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Peripheral Neuropathy

Posted by @edgar in Just Want to Talk, Feb 23, 2012

I was diagnosed withidiopathic (no diagnosed cause) peripheral neuropathy about 10 years ago and have most recently seen the head of neurology at Shands Medical center at University of Florida in Gainesville, FL; Dr Edward Valenstein. He left Shands about a year and a half ago and I have seen no specialist since that time. I am taking two vitamin b supplements and have been for 10 years. I also take Gabapentin and Tramodol daily to control the shooting pain in my feet. I am now experiencing a situation where two of my toenails are discolored and appear to be getting ready to fall off. Does anyone have experience or information about the onset of various effects one can expect from prolonged peripheral neuropathy?

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Posted by @tundrachef, Mar 11, 2012

my experience is like yours, few answers. massage helps as do pain relievers. the anti epileptic meds will kill your memory. the condition does seem to stay in feet and legs with increased atrophy as i do not get the exercise i need. you are not alone.


Posted by @edgar, Mar 12, 2012

Thanks for your response. My doctors said the Gabapentin could effect my speech, but they said nothing about my memory. I do appreciate your comments and I will do additional research. Unlike you, I do get exercise by cycling about 100 miles per week with a club and I have nerve loss in mu hands as well as my feet and lower legs. Balance is not good at all due to foot problems. Have you heard anything about loosing toe nails as part of this condition?


Posted by @davidwilson, Jun 15, 2012

I was diangnosed at age 42. 19 years later I am no better off. Still no know cause (not diabetic). I take Ultram, Tegretol,& Lyroca which makes it tolerable - barely. Lately my hands are burning much more than my frrt. I would give every penny I have to be cured. It;s horrible!


Posted by @trphil17, Jul 16, 2012

Don't expect to get better, only worse. Keep exercising to avoid getting worse. Any experience with " water walking " as a therapy??


Posted by @trphil17, Jul 16, 2012

I too have athrophied, 2" in circumference to both calf and arm muscles. Any experience using " water walking" in a pool as a therapy?


Posted by @jodi, Apr 23, 2012

Hello I also have neuropathy. Nail loss can be due to decreased blood supply to the nail bed causing nails to die


Posted by @trphil17, Jul 16, 2012

Have had disease for 17 years with no toe nail problem. Exercise is important. Does anyone have experience using " water walking" in a swim pool as a treatment?

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