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michele peart
@shelley4

Posts: 1
Joined: Jun 29, 2015

recently diagnosed with piniculitis and from what i'm reading i'm scared now. [...]

Posted by @shelley4, Jun 29, 2015

recently diagnosed with piniculitis and from what i’m reading i’m scared now. i was told that it is rare, told a couple of different things about it but not enough. So how rare is it and is it life threatening , what complications come from it etc etc etc. I was told it was like having cellulitus in the stomach, lose weight , stop stressing and forget about it. Really! Well after 4 days of search and destroy antibiotics every 3 hrs this is all I get. Oh a month of steroids. I am not one for putting these meds in my body but here I am at 58 trying to get myself right for the next journey in life only to run into a brick wall again where the health is concerned. well I did everything I was told and here it is again so yeah now i’m a nervous wreck. I’ve never been one to search the internet about conditions but here I am. What can you tell me about this rare challenge. Thank you. looking forward for more knowledge.

REPLY

Hi Michele , I’m in the same boat 🙁 would like those same answers-

Michele – we have a support group with 112 members in it with mesenteric panniculitis and/or sclerosing mesenteritis – my email address is lisas444@yahoo.com – please send me your info and i can get you added to our group if you like! 🙂

@amy52668

Hi Michele , I’m in the same boat 🙁 would like those same answers-

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Amy – we have a support group with 112 members in it with mesenteric panniculitis and/or sclerosing mesenteritis – my email address is lisas444@yahoo.com – please send me your info and i can get you added to our group if you like! 🙂

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