Peripheral nerve stimulators
This is a long shot, but I’m looking for people who have used implanted peripheral nerve stimulators (PNS) to control nerve pain. They block the pain signal to the brain. Stimrouter and Stimwave are major brands. These are NOT the same thing as spinal cord stimulators, of which there are many brands. I’m about to have a Stimwave implanted to block intractable pelvic and leg nerve pain.
Interested in more discussions like this? Go to the Neuropathy Support Group.
Sandy, I appreciate your telling about the bad experience you have had so far with mistakes in the implementation of the Nalu product. I and my wife, who has bad foot neuropathy, are awaiting the results of both @fredjan2016 and @lorirenee1 both of whom have recently had stimulators inserted, and I will add you to the people that we will want to follow closely the progress of. We hope for your sake as well as our own that you ultimately have a very successful outcome with this. I am so sorry to hear about your travails with this new device. Hopefully these devices will start to become generally successful and as they install more of them they will become a lot more proficient at it and there won't be issues such as you have been having too often. I must say that I admire your courage in going through all of this. You and all of the pain sufferers whose posts I read seem VERY brave! Best of luck and anything you can post in the way of progress will be most appreciated. Thanks, Hank B.
@sparshall Sandy, I read your post on March 1st about the issue you had with the Nalu stimulator. What was the final outcome? Did you have the Nalu stimulator removed?
Had my permanent Medtronic stimulator installed 3 weeks ago ! Not 100% but worth it! Any other people using this stimulation?
Hi @wilcy, Great news that the permanent stimulator is working for you. You'll notice that I moved your message to this other existing discussion called "Peripheral nerve stimulators."
I think others in this discussion will be interested to here your experience. Is it helping with the neuropathic pain, spinal pain or both?
Hi @wilcy, It sounds like the Medtronic stimulator is really helping with the pain. There are a couple of other discussions in the Chronic Pain group that you might want to join where members are talking about pain stimulators.
Pain stimulator: https://connect.mayoclinic.org/discussion/pain-stimulator/
Has anyone one tried the HF10 Spinal Cord Stimulation Device?: https://connect.mayoclinic.org/discussion/hf-10-spinal-cord-stimulation-device-relieves-back-and-leg-pain/
Hi John @johnbishop thanks for the link to the other discussion on nerve stimulators. Lori @lorirenee1 I wonder if you know about this as well? One person, Carl @cbrackle has had a drg in for 3 years. Just fyi in case you are not aware of his story. He posts about it at the discussion John mentioned. There are other people there as well. It's good to gather as much info from experienced users of these devices as possible. Hank
Hi @wilcy I read some of your previous posts. So spinal stenosis caused your neuropathy. Can you describe how you and your doctors decided on the Medtronic brand spinal cord stimulator device? Did you go with the SCS because most of your pain is back pain? Any and all info along these lines would be very interesting to me. It sounds like you are happy with it so far. Are you still experiencing an 80% reduction in your pain level? My wife has PN and we are watching other's experiences with a lot of interest. Anything you'd like to share would be helpful. Thanks so much, Hank
@wilcy Wow, incredible news! Im very happy for your progress.
@jesfactsmon Hank, thanks so much for info on @cbrackle. You are so kind. I am not up to posting now, but will hopefully post tomorrow. ABBOTT lady adjusted my DRG stimulator, and pain is worse. Very trial and error. Will post tomorrow, God willing…..Love to you and Linda, Lori
Lori, hang in there kid. Gotta have faith/hope for this thing. Let's keep positive and for now we wait and expect this to work out after further adjustments and some patience. I know you know ALL about patience. (By the way, what does it say about me that you post and I answer within minutes? Hey, I do have a life, really.)