Mayo Clinic Connect
Are there any members caring for a love on with PCA?
Hi @leobar, welcome to Connect. My apologies for the tardy welcome. Your message slipped by me for some reason. I’d like to introduce you to Joanna @joly777 who has posted about posterior cortical atrophy. Also please meet Noreen @howardjames, whose husband has cerebral atrophy. You can read more conversations here: https://connect.mayoclinic.org/discussion/cerebellum-atrophy/
Leobar, are you caring for someone with posterior cortical atrophy? We look forward to getting to know you.
Liked by John, Volunteer Mentor
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Thank you for the response. I will try to contact both Noreen and Joanna.
By my having @mentioned both Noreen and Joanna on my message above, they will have received an email. I hope that they will join you in this discussion. You can also post a message to this discussion and join in:
– Cerebellum Brain Atrophy https://connect.mayoclinic.org/discussion/cerebellum-atrophy/
Yes my husband has p.c.a. and he also has primary progressive aphasia. He was diagnosed in 2014. I have taken early social security to stay home and care for him. Just taking one day at a time, not sure how else to cope with these diseases.
Liked by Colleen Young, Connect Director, Teresa, Volunteer Mentor
Welcome Remi. I’m bringing @hopeful33250 into this discussion too.
I know aphasia develops differently for everyone. What does aphasia look like for your husband? How are you doing?
Liked by Teresa, Volunteer Mentor
@remi54 Hello Remi:
I’m so glad that you joined Mayo Connect and that you are seeking support for yourself and your husband. He is fortunate to have you in his corner!
Yes, I would be interested in knowing something about your husband’s aphasia. I had a speech problem related to a paralyzed vocal cord (surgically repaired 4 years ago) and I remember how difficult it was not to be able to communicate effectively. I’m looking forward to hearing from you.
If you are comfortable sharing more please provide some more details regarding your husband’s aphasia. For example, Does he have word-finding problems? Is his speech garbled or pressured (words come out fast)? Can you and others understand him, now? Has anyone suggested speech therapy?
Liked by Colleen Young, Connect Director, John, Volunteer Mentor, Kanaaz Pereira, Connect Moderator
Yes, my husband is diagnosed with PCA. Diagnosed is 2008
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