My 21 year old son was just diagnosed this week with PBC. He has been experiencing symptoms since he was in his teens and has been very sick of and on for at least 3 years. It has been difficult to find the source due to a myriad of problems. His blood markers were present and his most recent CT Scan showed Hepatomegaly. As I understand, this is typically a disease seen in women, most often in middle age and never seen in childhood. He does not fit the profile. He is being scheduled for a liver biopsy to stage his liver. Anyone have any words of wisdom or advice? It is so frightening to watch our son feel so ill and struggle through going to college. Part of me wants to pull him home and protect him, but I know he needs to live as well. I thank God he doesn't drink alcohol, at least that is in his favor. Anyone else had a teen or young adult go through this?