Questions on COVID and Bronchiectasis
I received a CT confirmed diagnosis of Bronchiectasis two days before Mayo shut down for COVID in March. Although I had the results, my appointment with the consultant and additional follow up tests were canceled. They sent me an Aerobika in the mail. (Nobody told me I needed to sterilize it or my nebulizer, so that’s a new worry.) Months went by while I laid low in my house afraid I would certainly contract COVID the minute it sensed my lungs in the vicinity. My anxiety level has been over the moon and I became a recluse, crying at every turn and feeling lonely and terrified. In June, I finally worked up the courage to reschedule my follow up tests and pulmonologist appointment. Interestingly, Mayo requires a COVID test before pulm function tests and when they tested me, I was positive for COVID! Completely asymptotic. But I worry about getting it again. I was so careful and still got it. Are others out there feeling this way and how are you coping? I am falling ill enough about every 5 weeks to have to do a ZPak and now my doctor wants sputum cultures, which brings me back to my unsterile cleaning technique worries. We’ll see I guess. He also suggested sending me to Mayo’s Mayo’s Bronchiectasis Clinic. Any thoughts on that? I’m being seen by a resident whose being followed by a Staff pulmonologist, but I kind of think I should ask for an expert in the Bronchiectasis clinic. I seem to be trending worse. I also had the genetic testing completed and phone conferred with the resident because I am an Alpha antitrypsin MZ carrier and that is what they are attributing my disease to. So new to this with so many questions!