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miro
@miro

Posts: 10
Joined: Oct 07, 2016

posted this in 'just want to talk' 2 years ago and had no response

Posted by @miro, Aug 11, 2017

Just Want to TalkHave a very pinpointed dull chest discomfort usually when I lay down. […]

mizzou

Joined: Dec 19, 2014
Have a very pinpointed dull chest discomfort usually when I lay down. […]
Posted by @kewpie8484, Dec 19, 2014
Have a very pinpointed dull chest discomfort usually when I lay down. Not every time. Always about 2 inches above left breast and 3 inches left of sternum. Had extensive heart tests, all ok. Cannot figure out the cause I’m male, age 76.. Welcome input.

Reply

Posted by @miro, Oct 7, 2016
Wish I could give you a diagnosis, but I too have a very pinpointed right side chest pain that’s difficult to describe. I spend most of my day and night standing, as sitting and lying down provokes the very unpleasant sensation. I have tried pain, epilepsy, diabetic neuropathy, muscle relaxant, synthetic thc, medical marijuana, and anti-depressant meds, to list a few. I have gone to countless doctors, had nerve blocks, ketamine infusions, lidocaine cream, acupuncture, chiropractic treatment, seen osteopaths, physical therapists, had mris, lumbar punctures, and more. After over ten years the only medication that has helped is lorazepam. Unfortunately it is habit forming and one’s tolerance to the drug increases. Now I am slowly getting off it, but often I am unable to lie down all night because lying down makes it worse.

I think we are probably not the only two cases of this type of pain. Has anyone else experienced anything like this?

REPLY

Make that almost one year ago! Time flies when you’re having fun, or not, I guess!

@miro

Make that almost one year ago! Time flies when you’re having fun, or not, I guess!

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@miro I would be very frustrated to not have a diagnosis or any great relief for all this time. The only thought that came to my mind was GERD. I have GERD but don’t have pain or discomfort in the stomach or chest. I get it in my shoulder. Have you tried any acid reducers or had any gastric testing done?

Jen

@miro

Make that almost one year ago! Time flies when you’re having fun, or not, I guess!

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Hello @miro,

Welcome back to Connect. I am sorry you did not receive a response the first time around. Have you given any thought to what @sandytoes14 mentioned? Does your pain increase or decrease depending on the level of activity you are doing? Is it worse with activity? Or is it specific to lying down? Do any foods trigger the pain?

@miro

Make that almost one year ago! Time flies when you’re having fun, or not, I guess!

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Discomfort has disappeared. Have no explanation. Thanks, for your follow up.

Thank you all for your replies and very interesting ideas/questions. I was waiting until I’d had some decent sleep to respond, but that could take too long. The GERD idea is novel and last year I did have some tests but there doesn’t seem to be a correlation between the two. I take Pantaprozole occasionally, or ranitidine (sp?) when I have severe indigestion, but that does not seem to help with my chest pain. Pain is almost the wrong word as it’s more a very unpleasant sensation and for some years was absolutely intolerable. Now it’s less severe but much more constant. Every evening and night it occurs, and during the day if I’m not moving around. I’ve not noticed foods that trigger it, but Justin’s question about activity level was very relevant. When I am most physically active, as in heavy cardio exertion, my pain goes away. My former pain clinic, (which ‘fired’ me after years of trying every med & intervention they could think of), was on the 19th floor of the hospital and I was the only patient who loved climbing the stairs to my appointments. Worked everytime in eliminating the pain. Alcohol also gets rid of the pain, for a short time. My gp has just cut me off lorazepam, which for many years was the only drug that worked. I took a year to get off it, only to have her suggest I take it again if it was the only thing that worked. It takes more of it to work than it did for years and now she’s taken me off it again, so I’m left with my stockpile of old bottles and alcohol. I’ve reduced the gabapentin as I started experiencing head to toe itching and after covering myself with coconut oil, shea butter, etc. with no improvement, I read it can cause itching…or stop it. I could go on but it’s a lot of detail. If I could climb stairs all day and function with drinking scotch 24/7, I’d be pain-free! Btw, I used to be told I have a high pain threshold as I tolerated a kidney stone passing while I was pregnant, gall bladder attacks during the same pregnancy and pain-free 36 and 32 hour labours. Went to the Mayo Clinic some years ago and they were as stumped as my Canadian doctors. I think if I could lie down and sleep at night I could live with the pain during my waking hours, but no sleep is truly torture. Well, that’s more than enough info for anyone to read. That’s great news about ‘mizzou’s’ pain disappearing!

@miro That is some incredible pain tolerance you have! I can hear the frustration in your post with the many doctors not finding a reason or relief of the chest pain. Sleep is necessary to restore our bodies and minds. Do you have trouble falling asleep or staying asleep? Since you don’t want to go back on lorazepam what are the next steps your doctor suggests?
Jen

@miro

Thank you all for your replies and very interesting ideas/questions. I was waiting until I’d had some decent sleep to respond, but that could take too long. The GERD idea is novel and last year I did have some tests but there doesn’t seem to be a correlation between the two. I take Pantaprozole occasionally, or ranitidine (sp?) when I have severe indigestion, but that does not seem to help with my chest pain. Pain is almost the wrong word as it’s more a very unpleasant sensation and for some years was absolutely intolerable. Now it’s less severe but much more constant. Every evening and night it occurs, and during the day if I’m not moving around. I’ve not noticed foods that trigger it, but Justin’s question about activity level was very relevant. When I am most physically active, as in heavy cardio exertion, my pain goes away. My former pain clinic, (which ‘fired’ me after years of trying every med & intervention they could think of), was on the 19th floor of the hospital and I was the only patient who loved climbing the stairs to my appointments. Worked everytime in eliminating the pain. Alcohol also gets rid of the pain, for a short time. My gp has just cut me off lorazepam, which for many years was the only drug that worked. I took a year to get off it, only to have her suggest I take it again if it was the only thing that worked. It takes more of it to work than it did for years and now she’s taken me off it again, so I’m left with my stockpile of old bottles and alcohol. I’ve reduced the gabapentin as I started experiencing head to toe itching and after covering myself with coconut oil, shea butter, etc. with no improvement, I read it can cause itching…or stop it. I could go on but it’s a lot of detail. If I could climb stairs all day and function with drinking scotch 24/7, I’d be pain-free! Btw, I used to be told I have a high pain threshold as I tolerated a kidney stone passing while I was pregnant, gall bladder attacks during the same pregnancy and pain-free 36 and 32 hour labours. Went to the Mayo Clinic some years ago and they were as stumped as my Canadian doctors. I think if I could lie down and sleep at night I could live with the pain during my waking hours, but no sleep is truly torture. Well, that’s more than enough info for anyone to read. That’s great news about ‘mizzou’s’ pain disappearing!

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@miro. I was on Gabapentin 300mg x 3/day for 6 months or so. I decided to stop taking it, and Baclofen a couple of months ago. It took me several weeks to titrate off the Gabapentin. Once I did, I found my pain was actually much relieved. I think the Gabapentin was adding to my pain and also my goofiness and memory loss. I am so happy to be free from it. I haven’t noticed any change since stopping the Baclofen, just that I didn’t need it anymore. I take Tramadol 50mg x 4/day only now. I have been taking it for nearly a year now with no increases and with it still being effective. Occasionally I have breakthrough pain and I add Tylenol at those rare times.

I recommend stopping the Gabapentin to see if you feel better. You have to do that slowly if you and your doctor decide to try that. I also found that my chest discomfort comes from gas of all things. I use Alka Seltzer Heartburn and Gas Relief Chews, which are pink in color, when i have the discomfort and they work! I had tried Omeprezole and carafate and neither of those relieved my discomfort and sometimes pain. Only the Alka Seltzer chews seem to work. I also take Mylanta at times. Just my suggestions. Good luck finding relief.
Gail B Ledesma

@miro

Thank you all for your replies and very interesting ideas/questions. I was waiting until I’d had some decent sleep to respond, but that could take too long. The GERD idea is novel and last year I did have some tests but there doesn’t seem to be a correlation between the two. I take Pantaprozole occasionally, or ranitidine (sp?) when I have severe indigestion, but that does not seem to help with my chest pain. Pain is almost the wrong word as it’s more a very unpleasant sensation and for some years was absolutely intolerable. Now it’s less severe but much more constant. Every evening and night it occurs, and during the day if I’m not moving around. I’ve not noticed foods that trigger it, but Justin’s question about activity level was very relevant. When I am most physically active, as in heavy cardio exertion, my pain goes away. My former pain clinic, (which ‘fired’ me after years of trying every med & intervention they could think of), was on the 19th floor of the hospital and I was the only patient who loved climbing the stairs to my appointments. Worked everytime in eliminating the pain. Alcohol also gets rid of the pain, for a short time. My gp has just cut me off lorazepam, which for many years was the only drug that worked. I took a year to get off it, only to have her suggest I take it again if it was the only thing that worked. It takes more of it to work than it did for years and now she’s taken me off it again, so I’m left with my stockpile of old bottles and alcohol. I’ve reduced the gabapentin as I started experiencing head to toe itching and after covering myself with coconut oil, shea butter, etc. with no improvement, I read it can cause itching…or stop it. I could go on but it’s a lot of detail. If I could climb stairs all day and function with drinking scotch 24/7, I’d be pain-free! Btw, I used to be told I have a high pain threshold as I tolerated a kidney stone passing while I was pregnant, gall bladder attacks during the same pregnancy and pain-free 36 and 32 hour labours. Went to the Mayo Clinic some years ago and they were as stumped as my Canadian doctors. I think if I could lie down and sleep at night I could live with the pain during my waking hours, but no sleep is truly torture. Well, that’s more than enough info for anyone to read. That’s great news about ‘mizzou’s’ pain disappearing!

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Thanks, Gail, for your response. I take a while to reply, which I can't entirely blame on my pain. I have been on Gabapentin & Lyrica, separately, for years, wondering if they did any good. When I went off them some time ago, I felt the pain increase, so resumed. I still have doubts about their effectiveness, however, & may try going of Gabapentin (or Lyrica) again. I have stopped so many meds that didn't seem to help, including Baclofen, Flexiral, Tramadon, Nabilone, etc., etc. Some seemed to help for a few weeks then stop. I may be repeating myself. Can I blame the Gabapentin?? In answer to your question about whether the pain stops me falling asleep or wakes me, it does both. Some nights I try about every hour to lie down, but get up from the pain. Sometimes I fall asleep, but then wake from the pain & must get up & take Ativan, or scotch, or both these days. This is my latest way since my doctor will no longer prescribe Ativan. I admire all of you who somehow tolerate the pain. After about 12 years of it, I am not optimistic about mine ever going away. Maybe I should climb Everest & just keep going!

Hi, I’m new to the group, but I have a similar pain that has been diagnosed as Costochondritis. It mimics heart attach pains. You can look this diagnoses and symptoms up on the Mayo website. Hope this might help.

@xelanoel

Hi, I’m new to the group, but I have a similar pain that has been diagnosed as Costochondritis. It mimics heart attach pains. You can look this diagnoses and symptoms up on the Mayo website. Hope this might help.

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Hi xelanoel,

Thank you for your response. Unfortunately this does not describe my pain, but I appreciate your suggestion. All ideas are welcome at this point. I wish you luck with your condition.

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