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Jen_b
@jenblalock

Posts: 104
Joined: Jan 02, 2017

Question regarding symptoms

Posted by @jenblalock, Sun, Dec 3 5:30am

Hi all, I’m wondering if anyone else with bronchiectasis and/or cavitary lesions has this symptom or feels this way. I had MAC which was successfully treated and I have been off meds since April 2017. I also have mild bronchiectasis and two cavitary lesions that remain stable. For several months after I got off meds I felt really good but for the past month and a half I get afternoon fatigue, don’t feel well and have a dry cough. No night sweats or fever.
If I take ibuprofen the cough clears up and I feel better. I don’t really know why ibuprofen would cause my cough to clear up and my primary doc seems confused by this also. I’ve had a chest Xray which is stable since last Xray and my primary doctor only hears a bit of wheezing which is normal for me. Could it be as simple as allergies? Of course I’m paranoid because of previous MAC infection.

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heathert
@heathert

Posts: 248
Joined: Mar 07, 2016
Posted by @heathert, Sun, Dec 3 6:14pm

Hi @ jenblablock, could be allergies or bronchieactasis, the ibuprofen is anti inflammatory so would help inflamation in lungs caused by allergies/asthma or bronchiectasis I guess(Im no Dr). Do you have any other allergy symptoms?

Jen_b
@jenblalock

Posts: 104
Joined: Jan 02, 2017
Posted by @jenblalock, Mon, Dec 4 7:01am

Hi @heathert Thanks. I don’t have any other allergy symptoms but I used to get hay fever in the Fall. So maybe it is just that. Crossing fingers!

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Posted by @windwalker, 6 days ago

@jenblalock Hello Jen. @heathert Heather is right, ibuprophen helps to alleviate inflammation. Inflammation of the lungs is a common occurence for us. Some factors besides just having a disease are air quality issues. Some things that can cause inflammation are things in the air like scented candles, scented laundry detergent, deoderants, etc. There are ‘silent’ pollutants too; especially at this time of year. Be wary of shopping malls. They are overloaded with fresh merchandise that off-gass all kinds of chemicals that were applied overseas, along with many perfume samples being sprayed. I don’t know how many of you have experienced burning eyes and asthma like symptoms while X-mas shopping. My point being, be cautious to airborne triggers, especially around this holiday.

Liked by heathert, Jen_b

heathert
@heathert

Posts: 248
Joined: Mar 07, 2016
Posted by @heathert, 6 days ago

@windwalker I diddnt even think on the perfumes being sprayed in the shops, I always felt my hubbys deoderant spray was a problem, now I know, he leans out the window to spray it but i can smell it on him always, got to go! Thanks Terri 🙂

Jen_b
@jenblalock

Posts: 104
Joined: Jan 02, 2017
Posted by @jenblalock, 6 days ago

@windwalker and @heathert Thank you for your responses. I will keep this in mind. I do almost all my shopping online so no worries there. We use unscented laundry detergent and no dryer sheets so good there. Amazing all that I have to consider these days. Mainly, though, I am in the house or outside so it could be something in the outside air. It’s sort of our Fall here (southern US) so lots of vegetation is dying.

The doctor called in some prednisone for me to try to just knock this out. I’ve only been on it one day but I think my lungs feel better. Could be placebo effect. We’ll see. I think I really need to get off my butt, start working out, and get out of this ‘sick mode’. So easy to fall into it when not feeling great.

Thanks again for your input. I appreciate it.

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heathert
@heathert

Posts: 248
Joined: Mar 07, 2016
Posted by @heathert, 5 days ago

@jenblalock Prednisone is great stuff, hope you are better soon!

Liked by Jen_b

Posted by @windwalker, 4 days ago

@jenblalock Hi Jen. The prednisone should help a lot. I get put on it at least one time a year. I love the stuff. It makes me feel strong and gets my lungs back on track. I hope it will work as well for you.

Jen_b
@jenblalock

Posts: 104
Joined: Jan 02, 2017
Posted by @jenblalock, 4 days ago

@windwalker Hi Terri. Today is day 4 of Prednisone and feeling SO much better! Normal I would say. Also, I’m glad to know the feeling bad was legit and that it wasn’t just allergies that I had to live with. Hope it holds after I finish the prednisone. How are you doing?

Jen_b
@jenblalock

Posts: 104
Joined: Jan 02, 2017
Posted by @jenblalock, 4 days ago

@heathert Yes, it is doing it’s job and I feel much better. Thanks! How are you doing?

heathert
@heathert

Posts: 248
Joined: Mar 07, 2016
Posted by @heathert, 3 days ago

Hi @jenblalock ,yay that is fantastic news!, I had steriods years ago when I was feeling dreadful and they were fantastic, worked quickly and efficiently.

pfists
@pfists

Posts: 54
Joined: Dec 27, 2016
Posted by @pfists, 6 days ago

@windwalker
Good info on the air pollutants. I can not be exposed to candles, they have toxic ingredients. The parrifin is petroleum based very toxic, then of coarse the perfumes are problematic.
I did find some natural candles the other day that don’t both me. They are made from beeswax leadfree wick and natural lavender scent not artificial or you can get scent free. I cannot handle any perfumes scents in anything detegent soap, candles, room deordoizers ect. But I have many natural herbal ones that don’t bother me in at all lavender, orange, lemon.
Shari

Posted by @windwalker, 6 days ago

@pfists , Shari, have you gone for a bronchiscopy wash yet? I always pray for you and @tutti, Lisa in your fight against abscessus.

pfists
@pfists

Posts: 54
Joined: Dec 27, 2016
Posted by @pfists, 6 days ago

@windwalker
Thanks Terri its seems to be working!
Had the wash in Sept and I have been doing well since. I have tested neg since last May. Suppose to do a sputum again in January the last was the bronchoscope one in Sept which was neg also.
Keeping my fingers crossed and keeping on doing what i have been doing.
Turned up water heater
Hand shower set on drizzle no spay
Saline nebs 2 x a day
Air clearaance vest 2 times a day
Many herbal and vitamin supplements
Hoping and paying your doing well also!
Shari

Posted by @windwalker, 6 days ago

@pfists, Shari, same here on not tolerating fragrances. It was funny, when I first starting my husband, I would cough violently whenever we got close to one another. He used to joke that I was allergic to him. We figured it out that it was his Tide laundry detergent, Downey softener, and his strong men’s deoderant. We got rid of all of those and eliminated the problem.

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