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Possible Sessile Serrated Polyposis Syndrome?
Healthy 57 year old male who just had my 3rd colonoscopy. I started at 50 as suggested and my 1st colonoscopy resulted in multiple polyps, quite few were pre-cancerous. Because of this I was put into a 3 year rotation with colonoscopies. My second colonoscopy resulted in more polyps being discovered and removed, again with quite a few being pre-cancerous. This past week I had my 3rd colonoscopy which resulted in quite a few polyps being discovered and removed, again quite a few pre-cancerous. I was asked to come in to do more tests as they believe I may have Sessile Serrated Polyposis Syndrome. We are waiting on pathology results from the polyps and then I will be tested. Has anyone gone through anything like this? This is all a first for me and have not had any health issues in the past.
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I went through the exact same thing but with a different diagnosis. My first colonoscopy was at 47 - my mom had been diagnosed with colon cancer - and there were lots of polyps. I went back a year later and there were twice as many polyps; six months later, even more polyps and I was diagnosed with AFAP, attenuated familial adenomatous polyposis, a genetic disease which carries a 100% chance of developing colon cancer. My only real option was a subtotal colectomy which I had in 2007. I have an annual sigmoidoscopy and there’s always a polyp or two in the remaining 9cms of rectum. I developed SIBO in 2017 so I have to be careful with my diet. I’m 73 now, still working, and since my diagnosis and surgery, I’ve done everything I’ve wanted to do, including a three week safari in Africa. Constant and consistent monitoring is the key for me - I go to Mayo in Jacksonville every spring for my sigmoidoscopy and every third year get additional tests (AFAP increases risks for other cancers too).
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1 ReactionI was diagnosed with this and put on an annual colonoscopy for 3 years. Otherwise no problem. The good thing about colonoscopies is they can remove polyps before they become cancer, so keep up with them. I did genetic testing because I have kids. I canceled my colonoscopy this year because I have pancreatic cancer. I suspect they won't schedule another. I don't think the two disagnoses have anything to do with each other though; I'm just a mess.
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4 Reactions@bapetersen, I appreciate the information. At the moment I am waiting further instructions from my Dr and don’t have an official diagnosis. This is what they are assuming at this time. Further testing will tell. My goal through all of this is to keep the same positive attitude as you. Thank you
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1 Reaction@kyshoor
Please allow me send you my own and all the positive energy the universe in all its wisdom can send to empower you. I also send my sympathy for all you are going thru and my admiration for your very positive attitude. Know that many people who read your post will add theirs too and that you are seen and supported even if the distance is long. I pray for a positive outcome. It has been beaten before and it can be beaten by you! God speed!
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2 Reactions@lindaannstarr, thank you so much for the kind words. I will update after testing and finding my next steps.
@matthew68
Have all your polyps been Sessile Serrated?
I have a long history of adenomatous polyps and have been on a 3 years schedule for years.
For the first time, my last colonoscopy found a Sessile Serrated one.
@missy245, unfortunately I don’t know the answer to this yet. It is on my list of questions to ask when I go in for genetic testing. I will update when I know.
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