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Posts: 1
Joined: Mar 13, 2012

pseudotumor cerebri

Posted by @jessesh, Mar 13, 2012

i have had a constant headache for about 3 straight months not along with double vision ive had 3 spinal taps with elavated spinal pressure. I have been to a nerologist as well as a eye doctor with some swelling on my left optic nerve. i was wondering if anyone else has had any trouble or know anything about this. i cant seem to get over it and need help? anyone thanks for reading!


Alex Simon

Posts: 179
Joined: Feb 08, 2011
Posted by @alexsimon, Apr 18, 2012

Dear Jessesh-
Mayo Clinic does have some information available about pseudotumor cerebri available here:

Also, if you are intersted in scheduling an appointment with a Mayo Clinic physician in MN, FL, or AZ, please click on the “Request an Appointment” button on the upper right hand corner of your screen to begin the process.


Posts: 1
Joined: Jun 19, 2012
Posted by @kellysieck, Jun 19, 2012

I was diagnosed in 2008 with pseudotumor ceribri with papiledema.
I spent two years in and out of the hospital with severe neck and shoulder pain, an eye ache with a mild headache as well as other symptoms.
. I felt worse on diamox and would get frequent kidney stones. It is extremely frustrating knowing thereis not a cure however it can go into remission. I stopped going to my neurologist and kept my neuro eye doc. I focused on stress relief which seems to trigger my symptoms. Healthy diet and started swimming for exercise. I went to the chiropractor and tried acupuncture.
I had success for 9 montths however i am having trouble once again.
The only thing I take for pain is flexeril and if I am having trouble with swelling of the optic nerves I return to lasix along with visits to the eye doc for visual field test.
Attitude along with faith makes it easier to cope. Find something that helps you get some relief, and never give up on trying to get better.

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