Anybody have any experience with either PFAPA or FMF? My 4 year old was diagnosed with PFAPA 3 weeks ago and her genetic testing came back showing 1 mutation in a gene most commonly found in FMF. I have 2 different diagnoses from 2 different specialists. So confused and want the best for my daughter. I try very hard to educated myself on bothe diseases but bottom line is I am just the mom not the doctor!