I have Raynards Disorder for over 2 years now. I hike a lot and I got a touch of frostbite at altitude. I also have chilblains which I haven’t had before. I would like advice on what might help.
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It helps to dress in layers. Smartwool socks are wonderful, not terribly bulky and very warm. Hands are more difficult especially since we use them all the time. When I am outside I always have warm gloves/mittens on and when home and not using my hands as much if it happens I slip on a pair of light weight gloves or have a nice cup of tea and keep my hands wrapped around the mug. I had no idea I had this until I was diagnosed with Sjogrens. Pretty much it is a comfort the symptoms situation. Cold hands, warm heart.
Thanks. I do wear smartwool socks as well as merino tops which I do find useful. I have also lost some weight, due to excessive hiking, and I believe this may also be contributing. Thanks for your advice.
@patrickharraghygmailcom I am hoping you are still on Mayo Connect as I would like to know how you are doing. I also have Raynauds and I believe this week I have developed chilblains. Would like to hear more about your experience if you have a moment. Thanks, Kari
@kariulrich Hi. I didn't know you had Raynaud's. My daughter has it bad. I have never seen skin change colors as intensely as hers does.