Protracted Benzo withdrawal

Posted by aarniek @aarniek, Oct 30, 2016

Taken of 8mg of Ativan daily in 3 weeks and suffering terribly nearly 4 years now! Unable to walk ,have insane muscle tightness,no memory,tinnius is unbearable,unable to picture things in my mind ! After 45 months it’s worse than ever and 2 neurologists have tried only medications which all made me even worse!

Did I miss something? What course am I following? Did you suggest something ? Arnie.

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@aarniek

Did I miss something? What course am I following? Did you suggest something ? Arnie.

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I’m sorry, course of treatment, treatment direction.

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@aarniek

Anyone found anything that helped this brutal condition so you could have any sort of life again? I am on 8 different Benzo withdrawal sites including benzo buddies and found zero help!

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Hey @suzz, you’ll notice that I removed your email from the discussion board. We encourage members to use the private message function to share contact information. Private messaging is secure. Posts to the discussion board are public and want to keep members safe and avoid your getting unwanted spam, etc.
Thanks
Colleen
Community Director.

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@aarniek

Anyone found anything that helped this brutal condition so you could have any sort of life again? I am on 8 different Benzo withdrawal sites including benzo buddies and found zero help!

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Yeah I asked about it , sorry !

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@aarniek

Anyone found anything that helped this brutal condition so you could have any sort of life again? I am on 8 different Benzo withdrawal sites including benzo buddies and found zero help!

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No problem, Suzz.

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In the nearly 4,years ,one thing I have found is that there is no treatment,unless someone on here knows of one? My hope is to find something,anything to help make this bearable as now it is not because it’s worsening at a faster rate than ever!

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I have been taking Klonzipan for over 30 years, I am taking 1.5 mg per day. i am a totally disabled vet Now the VA is taking off and it has been the only thing that has really worked for me. Any suggestions?
/

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Welcome to Connect @weathermike1.
Why is the VA taking you off Klonzipan? What treatment is being recommended?

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Have you told them that Klonopin is the only drug that works for you? I don’t understand why after 30 years they would even bother taking you off this drug especially if it works for you. I don’t know how the VA works when it comes to changing doctors. I guess I don’t have any concrete suggestions, but good luck anyway.

Leslie

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I just wanted to post my story
I have been taking Lorazepam for 15 years at least for sleep mostly but also for anxiety. This stuff is nasty if i only knew i would never started using it!
Im taking a total of 2 mg a day now , 1 mg at night for sleep. I guess i am doomed for life

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@ada1957

I just wanted to post my story
I have been taking Lorazepam for 15 years at least for sleep mostly but also for anxiety. This stuff is nasty if i only knew i would never started using it!
Im taking a total of 2 mg a day now , 1 mg at night for sleep. I guess i am doomed for life

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Hello @ada1957. I would like to welcome you to Mayo Clinic Connect.

Please tell us a little more about yourself. Have you been instructed by your provider to taper off of the drug?

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@aarniek

Anyone found anything that helped this brutal condition so you could have any sort of life again? I am on 8 different Benzo withdrawal sites including benzo buddies and found zero help!

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It’s now almost July 2017 and I have gotten no better in fact I took an OTC pill( one) and 4 days later I am having severe symptoms like never before! I have a pool but since 2013,after stopping my Benzo,I have not been able to even get to my pool ,muscle stiffness is still beyond belief!

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