preparation failure for multiple colonoscopies

Posted by azcyclist2018 @azcyclist2018, May 21, 2018

I had two failed preps for follow-up colonoscopies, as part of on going follow-up for colorectal cancer (resection removed tumor, and now involved in extended follow-up). Followed the prep directions to the letter (PEG and one other); both failed and there was initial blame on me for not following directions. Believe me, since I did have a very large, malignant tumor removed, the LAST thing I would do is compromise the bowel prep process. Am set to have my 3rd colonoscopy in 24 hours, and am worried if this one also fails, what options are there for screening?
I am 67 yo, 165lbs, 5'11"; ride a bicycle at 120-150 miles per week at about 16-18 mph. I eat very healthy; was treated for GERD that eventually resulted in a subtotal gastrectomy with roun-y (?spelling?)–ie, stomach has been removed except for a small pouch about the size of a tangerine. What options are available to continue my follow up if this upcoming colonoscopy also fails?
Thank you.

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@azcyclist2018 I see you are new member of Connect! Welcome.
Can I ask which prep brand or formula you been prescribed? Is the issue throwing it up?
I agree the prep for a colonoscopy is awful . I feel for you. I had colon cancer as well, and have had my fair share of colonoscopies. I have so far been doing ok with the gallon of horrible liquid to drink. I generally wash it down with coconut milk.
Once a Dr had given me Prepopik that was easier to drink than the Gallon Jug. Is that prep a possibly? You may want to ask your Dr. if you can try that brand?
Please let us know how you manage.
Best of luck..
Jackie

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I'd also like to bring @robbinr into this discussion. A while back Robin also wrote about "failing" a colonoscopy:
– I recently failed two preps for a colonoscopy https://connect.mayoclinic.org/discussion/i-recently-failed-two-preps-for-a-colonoscopy-and-i-cant-imagine/

You may wish to read that discussion thread, @azcyclist2018. How is the prep going?

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@colleenyoung

I'd also like to bring @robbinr into this discussion. A while back Robin also wrote about "failing" a colonoscopy:
– I recently failed two preps for a colonoscopy https://connect.mayoclinic.org/discussion/i-recently-failed-two-preps-for-a-colonoscopy-and-i-cant-imagine/

You may wish to read that discussion thread, @azcyclist2018. How is the prep going?

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I did post a reply but do not see it….?? Am leaving shortly for my 3rd procedure today, so will update the update upon my return home.
Thanks!

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@colleenyoung

I'd also like to bring @robbinr into this discussion. A while back Robin also wrote about "failing" a colonoscopy:
– I recently failed two preps for a colonoscopy https://connect.mayoclinic.org/discussion/i-recently-failed-two-preps-for-a-colonoscopy-and-i-cant-imagine/

You may wish to read that discussion thread, @azcyclist2018. How is the prep going?

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@azcyclist2018 if you click VIEW & REPLY at the bottom of the email, you will be able to see the whole discussion and your messages. Hope all went well today.

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@colleenyoung

I'd also like to bring @robbinr into this discussion. A while back Robin also wrote about "failing" a colonoscopy:
– I recently failed two preps for a colonoscopy https://connect.mayoclinic.org/discussion/i-recently-failed-two-preps-for-a-colonoscopy-and-i-cant-imagine/

You may wish to read that discussion thread, @azcyclist2018. How is the prep going?

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Tuesday 5.22.18; 2:47 PM Procedure went as well as could be expected. the prep was listed as "fair"; had not completely emptied. However did find another polyp and removed it. Will see if any pathology comes back.
Finally the GI do allowed that since I had a gastrectomy with roun-y (spelling?) and resection of a significant portion of the colon, preps will be complicated.–I will know for next time.
Someone asked if the prep was compromised due to nausea from drinking the "kool-aid"– no, drank it all! Guess mine will be a plumbing issue from now on, but at least I will know in advance for next time. Thank for the comments!
bill

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@azcyclist2018 Glad to hear they were able to do the procedure. Maybe next time you will have better luck with the prep? When are scheduled for your next colonoscopy? I had a resection 2 1/2 yrs ago. I go every 3 years now. Thank God.. I do not like having to get this done. My stomach is always a mess afterwards. Takes a few months to get back to normal.
Will pray your Path report comes back good.
Wish you the Best..
Jackie

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@travelgirl

@azcyclist2018 Glad to hear they were able to do the procedure. Maybe next time you will have better luck with the prep? When are scheduled for your next colonoscopy? I had a resection 2 1/2 yrs ago. I go every 3 years now. Thank God.. I do not like having to get this done. My stomach is always a mess afterwards. Takes a few months to get back to normal.
Will pray your Path report comes back good.
Wish you the Best..
Jackie

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Next colo set for 3 years; however will work with primary care with more questions: if the polyp was 6mm after one year (my last full colo was clean!), in 3 years that could be 18mm or almost 3/4 "–if my math metrics are right- not sure that 3 years is in my plan but will see what the primary says.
thank for your kind words; best to you.
bill

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Ask for a virtual colonoscopy. My mom had it. that many in 24 hours has to deplete your body of sooo much! My Mom went through x-ray, MRI, and finally had to do the virtual colonoscopy to really get a good read on it.

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Sue, I'm glad you mention virtual colonoscopy as an option.

For anyone interested here's further information:
– Virtual colonoscopy https://www.mayoclinic.org/tests-procedures/virtual-colonoscopy/about/pac-20385156
– Advantages and disadvantages https://www.mountsinai.on.ca/care/virtual-colonoscopy/advantages-and-disadvantages

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Is there a quick way when checking topics to find out the date, or year, topic was posted… for instance, not sure if this, now , is correct place.

So I opted for a colonoscopy after declining one in 2018 after c,diff …. doctor last week referred me to surgeon and to cut long story short, because of narrow angle glaucoma (I had iridotomy 2020 but its still risky) I am concerned about the anaesthetic . After brief phone discussion with surgeon who I have not met … he suggested CT COLONOGRAPHY? It sounded too good to be true and from what I have now read, it is very painful and awake through whole procedure.. even have nurses etc. with you to encourage you to get through it.

So my delima: Have the colonoscopy with some type of anaesthetic and risk problems with eye pressure (also bowel perforation can happen) or have the virtual colonography CT scan.. (and bowel perforation can still happen with this).

I feel between a rock and a hard place as have other illnesses and feel so poorly most of the time it will even be a challenge to get through the prep.

Its my choice whether or not to have either test, and I am leaning towards not having either – I dont think I can even get through the prep. Had radiation damage to pelivis 1985, ibs-d or ? since, , a little bit of diverticulitis or ?, then 2018 too many antibiotics and c.dff and since that ended fecal incontinence every day since except when take Imodium.. b.m.'s are paste no matter what I eat.

I have been through colonoscopy before 2008 but since then have been diagnosed with narrow angle gluacoma, neuropathy, internal shaking, and tinitus, ear pain, ear fullness – no cure and a dash of anxiety and depression and feel ill every single day. Also there are true articles on Internet of people having "got" glaucoma after anasthetic or glaucoma worsened; its scary!!! … on the other hand the procedure for virutual CT scan colonography sounds like toruture and reviews by people who have had it are on Internet…. some people screaming in pain and suffering hours after etc. etc.

Is there a third choice? MRI Ultrasound X-ray of belly? Jump off a roof?

As a gneral question, WHY is it that we as patients seem to be doing all the groundwork and research for possible reactions to surgeries and medications? What happebned to the days when the doctors and surgeons got your history and current meds and health, and "they" came up with a solution?

Hurriedly written as not sure anyone will read but desperate and tomorrow have to decide. At 77 and what I have been through (I know its been much worse for many others)… I am terrified.

REPLY
@lacy2

Is there a quick way when checking topics to find out the date, or year, topic was posted… for instance, not sure if this, now , is correct place.

So I opted for a colonoscopy after declining one in 2018 after c,diff …. doctor last week referred me to surgeon and to cut long story short, because of narrow angle glaucoma (I had iridotomy 2020 but its still risky) I am concerned about the anaesthetic . After brief phone discussion with surgeon who I have not met … he suggested CT COLONOGRAPHY? It sounded too good to be true and from what I have now read, it is very painful and awake through whole procedure.. even have nurses etc. with you to encourage you to get through it.

So my delima: Have the colonoscopy with some type of anaesthetic and risk problems with eye pressure (also bowel perforation can happen) or have the virtual colonography CT scan.. (and bowel perforation can still happen with this).

I feel between a rock and a hard place as have other illnesses and feel so poorly most of the time it will even be a challenge to get through the prep.

Its my choice whether or not to have either test, and I am leaning towards not having either – I dont think I can even get through the prep. Had radiation damage to pelivis 1985, ibs-d or ? since, , a little bit of diverticulitis or ?, then 2018 too many antibiotics and c.dff and since that ended fecal incontinence every day since except when take Imodium.. b.m.'s are paste no matter what I eat.

I have been through colonoscopy before 2008 but since then have been diagnosed with narrow angle gluacoma, neuropathy, internal shaking, and tinitus, ear pain, ear fullness – no cure and a dash of anxiety and depression and feel ill every single day. Also there are true articles on Internet of people having "got" glaucoma after anasthetic or glaucoma worsened; its scary!!! … on the other hand the procedure for virutual CT scan colonography sounds like toruture and reviews by people who have had it are on Internet…. some people screaming in pain and suffering hours after etc. etc.

Is there a third choice? MRI Ultrasound X-ray of belly? Jump off a roof?

As a gneral question, WHY is it that we as patients seem to be doing all the groundwork and research for possible reactions to surgeries and medications? What happebned to the days when the doctors and surgeons got your history and current meds and health, and "they" came up with a solution?

Hurriedly written as not sure anyone will read but desperate and tomorrow have to decide. At 77 and what I have been through (I know its been much worse for many others)… I am terrified.

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I’m sorry for your distress, but I would call my eye doctor ASAP

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@lorijbq

I’m sorry for your distress, but I would call my eye doctor ASAP

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@lorijbq Thanks but Optometrist I see where I live I doubt will know and Ophthalmologist saw 2018 am not really a patient any more although did phone him once this year about going on antidepressant and it raising eye pressure and he basically told the truth that its a risk.. like everything else. So I decided not to risk anything… and cancelled CT Colonography and regular Colonoscopy and will accept the consequences of my choice… if I were younger and healthier I would forge ahead with either, but no longer can "forge ahead" with a lot of things unfortunately. ps New local Ophthalmologist can wait a year to see….. when have multiple illnesses best to live near teaching hospital or clinic, which I dont.

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