Post concussion syndrome after hitting my head on a steel beam hard

I so appreciate Mayo Clinic for providing this means of patient communication. We learn so much from each other and hopefully the physicians also learn from us as we learn from them.

The whole TBI/concussion experience is not really well understood, enough, in my opinion. So much more research needs to be done on the BRAIN!!
I had a subconcusive TBI at age five that wasn’t diagnosed until I had a mold exposure from an hvac in office. Obviously I was able to operate from age 5 to 35 but had some challenges that I never understood because my symptoms weren’t seen or understood. As you said, fast forward to 66, I deal with a lot of pain and nerve issues that increased after a “failed “ back surgery .
No one was giving me good explanations about why the fusion failed and why I was in so much pain. I started doing my own research. I learned about hypermobility and hEDS. It may not sound like much p, but being on the hypermobile spectrum or having a condition that effects the callogen strength in your body, is an aspect of pain for many people. It can really affect people who have had a TBI or concussion. What I more specifically mean is, being on the hypermobile spectrum means your neck moves differently in a whiplash or other aggressive neck movement. The lax callogen doesn’t hold your neck as well as others with typical callogen outcome. That means the body is able to do movement beyond the typical, so like gymnastics, or killer back hand in tennis where the elbow and forearm rolls more than others etc..
We love that aspect of hypermobility in athletics but there’s the other side of the coin for many. Some Drs are beginning to realize and acknowledge what this means in so many body variables. You can find more info online about hypermobile medical issues.

With that being said, I’ve tried many things to help with pain. At 66, the most impact I’ve experienced is from going to a PT who has learned
Facial Counter Strain methods to help. It’s not at all like typical PT which definitely has its place. I believe that what the originators are learning about the brain is very progressive. My pain has significantly decreased, I can now sit which sound lethargic, but those of you who can’t get what I’m saying.
There’s more positive benefits that effect my gut, brain fog, etc..
Here’s a link-
https://counterstrain.com/
There’s also a podcast. If you type in COUNTERSTRAIN, it’ll come up.
They also have a program for VETS who have experienced TBIs.
Called Bridge Back.
So impressive.

I hope this information can be helpful. I so appreciate you sharing your experience and knowledge.
It’s a team effort!

You should certainly find a doctor and go to him or her asap. You need a neurologist, but one who has experience in traumatic brain injury or concussion. If you can’t find a doctor try to go to the ER at a university teaching hospital. You need proper attention and have needed it for some time. You need a MRI to help assess damage to your brain. I had a concussion two years ago and am dealing with the aftermath, but my situation is not nearly as serious as yours. You need to go now or on Monday. I am very sorry you are dealing with this and I want to hear back from you. Sending hugs. Dolly