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mps5211
@mps5211

Posts: 1
Joined: Aug 11, 2011

Porphyria treatment plans?

Posted by @mps5211, Aug 11, 2011

Porphyria treatment plans?

Liked by MissSharon

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tvarga
@tvarga

Posts: 1
Joined: Aug 25, 2017
Posted by @tvarga, Fri, Aug 25 6:42am

I am looking for the treatment of this disorder, thanks

Posted by @kanaazpereira, Fri, Aug 25 11:38pm

Welcome to Connect, @tvarga.

I’d also like to invite @ruettj to join this discussion as she recently mentioned her diagnosis of porphyria on Connect. Here’s some information from Mayo Clinic:

http://www.mayoclinic.org/diseases-conditions/porphyria/home/ovc-20340614

@tvarga, could you share a few more details about yourself? May I ask, when you were diagnosed, and what type of porphyria do you have? Are there certain symptom triggers?

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