Prostate cancer: What treatments did you choose? Results?

Posted by assad4zamani @assad4zamani, Oct 13, 2020

Hello all,
I’m 73 and healthy with no conditions but Recently I have had PSA of 5.8 and then a biopsy that resulted in T2a grade and Gleason score 7 (3+4). I have been bombarded with so much information and many options of treatments. I’m leaning toward Robatic Laproscopy surgery. I would sincerely appreciate your comments and experience in this area and also what should I look for and be concerned if anyone tried other options and how was the results.
Many
Thanks

@stoney

I postponed surgery in favor of attending my daughter's wedding. The doctors were fine with that (3-month delay). November is soon enough. You'll have a bone scan to see if it has spread (not likely to have spread). You will have associated lymph nodes removed and tested for cancer (they filter contaminants), along with the entire prostate. Some nerve structures will be removed on the left side as a precaution. They can't take a chance and leave them intact, sorry. Left side nerves a responsible for getting an erection. I had and continue to have leakage (it is manageable and I wear female pads in my underwear at night). I walked 2 miles a day for one year for healing purposes (that's just me). Kegel exercises will strengthen your bladder control, but I've found that starting and stopping peeing over and over until the bladder was empty, worked better than Kegels. Start these right now, before surgery. Now about sex. After your catheter is removed, take your prescribed blue pills as directed. (honeybeehealth.com has them for .38¢ per pill). You will have blood in your pee for a while maybe some clots as well. The sooner you have any sex, the better, and as often as you can tolerate it (lol). Use it or lose it. You will have zero ejaculate fluid and your orgasms will feel quite different but still pleasurable. You may and probably will experience a decreased size in penis length through the healing process. I purchased the RestoreX®(Mayo approved design) penis traction device for around $500. It's worth it but your mileage may vary. Feel free to contact me at any time if you have more questions. Good luck to you!

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I elected robotic surgery (also postponed a few months for daughters wedding) just over a year ago and could not have been more pleased with the outcome. I just had another PSA and it was still undetectable so I am very fortunate. I was out of the hospital in less than 24 hours after the procedure and have had very little long term affects. Pain was minimal and after a week with a catheter was back to near normal activity. No leakage and slight impact on ED which was already an issue but pills do help. The best advice I got was to be sure to have a surgeon who has had lots of experience and is why I chose Mayo and was not disappointed and not wait too long so that the cancer was contained.

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@curt24

I elected robotic surgery (also postponed a few months for daughters wedding) just over a year ago and could not have been more pleased with the outcome. I just had another PSA and it was still undetectable so I am very fortunate. I was out of the hospital in less than 24 hours after the procedure and have had very little long term affects. Pain was minimal and after a week with a catheter was back to near normal activity. No leakage and slight impact on ED which was already an issue but pills do help. The best advice I got was to be sure to have a surgeon who has had lots of experience and is why I chose Mayo and was not disappointed and not wait too long so that the cancer was contained.

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Thank you very much and I appreciate your reply and it is comforting for me and glad that you have a good result. I’m 73 , how old were you at the time of surgery.
Thanks
Assad

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Three weeks ago I had radical prostatectomy and removal of my prostate and all went well one week I had catheter and after that I have problem with inconstant and wearing adults diaper. Please let me know your experience and how long this issue would linger
Thanks
Assad

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@assad4zamani

Three weeks ago I had radical prostatectomy and removal of my prostate and all went well one week I had catheter and after that I have problem with inconstant and wearing adults diaper. Please let me know your experience and how long this issue would linger
Thanks
Assad

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@assad4zamani, incontinence and having to use protective undergarments after a radical prostatectomy is not uncommon. You'll find other men talking about this issue in this discussion:
– Does anyone still have leakage? https://connect.mayoclinic.org/discussion/does-anyone-still-have-leakage/

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Coughing and sneezing will cause some leakage (as will trying to pass gas forcefully) after two years post op.

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@colleenyoung

@assad4zamani, incontinence and having to use protective undergarments after a radical prostatectomy is not uncommon. You'll find other men talking about this issue in this discussion:
– Does anyone still have leakage? https://connect.mayoclinic.org/discussion/does-anyone-still-have-leakage/

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Thank you very much Colleen for response to my question.
Regards
Assad

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@stoney

Coughing and sneezing will cause some leakage (as will trying to pass gas forcefully) after two years post op.

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Hello
I appreciate your response to my question.
Regards
Assad

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Here is some very promising new science for Prostate Cancer patients:

A Vaccine to Prevent Prostate Cancer Recurrence
DECEMBER 8, 2020
A First-of-its-Kind Vaccine to Prevent Prostate Cancer Recurrence
Here is fantastic news for men who undergo an initial treatment for localized prostate cancer! In November, 2020 the FDA granted Fast Track Designation to RV001, an investigational vaccine against prostate cancer recurrence after primary treatment.

I just received this and will research more on this. It may have merit for many people

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I sure would like to hear more about this!

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I received the article from my doctor in the USA, I definitely plan on research it.

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Thank you I am defintely checking this out.

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