Pudendal Nerve Neuralgia

Posted by 1mepnurse @1mepnurse, Mar 23 10:06pm

OMG, it's horrible. Your perineum area in ' on fire 24 / 7 & your rectum feels like U have a golf ball in it. Having BM' s is difficult & then hurts afterwards, for a good while !
The upper back thighs are very sensitive to touch, as if u had shingles
There are no real answers are cures.
I SURE WOULD like to chat with others, that may have this !!
PRAYERS for research & ANSWERS, anyone !! Thx u.

@1mepnurse I'm so sorry you have this that's horrible

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@1mepnurse I agree with @lioness, that does sound terrible.

Members @deneenm & @glenbard have discussed a similar topic in the past and may be of help.

Below I have linked similar discussions that you may find useful and you may wish to scroll through them.
– Postherpetic Neuralgia (Shingles) nerve damage https://connect.mayoclinic.org/discussion/postherpetic-neuralgia-shingles-nerve-damage-around-eye-eyebrow-forehead-scalp-8/
– Trigeminal Neuralgia* https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/
– Has anyone here had or know about Pudendal Nerve Entrapment? https://connect.mayoclinic.org/discussion/has-anyone-here-had-or-know-about-pudendal-nerve-entrapment/

May I ask how long these symptoms have been going on? Was there a gradual or sudden onset?

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Pudendal Nerve Pain Treatment

Has anyone had this condition and gotten help? If so did the pain go away? What kind of Dr did you see and how do they diagnose? Thank you.

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@mmoss I'm assuming that you are having this issue and I'm sorry to hear that.

I moved this question to an existing discussion so you could connect with members like @1mepnurse @deneenm & @glenbard

Here are three related discussions I referenced earlier but they seem pertinent to you now.
– Postherpetic Neuralgia (Shingles) nerve damage https://connect.mayoclinic.org/discussion/postherpetic-neuralgia-shingles-nerve-damage-around-eye-eyebrow-forehead-scalp-8/
– Trigeminal Neuralgia* https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/
– Has anyone here had or know about Pudendal Nerve Entrapment? https://connect.mayoclinic.org/discussion/has-anyone-here-had-or-know-about-pudendal-nerve-entrapment/

May I ask what kind of a provider you have seen already?

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@erikas

@mmoss I'm assuming that you are having this issue and I'm sorry to hear that.

I moved this question to an existing discussion so you could connect with members like @1mepnurse @deneenm & @glenbard

Here are three related discussions I referenced earlier but they seem pertinent to you now.
– Postherpetic Neuralgia (Shingles) nerve damage https://connect.mayoclinic.org/discussion/postherpetic-neuralgia-shingles-nerve-damage-around-eye-eyebrow-forehead-scalp-8/
– Trigeminal Neuralgia* https://connect.mayoclinic.org/discussion/trigeminal-neuralgia-2273cc/
– Has anyone here had or know about Pudendal Nerve Entrapment? https://connect.mayoclinic.org/discussion/has-anyone-here-had-or-know-about-pudendal-nerve-entrapment/

May I ask what kind of a provider you have seen already?

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Pelvic Floor Therapy helps some.
My pain Dr injected my Pudendal nerve twice, but NOTHING changed, so it's apparently some other unknown nerve. God love & help all others with these symptoms…Gabapentin helps SOME, but sadly, gaining weight.
Upper back thighs have burning ( like shingles)…some times worse than others.
We sure need RESEARCH for answers ! Praying.

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@mmoss When you mention burning I'm in P.T right now for front thighs that are burning I go today its been a week of exercise he gave me to do at home .I had to ask Dr for referral he wanted to do surgery but therapy is helping me maybe it will help you. For urine smell Are you drinking enough water ?

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@1mepnurse

Pelvic Floor Therapy helps some.
My pain Dr injected my Pudendal nerve twice, but NOTHING changed, so it's apparently some other unknown nerve. God love & help all others with these symptoms…Gabapentin helps SOME, but sadly, gaining weight.
Upper back thighs have burning ( like shingles)…some times worse than others.
We sure need RESEARCH for answers ! Praying.

Jump to this post

There are several pudendal nerve strands IN THE SAME AREA ! THAT IS WHY YOU NEED HIGHLY TRAINED/ EXPERIENCED ANAESTHETIST TO PERFORM THIS PROCEDURE. THEY CAN ASSES WHICH ONE iS REACTIVE TO PAIN BY RECTAL PALPATION/ MANIPULATION. That offers the ability to exactly locate the offender.
Wish you love and relief !

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