PMR with hand/wrist pain and swollen veins?

Posted by ldingwall88 @ldingwall88, Aug 23 1:22pm

Hi, I've been struggling with PMR since May '22. Most of my symptoms are typical though apparently unusually stubborn; I'm currently on 40mg/day prednisone and hoping to begin a taper soon. (I started out at 20mg but nothing touched the flare til they bumped me up to 40) One uncommon symptom is severe pain in my wrist/hand, and when it's particularly bad the veins in my hand, wrist, and lower arm get very large. Has anyone else experienced this? It's kind of freaking me out.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) group.

Struggled with stiff right hand for months until I got on Prednisone in Jan. 2022. Like carpal tunnel symptoms. It started in the thumb and worked it's way around to all the fingers. Numb, could not grip anything. Had to wear a brace for a long time. My right hand, middle finger is still stiff and I use a soft rubber ball to exercise it nightly. PMR definitely affects the hands. My left hand was going bad too, but the Prednisone helped that, so it's fine at present. Veins are prominent, but I do drink a lot of liquids throughout the day. As for weight gain, only ten pounds since January 2022, but most of that weight gain has been since June. Haven't done anything differently diet wise since then. Who knows. All the best to you my friend.

REPLY

I’ve basically tapered to 1/2 mg after 3 years but I am having awful pain in my hands. I was told it generally does not effect hands but it clearly does.

REPLY
@connelly

Wrists, thumbs and hamstrings: PMR diagnosed November 2121, just after my 82nd birthday. Prednisolone 15mg daily now tapered to 7mg. Over the past 2 months of tapering Pred, PMR pain extended from shoulders to wrists and thumbs. Over the past month pain has extended to knees/hamstrings. Quite symmetrical. The primary symptom is pain, worst in the mornings, reducing after Pred. Physically, I can do most things I used to do in 2121, though at a lesser level of performance. For example, I can run a couple of kilometres at 6 minute per km pace or dig a garden for an hour. But the pain level is increasing and the extension to shoulders and arms and knees is worrying. I have an appointment tomorrow with PMR specialists at Flinders Medical Centre (Sth Aust) where I will ask for advice on whether it’s necessary to continue tapering. At present, I’m inclined to the view that Pred is less of a threat to continuing functionality than PMR. I am physically fit, exercise daily, and existing Pred dose has not caused any of the usual complications. No weight gain, &c

Jump to this post

Continuing from preceding comment…..
Advice from my rheumatologist:
1. Inflammatory markers normal over recent months.
2. Continue monthly 1mg tapering from current 7mg to 2 or 3mg daily. Return for assessment in 4-6 months.
3. Wrist and knee pain suggests incipient rheumatoid arthritis. These symptoms are not a usual consequence of PMR but PMR is often a precursor to RA. My current absence of joint swelling, soreness to touch or loss of joint mobility may only mean that these symptoms of RA are masked or avoided by my current high 7mg daily Prednisolone dosage.
4. These RA symptoms/afflictions may develop as I continue to reduce Prednisolone dosage.

This was bleak advice. Rheumatologist justified it on two grounds:
1. As a healthy 82 yr old with a 5-10 year life expectancy continuance on Prednisolone at anything above 2 or 3 mg daily dosage will result in a range of serious effects, disabilities, miseries. Complete elimination is best;
2. If Rheumatoid Arthritis does develop, there are better therapies than Prednisolone.

As a matter of interest, I also have a relatively benign form of Dupuytren’s contracture. Together with PMR, this is a double whammy for my rogue Scandinavian genes. Other than the Scandinavian connection, PMR and DC seem to be unrelated conditions.

REPLY

Have ever thought of psoriatic arthritis???? You just explained one of my symptoms to a tee!!!

REPLY
@saratogagirl

Have ever thought of psoriatic arthritis???? You just explained one of my symptoms to a tee!!!

Jump to this post

Hi @saratogagirl, Welcome to Connect. It sounds like you have been diagnosed with psoriatic arthritis. I assume your question was for @connelly. Do you also have PMR?

REPLY
@connelly

Continuing from preceding comment…..
Advice from my rheumatologist:
1. Inflammatory markers normal over recent months.
2. Continue monthly 1mg tapering from current 7mg to 2 or 3mg daily. Return for assessment in 4-6 months.
3. Wrist and knee pain suggests incipient rheumatoid arthritis. These symptoms are not a usual consequence of PMR but PMR is often a precursor to RA. My current absence of joint swelling, soreness to touch or loss of joint mobility may only mean that these symptoms of RA are masked or avoided by my current high 7mg daily Prednisolone dosage.
4. These RA symptoms/afflictions may develop as I continue to reduce Prednisolone dosage.

This was bleak advice. Rheumatologist justified it on two grounds:
1. As a healthy 82 yr old with a 5-10 year life expectancy continuance on Prednisolone at anything above 2 or 3 mg daily dosage will result in a range of serious effects, disabilities, miseries. Complete elimination is best;
2. If Rheumatoid Arthritis does develop, there are better therapies than Prednisolone.

As a matter of interest, I also have a relatively benign form of Dupuytren’s contracture. Together with PMR, this is a double whammy for my rogue Scandinavian genes. Other than the Scandinavian connection, PMR and DC seem to be unrelated conditions.

Jump to this post

Thank you for sharing, though not what I want to accept as I see my rheumatologist next week due to swelling and pain in hands.

REPLY

Hello, Wrist and hand pain has been a recurring occurrence with me. I am currently tapering off prednisone so I can show my rheumatologist how crippled up I am and so I don't get dismissed by him again since my sed rate is normal or was last time checked. From what I have seen on here hand and wrist pain is quite frequently a problem area

REPLY
Please sign in or register to post a reply.