Hi @beryl, I notice that you mention having a difficult time going up steps…is this from the Prednisone or the PMR? I’m finding it quite hard to get up stairs as well and not sure if it’s because I’m resting too much and should be pushing myself more!! Are you still taking Prednisone? Enjoy yourself in Sicily!!

Sorry put an s instead of a c Beryl

Beryl, I too find stairs (steps) difficult.I am wondering if the problem is that for so many months I have been very sedentary. Also I think it is the disease because when not taking the prednisone, lifting my legs, even getting in and out of the car and bathtub, is more painful and difficult

Hi Noosat1 stairs put more pressure on your legs and of course hills Cold makes your muscles tight therefore pulls on the tendons. Don’t now how to put it any other way. Beryl

Glad you are enjoying Sicily. I, with my daughter, plan to go on a trip somewhere, considering options, this year. I am determined to be in condition good enough to go. One of my great pleasures of the day is to have a shower as hot as I can stand it, with it aiming for my lower back and thighs most of the time. While under it, I bend and stretch. I believe it really helps to give more flexibility. To morrow plan on taking Lily for nail cutting then a trip to the park to let her run wild, then go to gym. and pick up application and look at classes.
So glad you have a patient and loving hysband. A support "group" really helps. 🙂
Maggie

Hi Noosat1 I think most people with PMR effecting their legs would say it is the PMR……but I have come across that question before ……so I think we are all different …….but for me it is PMR…..it is good for you to move around but also have to be careful not to over do things and make it flair up ……which I have a bit on my weekend in a Sicilian hilltop town called Rasusa…..but I don't regret it for one minute …..amazing buildings so old …..being English and my husband with an English Mum we miss all that in the USA…….I have just picked a lemon from the garden …..that's the sort of thing I love to do……Beryl

I can relate. I loved it when I stood beneath an arbor in Chile and picked a Malbec grape just over my head. I is my favourite red wine. 🙂

Yes half a mg can make a lot of difference ……my instructions are to take one more if necessary and always been told not to make big jumps either way …..but as I have stressed before we are all different and that's why we have a Rheumatologist to study the way we as individuals work ……but I stress you take advise from the people that know better about this disease….You of course always ask WHY……Beryl

Nice memories…….Beryl

I am presently taking daily, in split dosage, 7.5mg. I am carefully monitoring myself, but have to say to myself, "every pain in your body is not necessarily caused by PMR." I do have osteoarthritis in my lower back/hips and somewhat in my hands. I had a restless night last night, my tendency was to think caused by PMR. However, it could have been that I had a very lazy afternoon reading for hours, and was already rested. So will continue on the usual dosage, not "up" it.

HiNoosat1 this,is Beryl……I have the same things as you …..I know we are all different and this may not work for but if I hurt in the way you describe and I take an over the counter drug it will not take the pain of the PMR away …..this may or may not help you but I thought I would say it in case you found it helpful……Beryl

Good advice Roland. I find since I have reduced to 7.5mg, split dosage, that I fell discomfit in my legs in early hours of morning. However, to me it is not pain whereas to someone else it may be. I just "zone out" until I go back to sleep for a few hours. I do not want the ill effects of the prednisone. I am, somewhat impatiently, looking forward to reducing the dosage.