Polycythemia & Thalassemia: Concerned about iron treatments

Posted by kat101 @kat101, Nov 15, 2022

Hello. I'm new to your group and new to this diagnosis. I also have Thalassemia, which for the most part has been insignificant as far as difficult symptoms to deal with. Iron, however is not something that is beneficial for I was told many years ago when diagnosed with. Can anyone please tell me how or what I should expect with having Polycythemia & perhaps needing iron because of treatments for it? I appreciate any input or experiences you may have had.
Thank you,
Kat

Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.

Hi @kat101, it is a challenge managing multiple chronic conditisions. I'm tagging fellow members like @lwengel @slk2421 @rekstrom @kientzy @pamdg @buckaroobanzai @pamdg, who have experience with polycythemia and may have some thoughts to share with you.

You may also be interested in these related discussions:
– Polycythemia: Are you asymptomatic? https://connect.mayoclinic.org/discussion/polycythemia/
– Weak After Phlebotomy to Treat Polycythemia: How to Improve Recovery? https://connect.mayoclinic.org/discussion/weak-after-phlebotomy/
– Will an iron infusion help with thalasemia? https://connect.mayoclinic.org/discussion/thalasemia/

Has iron infusion been suggested as a treatment for you?

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@colleenyoung

Hi @kat101, it is a challenge managing multiple chronic conditisions. I'm tagging fellow members like @lwengel @slk2421 @rekstrom @kientzy @pamdg @buckaroobanzai @pamdg, who have experience with polycythemia and may have some thoughts to share with you.

You may also be interested in these related discussions:
– Polycythemia: Are you asymptomatic? https://connect.mayoclinic.org/discussion/polycythemia/
– Weak After Phlebotomy to Treat Polycythemia: How to Improve Recovery? https://connect.mayoclinic.org/discussion/weak-after-phlebotomy/
– Will an iron infusion help with thalasemia? https://connect.mayoclinic.org/discussion/thalasemia/

Has iron infusion been suggested as a treatment for you?

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Good morning @colleenyoung. Thank you for your response and time. I'll take a look at this information and these discussions today. I certainly appreciate your input and experience. You've been very helpful, it's reassuring to know there's a place to go to find shared personal experiences.
Have a good day.
@kat101

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