Questioning my existence

Posted by Smatthew @kaposi, Jul 5, 2023

Diagnosed with HIV in 2021. Also discovered Kaposi sarcoma cancer at same time. Completed 20 doxil treatments. 6 month checkup July 11. I still have not told a single soul. I cannot bear to tell my family. We were estranged over 10 years when I came out. I have started smoking cigarettes and meth. I am 44 years old. I’ve never been in a real relationship. No kids, no pets, no partner. I live alone. I’m unhappy. No one benefits from me being alive. Idk what to do anymore-or if I wanna do anything. I just want to be done.

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@kaposi

Thanks I’m feeling some better today as I was able to speak with a counselor last night/this morning. I appreciate your care and concern.

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Oh, it's wonderful that you've found a counselor to help you through this time. You were so brave to get onto this group and share how you're feeling. I found in my case that was the first and most crucial step. I tried to carry it all by myself and it nearly broke me. When I got honest about my feelings, help came rushing in. I hope this will be the case for you.

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@gingerw

@kaposi I am so glad to hear you are feeling better! I wanted to respond yesterday after reading your post, but I had surgery and didn't feel good. I know you can understand the anxiety I felt facing another procedure!

But enough about me. What plans have you made going forward now, to talk to someone? Please take a look at your list of close friends and family, and pick one or two you might like to approach with what you need to share.
Having someone nearby to turn to is never a bad thing, and of course, we are here, too.

Today I am sending you a warm hug of support, and hope you will reach out to me and others!
Ginger

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Thanks so much @gingerw youre so sweet. Wishing you a speedy recovery from your surgery.

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@colleenyoung

So good to hear from you, @kaposi! You know we were all holding our breath. 🙂

I'm glad that you were able to speak with a counselor. Real time talking with someone means a lot, especially in the moment. Besides dealing with the diagnoses of Kaposi's sarcoma and HIV, and just finishing 20 rounds of chemo treatment, waiting for a 6-month check-up is stressful. I'm also tagging fellow member @leroy23, who lives with Kaposi's sarcoma and HIV. I hope you can connect.

Have you heard of the term "Scanxiety"? Many cancer patients experience it. It's a pretty good way to sum up those few days/hours before going for a 6-month checkup to see how your body responded to treatment. I get that.

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Hi @colleenyoung and thanks for following up with me. I really appreciate you. Also thanks for the possible connection with Leroy. Maybe we will be able to lean on each other, that’s my hope anyway.

Also I was unfamiliar with the word “scanxiety” however, as soon as I read it, I knew exactly what it was, and what it feels like! Wow what a crazy feeling! Thanks for sharing this with me.

My 6 month scan is this week, Tuesday. Fingers crossed!

Thanks again. Be blessed.

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@kaposi

Hi @colleenyoung and thanks for following up with me. I really appreciate you. Also thanks for the possible connection with Leroy. Maybe we will be able to lean on each other, that’s my hope anyway.

Also I was unfamiliar with the word “scanxiety” however, as soon as I read it, I knew exactly what it was, and what it feels like! Wow what a crazy feeling! Thanks for sharing this with me.

My 6 month scan is this week, Tuesday. Fingers crossed!

Thanks again. Be blessed.

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I'll be thinking of you tomorrow, @kaposi.

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Oh dear,
You are smart to write.
We feel YOU.

Please try this : find a park bench & sit awhile.

Get up & go home.

Repeat.

The sunshine, air, colours, people, etc. will lift you.

I promise you will feel ( slightly ) better.

Canadian Col

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@gingerw

@kaposi I am so glad to hear you are feeling better! I wanted to respond yesterday after reading your post, but I had surgery and didn't feel good. I know you can understand the anxiety I felt facing another procedure!

But enough about me. What plans have you made going forward now, to talk to someone? Please take a look at your list of close friends and family, and pick one or two you might like to approach with what you need to share.
Having someone nearby to turn to is never a bad thing, and of course, we are here, too.

Today I am sending you a warm hug of support, and hope you will reach out to me and others!
Ginger

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Thank you Ginger.

As I read the @kaposi posts, I wonder if it's OK to recommend calling 988 even after calling the 1st time? Can they advise on next steps, maybe what counselling services are available in your area to continue with?

In my area there's one called -
resolve Crisis Services
https://www.upmc.com › ... › Behavioral Health
Contact resolve Crisis Services at 1-888-796-8226 or visit our walk-in center for 24-hour crisis and mental health help, ...

I've not called 988 myself, but have contacted the above Crisis Service after my sister's attempt.

Hoping to be of some help for @kaposi to continue the outreach effort, as they've already taken the first step.

Hugs to all.

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@brandysparks

Thank you Ginger.

As I read the @kaposi posts, I wonder if it's OK to recommend calling 988 even after calling the 1st time? Can they advise on next steps, maybe what counselling services are available in your area to continue with?

In my area there's one called -
resolve Crisis Services
https://www.upmc.com › ... › Behavioral Health
Contact resolve Crisis Services at 1-888-796-8226 or visit our walk-in center for 24-hour crisis and mental health help, ...

I've not called 988 myself, but have contacted the above Crisis Service after my sister's attempt.

Hoping to be of some help for @kaposi to continue the outreach effort, as they've already taken the first step.

Hugs to all.

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@brandysparks Like you, I have not had the overwhelming need to contact 988. That said, it seems like anyone should feel comfortable to call that number however many times they may need to.

@kaposi and so many others are hurting and in need of support. I would love to hear how they are doing today, and how reaching out to 988 has helped them.
Ginger

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I am coming late to this post, Kaposi. My heart goes out to you and I want you to know that you matter and that you are loved. Please know that. I am sending my best healing vibes to you.

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It sounds like you have been ALONE for a very long time. Your support system, is non available, and you have not found a way to have a family. I think you do not realize there are many, many people who are in the same boat as you, Surviving (if you can call that surviving), trying to ease the pain with medications, or alcohol and finding this does nothing, but make things worse. You have forgotten that you have the power to maybe save someone who is right on the edge today. You can do this, because you have experienced so much pain, and you know what it feels like, and you have a heart big enough to offer this help. Maybe the way to start is to find an animal in trouble at your local shelter, take it home, feed it, care, for it, see the transformation that occurs because of your gentle care, and see what this giving does for you. You may have ONE day when you no longer think about your medical condition, and how wonderful it is you can take your pet for a walk. While you are at a local park with your pet, you meet someone who needs a kind word from you, and the sun shines once more and you have made a friend. No matter what, We all find out sooner or later we NEED EACH OTHER. Hang in there, smile when you can, have a gentle word for someone who needs it today, and surprise, surprise You now have a family of your own making. No being ashamed of who or what you are. Most importantly, YOU ARE A CHILD OF GOD, HE MADE YOU, AND HE DOESN'T MAKE ANY JUNK.
Gina5009
Gina5009

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that’s the best advice I’ve been given in years. Thank you ma’am so much for your care and concern. Xoxo

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