I have several autoimmune and chronic pain disorders : Rheumatoid Arthritis, Ulcerative Colitis, Fibromyalgia, MAC, spinal stenosis, poly Inflammatory Arthritis to name a few. I have just been diagnosed with Pyoderma Gangrenosum (PG). I live with chronic pain but this is the worst disease out of all of them!
I have open ulcerations all over my body. Some are open HOLES. They are not infected but are so painful and disgusting looking. I am on 80mg of prednisone and just had my first Remicade infusion last Thursday. That completely knocked me out: nausea, diarrhea,weakness…not a fun time. I also have a very compromised immune system from taking Rituxin. I’m a mess all around. I’m lucky to have a great care team consisting of members of Infectious Diseases, Dermatology, Rheumatology, Internal Medicine, Immunology and Pulmonary. I also have wonderful and supportive friends and family (and a magnificent husband)! What I don’t have is anyone who has PG. If you know someone who has it or if you have it I would love to hear from you. I would love to hear from a specialist who works with this disease. Before all of this hit I was a life coach, counselor, actor and educator. I have my doctorate in Clinical Psychology.
I’m happy to share pictures if you want to see. Thank you in advance!!!