strange trip it’s been!

Jump to this post

@clarkb agreed, I bought one for my wife when she started menopause so I knew where to go to deal with mine! Embrwave2

REPLY
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