prostate cancer treatment choices

Posted by Ronoir @ronoir, Jul 29, 2016

Hello everyone, new member looking for some experiences/advise on post radical prostatectomy treatment. my stats: Gleason 9, lymph nodes, seminal vesicle, margins, fat tissue cap all positive for cancer. 5 of 41 lymph nodes removed were positive also seminal vesicle was removed. p.s.a. 3 mos. post op .08, .10 .12 @.15 presently. Prostatectomy was part of protocol for immunotherapy vaccine clinical trial. Would appreciate any input you may have on radiation and/or hormone therapies. Thanks

I went thru radiation 12 years ago and now in last 2 years psa went from 0.5 to 4.3. I was told now to go with cryotherapy treatment. Has anyone gone thru this treatment and how long did it last, Thanks, Jack

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@hughj37

I went thru radiation 12 years ago and now in last 2 years psa went from 0.5 to 4.3. I was told now to go with cryotherapy treatment. Has anyone gone thru this treatment and how long did it last, Thanks, Jack

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Hi @hughj37, welcome to the group. I'm tagging @airjohn who had cryotherapy to treat prostate cancer. Not sure if he is still getting messages from this forum, but it's worth a try.
In the meantime, here's some information about cryotherapy from Mayo Clinic https://www.mayoclinic.org/tests-procedures/cryotherapy-for-prostate-cancer/about/pac-20384740

Hugh, when are you scheduled to get cryotherapy?

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I am waiting on my last psa report and then will have to make the decison. The problem is I will have to drive to another city to get it done. I am almost 82 and not sure if I want to go thru with it

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@hughj37

I am waiting on my last psa report and then will have to make the decison. The problem is I will have to drive to another city to get it done. I am almost 82 and not sure if I want to go thru with it

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New to this site and appreciate what everyone has been through. Now my situation does not seem that bad. 2012 during annual visit to urologist, he felt nodule, PSA was 1.67. Biopsy 7 ,successful surgery by Dr Andriole, Wash U, St Louis. April 2017 PSA .04. Now .19. Urologist recommending radiation. Age 72 and heard horror stories about side affects of radiation. Anybody with similar situation, and how did you handle it?

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A friend had seeds implanted to treat prostrate cancer and now has problems with urgent diarrhea. Anybody have similar or know how to treat it?

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Hello @albin,

Welcome to Connect. I moved your message to this existing discussion about prostate cancer; click VIEW & REPLY in the email notice to read through the discussion and meet other members.

Prostate brachytherapy is a form of radiation therapy used to treat prostate cancer, and permanent prostate brachytherapy involves placing radioactive seeds in the prostate gland permanently, where they slowly release radiation. Radiation can irritate the rectum and cause a condition called radiation proctitis. This can lead to diarrhea, sometimes with blood in the stool, and rectal leakage. https://www.cancer.org/cancer/prostate-cancer/treating/radiation-therapy.html

Has your friend been told to follow any special diet to control bowel movement? How is he managing the diarrhea?

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He is trying things on his own but has not received anything official

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Hi everyone,
A new group dedicated to prostate cancer has just been opened. I have moved this discussion to the new group. See here:

> Prostate Cancer https://connect.mayoclinic.org/group/prostate-cancer/

Be sure to +FOLLOW the group and keep connecting.

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@ronoir

I was advised to check my p.s.a.in 3 mos. and if above .20 then radiation would be of no value given the involvement with lymph nodes , seminal vesical, fatty cap and margins and that the cancer would have most likely moved beyond my prostate bed in which case ADT was recommended. Given the potential risks of radiation and with only 25% chance of it (radiation) doing me any good at this point im reluctant to go the radiation route even though just below .20 so far. Thank you for your input and any additional will be very appreciated

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I was initially diagnosed in 2014 and was offered a treatment paths that proposed surgery or radiation (brach). I did not like either and rsearched other treatment protocols. During this period I changed my diet to an alkaline diet, did a 2 month regime of high dose vitamin C via IV and even did 12 sessions of hyperbaric treatment. Finally I decided on a treatment offered by Dr Sperling – Focal Laser Ablation which held my PC at bay until a recurrence in June 2018 when Dr. Sperling undertook an MRI guided biopsy. Subsequent to the diagnosis which was reconfirmed by John Hopkins, I followed up by taking Metformin and Casodex for a couple months when I did another ablation by Dr Sperling. Subsequent to this ablation Dr. Sperling recommended I go on Lupron and follow up in 6-12 months with radiation. My PSA is point .1 and testo .5, However another thing I tried which I believe was tremendously helpful was Rick Simpson Oil – Phoenix Tears (lots of material on the internet about it). I tried it because a friend of mine's wife who was terminal with lung and brain cancer tried it as a last resort and that was 3 years ago. The RSO protocol calls for a person to take 60 grams of Phoenix Tears over a 90 day period. My most recent 3T MRI has shown my prostate has reduced in size and I am waiting on a consult with Dr Sperling to read my MRI as the Canadian radiologist lacked the experience in reading it with my post ablation treatment. I know it has done something because my Lupron side affects are minimal and I am no longer waking to go to the washroom many times through the night. I usually wake about 6 am or later for that chore. Taking RSO does have side affects it does "buzz" you out quite a bit once you get to the 1 gram per day dose. However, I usually took it in the evening around 8, it would kick in about 10 and I slept "like a stone" for a good 10-12 hours. Anyway this is my experience so far and I am still very reluctant on radiation since risks prevail. I am planning on starting my next go around with RSO next week and if you have any questions feel free to ask.

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I orginal did Focal Laser Ablation by Dr. Sperling, I am on hormone therapy now and at first had to get accustomed to the hot flashes and cold sweats which have now eased with life quite normal. Although I am not as strong muscular wise and I do have morning joint pain which dissipates once I get moving. My PSA is now .1 and testo .5, I am due for another Lupron injection in a month. I also followed the Rick Simpson Oil (strain is Phoenix Tears 25% THC) protocol taking 60 grams in 90 days. I recently had a 3T multiparametric MRI which showed my prostate had reduced in size and the cancer has no lymph mets or no bone mets. I am actually feeling real good and I have no need for washroom visits during the night. I attribute my well being to the RSO and I am going to do another regime starting next week. I have a great deal of reluctance related to radiation because I can not get any straight answers on the risks all I am told is that i will have side affects that could be bad but have given me nothing but worst case scenarios which I am not pleased with. Oncologist has recommended 39 radiation treatments over 2 months. I am very hesitant with this protocol.I want to maintain a good quality of life even if that means life is shorter. I have had very positive results with RSO and that is why I am taking RSO (see the internet lots of information related to it). However you won't here that that from the medical profession. I do have first hand knowledge of a person with terminal lung and brain cancer who is now in remission for 3 years who followed the RSO protocol as a last hope. Its all a personal choice however advocate for yourself and get second opinions on everything. We are all different and you know yourself how you feel. I have encountered some very good medical professionals but I also encountered a great deal of arrogance related to my personal choices.

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@semeon

I orginal did Focal Laser Ablation by Dr. Sperling, I am on hormone therapy now and at first had to get accustomed to the hot flashes and cold sweats which have now eased with life quite normal. Although I am not as strong muscular wise and I do have morning joint pain which dissipates once I get moving. My PSA is now .1 and testo .5, I am due for another Lupron injection in a month. I also followed the Rick Simpson Oil (strain is Phoenix Tears 25% THC) protocol taking 60 grams in 90 days. I recently had a 3T multiparametric MRI which showed my prostate had reduced in size and the cancer has no lymph mets or no bone mets. I am actually feeling real good and I have no need for washroom visits during the night. I attribute my well being to the RSO and I am going to do another regime starting next week. I have a great deal of reluctance related to radiation because I can not get any straight answers on the risks all I am told is that i will have side affects that could be bad but have given me nothing but worst case scenarios which I am not pleased with. Oncologist has recommended 39 radiation treatments over 2 months. I am very hesitant with this protocol.I want to maintain a good quality of life even if that means life is shorter. I have had very positive results with RSO and that is why I am taking RSO (see the internet lots of information related to it). However you won't here that that from the medical profession. I do have first hand knowledge of a person with terminal lung and brain cancer who is now in remission for 3 years who followed the RSO protocol as a last hope. Its all a personal choice however advocate for yourself and get second opinions on everything. We are all different and you know yourself how you feel. I have encountered some very good medical professionals but I also encountered a great deal of arrogance related to my personal choices.

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Welcome to Connect, @semeon. I think you might find this journal article of interest.

– The current state and future perspectives of cannabinoids in cancer biology (2018) https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5852356/

Treatment decision making is so challenging and defining quality of life is a very personal calculation. You may also find this discussion to be helpful when considering radiation or not:
– Prostate Cancer: What treatments did you choose after surgery? https://connect.mayoclinic.org/discussion/prostate-cancer-3/

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@santi

You have been through a lot after your transplant although you sound like you will keep on fighting to eradicate all of the cancer. Great attitude! I came off double bypass open heart surgery 2 years ago and recovered. I am now faced with the challenge of prostate cancer. My Gleason score is 7 and the Urologist gave me a choice of surgery or radiation. I recently met with a Radiologist/Oncologist and he mapped out the treatment options to me. He knows I ruled out surgery so he advised to take hormone therapy coupled with radiation. The hormone shot was to last 6 months and within that time I would under go radiation treatment. The side effect could range from no Libido and no testosterone with the hormone shot. I opted for straight radiation which will consist of 28 treatments over 5.3 weeks. I start June 26th.

All the Best to you!

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I have been given the same treatment approach. I am on Lupron and don’t find it too bad. Initially a lot of hot and cold sweats with some joint pain. However joint pain is not severe. I am waiting for a second opinion on different types of radiation, looking at focal laser ablation and will start using Rick Simpson Oil as I believe it has helped me a lot.

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