Connect
MayoClinic.org
Postherpetic Neuralgia (Shingles) nerve damage
Postherpetic Neuralgia (Shingles) nerve damage around eye, eyebrow, forehead & scalp (8 years) has anyone had any sucessful treatment other than drugs
Like
Helpful
HugInterested in more discussions like this? Go to the Brain & Nervous System group.
I have had shingles. Ironically stress actually makes shingles erupt. The good news, if you see someone who can help you self-calm, you can influence (to a degree) your shingles episodes. I would check with a hospital professional about stress management. I just had a friend with eye shingles. I would stick closely to what the good doctors advise you to do. For Ron. Your well-being is my commitment
-
Like -
Helpful -
Hug
3 ReactionsTomorrow I am going to try CBD hemp oil herbal drops. Biggest concern is that they are not regulated by FDA, but I am trying to be careful about purchasing from a reputable dealer. From my studies, I do not believe the drops will cause any further harm – so… what the heck!?!? I seem to have PN, RLS, and PHN all in/on the same leg – so a good night's sleep is a dream I have…
-
Like -
Helpful -
Hug
1 ReactionThank you for your comments. I have used gabapentin, as well as every other kind of med available and as I said they dulled the pain as long as i took them but they also made me goofy. As you might imagine, I cannot use any type creme in my eye and that is where most of my pain is located,right where your tear duct is situated. Did the neurosurgeon say why not to try radio frequency ablation. Do you know what it is suppose to do or what would happen if you did try it. If you have any info about that please let m e know.
Where do you put these drops and what do the suppose to do. Most of my problem is in and around my eye.
-
Like -
Helpful -
Hug
2 ReactionsI had nerve block injections in the nerves that had the PHN. No drugs ever worked for me and I suffer from Chronic Shingles Outbreaks. I had 9 outbreaks in 3 years before Mayo’s Infectous Disease department put me on a daily regimen of 1600 mgs of Acyclovir when I was 30 years old. I had 3 Spinal Band breakouts before they repeatedly started attacking my 5th nerve and occipital nerve. I am too young for the vaccination although Mayo did help develop the vaccination & applied for an exception to my age; we weren’t successful. But I know how overwhelming PHN is, especially in the location you & I have experienced.
-
Like -
Helpful -
Hug
2 ReactionsThanks for the reply. I will keep everyone informed .
-
Like -
Helpful -
Hug
3 Reactions"I had a severe headache and no blisters until the fourth day." That is what happened to me, But my eye was just about closed. I went to the ER and was told I had shingles, The ER only gave me a Motrin & 1 antibiotic pill & told me to go to a eye DR. I made a appt that day to my Primary care DR, & he prescribed Doxycycline & Acyclovir.
The next day I went to a eye Dr and he checked my eyes and said it okay, But sometimes I have blurred vision & light sensitivity . I wear sunglasses 24/7
-
Like -
Helpful -
Hug
1 Reaction" topical compounded cream" Can you tell me more about it?
I was told Stress is what brought this on. I have to learn to live a stress free life.
-
Like -
Helpful -
Hug
2 ReactionsI am looking for recommendations for my wife's postherpetic neuralgia on her back. We recently relocated to the mid-south to be near our grandchildren. My wife has suffered terribly for nearly four years. Her medications (gabapentin, Lyrica, and various creams/ointments, opiates) have had nasty side effects and/or provided no relief. Would someone recommend a treatment or a good physician in the mid-south? Thank you.
Hi, @stephenluptak — welcome to Mayo Clinic Connect. I had postherpetic neuralgia myself following shingles, and it was indeed awful. I am so sorry to hear your wife has suffered terribly for nearly four years from this.
I merged your post with this discussion on postherpetic neuralgia that was started in 2012 and is still ongoing, so you can meet members like @menville @oranbaughn @barbarn @1977lizzy and @sjsmall5286 who've been talking about this topic this week, as well as other members. Though they have experienced postherpetic neuralgia manifesting in a number of ways and places on their bodies, I trust they will have some input to offer on treatment options for your wife's suffering on her back, despite her treatment with gabapentin, pregabalin (Lyrica), various creams/ointments and opiates. Hoping someone will also have a suggestion of a physician for her in the mid-South.
Also, here is some Mayo Clinic information on this condition that you might find useful: https://mayocl.in/2M3WJ2V.
@stephenluptak, would you and your wife have any suggestions of things you've found provide a little relief (e.g., activity/less activity, rest, foods)?
-
Like -
Helpful -
Hug
2 Reactionstake the drops orally – under tongue – or, with ice cream? Not sure these drops will help any eye problem – I was hoping they would help with restless leg and pain, but last night was the 2nd time I tried it, to no avail. I do take gabapentin also, and Requip for the restless leg. But have such a problem with balance – created by the drugs???
-
Like -
Helpful -
Hug
2 Reactions