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Jen_b
@jenblalock

Posts: 151
Joined: Jan 02, 2017

Question regarding symptoms

Posted by @jenblalock, Dec 3, 2017

Hi all, I’m wondering if anyone else with bronchiectasis and/or cavitary lesions has this symptom or feels this way. I had MAC which was successfully treated and I have been off meds since April 2017. I also have mild bronchiectasis and two cavitary lesions that remain stable. For several months after I got off meds I felt really good but for the past month and a half I get afternoon fatigue, don’t feel well and have a dry cough. No night sweats or fever.
If I take ibuprofen the cough clears up and I feel better. I don’t really know why ibuprofen would cause my cough to clear up and my primary doc seems confused by this also. I’ve had a chest Xray which is stable since last Xray and my primary doctor only hears a bit of wheezing which is normal for me. Could it be as simple as allergies? Of course I’m paranoid because of previous MAC infection.

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heathert
@heathert

Posts: 279
Joined: Mar 07, 2016
Posted by @heathert, Dec 3, 2017

Hi @ jenblablock, could be allergies or bronchieactasis, the ibuprofen is anti inflammatory so would help inflamation in lungs caused by allergies/asthma or bronchiectasis I guess(Im no Dr). Do you have any other allergy symptoms?

Jen_b
@jenblalock

Posts: 151
Joined: Jan 02, 2017
Posted by @jenblalock, Dec 4, 2017

Hi @heathert Thanks. I don’t have any other allergy symptoms but I used to get hay fever in the Fall. So maybe it is just that. Crossing fingers!

Liked by heathert

Posted by @windwalker, Dec 6, 2017

@jenblalock Hello Jen. @heathert Heather is right, ibuprophen helps to alleviate inflammation. Inflammation of the lungs is a common occurence for us. Some factors besides just having a disease are air quality issues. Some things that can cause inflammation are things in the air like scented candles, scented laundry detergent, deoderants, etc. There are ‘silent’ pollutants too; especially at this time of year. Be wary of shopping malls. They are overloaded with fresh merchandise that off-gass all kinds of chemicals that were applied overseas, along with many perfume samples being sprayed. I don’t know how many of you have experienced burning eyes and asthma like symptoms while X-mas shopping. My point being, be cautious to airborne triggers, especially around this holiday.

Liked by tdrell, heathert, Jen_b

heathert
@heathert

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Joined: Mar 07, 2016
Posted by @heathert, Dec 6, 2017

@windwalker I diddnt even think on the perfumes being sprayed in the shops, I always felt my hubbys deoderant spray was a problem, now I know, he leans out the window to spray it but i can smell it on him always, got to go! Thanks Terri 🙂

Jen_b
@jenblalock

Posts: 151
Joined: Jan 02, 2017
Posted by @jenblalock, Dec 7, 2017

@windwalker and @heathert Thank you for your responses. I will keep this in mind. I do almost all my shopping online so no worries there. We use unscented laundry detergent and no dryer sheets so good there. Amazing all that I have to consider these days. Mainly, though, I am in the house or outside so it could be something in the outside air. It’s sort of our Fall here (southern US) so lots of vegetation is dying.

The doctor called in some prednisone for me to try to just knock this out. I’ve only been on it one day but I think my lungs feel better. Could be placebo effect. We’ll see. I think I really need to get off my butt, start working out, and get out of this ‘sick mode’. So easy to fall into it when not feeling great.

Thanks again for your input. I appreciate it.

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heathert
@heathert

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Joined: Mar 07, 2016
Posted by @heathert, Dec 7, 2017

@jenblalock Prednisone is great stuff, hope you are better soon!

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Posted by @windwalker, Dec 8, 2017

@jenblalock Hi Jen. The prednisone should help a lot. I get put on it at least one time a year. I love the stuff. It makes me feel strong and gets my lungs back on track. I hope it will work as well for you.

Jen_b
@jenblalock

Posts: 151
Joined: Jan 02, 2017
Posted by @jenblalock, Dec 9, 2017

@windwalker Hi Terri. Today is day 4 of Prednisone and feeling SO much better! Normal I would say. Also, I’m glad to know the feeling bad was legit and that it wasn’t just allergies that I had to live with. Hope it holds after I finish the prednisone. How are you doing?

Jen_b
@jenblalock

Posts: 151
Joined: Jan 02, 2017
Posted by @jenblalock, Dec 9, 2017

@heathert Yes, it is doing it’s job and I feel much better. Thanks! How are you doing?

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heathert
@heathert

Posts: 279
Joined: Mar 07, 2016
Posted by @heathert, Dec 9, 2017

Hi @jenblalock ,yay that is fantastic news!, I had steriods years ago when I was feeling dreadful and they were fantastic, worked quickly and efficiently.

Liked by Jen_b

Posted by @windwalker, Dec 20, 2017

@jenblalock, Good morning, Jen! Oh! I am SO glad that the prednisone is working! Especially here at the holidays. I am doing great, thank you for asking. I was just in Virginia this past weekend and had an early Christmas with my daughter. Also helped a friend up there get unpacked from a move. We are having a Christmas party this weekend; so I have had fun shopping for décor for the party. I have not entertained in seven years due to illness. It feels good to get back to my old self. I hope you continue to improve and have a safe and happy holiday. Hugs, Terri

Liked by tdrell, ling123

Jen_b
@jenblalock

Posts: 151
Joined: Jan 02, 2017
Posted by @jenblalock, Dec 20, 2017

@windwalker That is great news, Terri! So glad you are getting your life back! Have a wonderful holiday. xxoo

ling123
@ling123

Posts: 205
Joined: Apr 06, 2017
Posted by @ling123, Dec 20, 2017

@windwalker So happy to hear that you are well and enjoying time with family and friends. Hope you keep your health up and have the best of holidays this year and every year after that.

Posted by @windwalker, Dec 20, 2017

@123ling, Thank you Ling. Wishing you continued good health as well! Hugs!

Liked by ling123

tdrell
@tdrell

Posts: 373
Joined: Aug 21, 2016
Posted by @tdrell, Dec 20, 2017

windwalker and all…..finally have a new computer…..reading over a lot of the comments, Terri and all others….don’t be fooled by the euphoria from the “bursts” that they are ordered in…be aware!
Meanwhile I have a one year follow up apt at NJH ..January 29th 2018…..will be curious to see what their opinion is…..l was told my MAC that was found locally with bronchoscopy was a result of my GERD (sound familiar) and if l work on that….all will be fine…no meds needed,
Hmmmm so a month after that…Feb l acquired a respiratory infection….cough and mucus galore that in spite of treatment with steroids and antibiotics continues 10 months later.
I requested 3 sputums be done for NTM /AFB from local pulmonologist….no signs of MAC but one grew “aerobic actinomycetes” which had no AFB. So onto the local ID doctor who asked a zillion questions and did testing for all kinds of weird things since l acquired the respiratory infection on a two week visit to Arizona. He also sent the above bacteria for more testing,,,,,,and said to return in 3 months which l did last week,
the culture was sent to Un of texas in tyler….their Mycobacterium/Nocardia Research Lab where they further tested the specimen and called it
Tsukamurella Species. and listed the meds it was resistant sensitive to.
I told the ID doctor l would be back to NJH for their opinion….he wants to treat with big 3 antibiotics
CAT scan of chest done at NJH in November showed all stable except l now have “thickened bronchial walls” which apparently can be from inflammation (not bronchiectasis) possibly chronic bronchitis.
I began CPAP in April ……one question that has arisen….could the latest bug be from the equipment….the water reservoir….l have a $300 ozone cleaning machine ….one doctor commented that it does not work on all bacteria…..
another question for NJH….maybe they will culture the machine and tubing ,etc
so folks as we all know….more questions ….maybe answers???? Have a great holiday season….stay away from illness and don’t over do
tdrell

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