Peripheral nerve stimulators

Posted by sparshall @sparshall, Jan 14, 2020

This is a long shot, but I’m looking for people who have used implanted peripheral nerve stimulators (PNS) to control nerve pain. They block the pain signal to the brain. Stimrouter and Stimwave are major brands. These are NOT the same thing as spinal cord stimulators, of which there are many brands. I’m about to have a Stimwave implanted to block intractable pelvic and leg nerve pain.

Interested in more discussions like this? Go to the Neuropathy group.

@sprinrosa64

Amanda I do plan on seeing it through even tho 6 days has shown no good results, after i see doctor by weeks end i will give up date 🙏it’s good update

Jump to this post

@spinrosa64 I'm behind on this conversation. Would you mind telling me what brand is your device, and where on your body have they placed the stimulators?

REPLY
@steeldove

@spinrosa64 I'm behind on this conversation. Would you mind telling me what brand is your device, and where on your body have they placed the stimulators?

Jump to this post

It’s Stemwave PNS They had wanted to put it in my quad but were unable to so I have 2 of them below my knee. Today is 6th day and I am miserable. I would say how happy I am with the stemwave company they have come to my house twice to reprogram. We are giving it 2 more days before making a decision

REPLY

i haven't seen any comments on this forum about the Sprint PNS, which is supposed to only require the implant for 60 days. Anyone have experience with that? Thanks.

REPLY
@dhc684

i haven't seen any comments on this forum about the Sprint PNS, which is supposed to only require the implant for 60 days. Anyone have experience with that? Thanks.

Jump to this post

I found no relief from Stemwave PNS. In fact I was glad trial was over

REPLY
@cronulla

Hi There,

I do have a peripheral nerve stimulator from Stimwave to deal with chronic pelvic and groin pain.
Interesting to know if you went ahead with Stimwave and what your experience has been like?

Jump to this post

Going to have a stimwave for pelvic pain Dec 9 at emory in atlanta. Would like to know if it helped your pain and what was the name of the company that installed it

REPLY
@sparshall

UPDATE: The Nalu device I had caused many problems, including shocks and pain around the IPG, and it never worked properly. I had it removed, and on June 10 I had a Stimwave implanted by a different doctor. The Stimwave works perfectly and is giving me 100% pain relief in the targeted area. Medicare refused to pay for the original Nalu implant surgery or the device itself, but did cover an attempted revision and the removal. (I don't owe anything. Medicare protects patients from unapproved charges.) I was astonished to discover that Nalu put a whopping price of $59,444 on their simple device! Stimwave costs a fraction of that — and actually works.

Jump to this post

Wow , that’s quite a scary story , especially since I am probably going to trial one in a couple of months . Can you say which clinic you had it installed ..or even the city or state? It’s hard to get good outcome data , especially with quality of life as the outcome , not the pain score etc. Are there any good Nalu PNS stories out there that I can be encouraged by ?

REPLY

I had a SCS stimulator spinal cord stimulator implant mine was the paddle type not just the 2 leads it covered my entire back , neck all the way down to both legs and feet . Mine came loose after 8 months I wouldn’t recommend an implant . Find you a good pain clinic that knows your situation ‘ what your diagnosis actually is a let them tailor your needs for the pain . I was lucky enough to find one in my hometown that knows what PN , SFN, and Spinal Arachnoiditis is and how it will cripple you even more with surgeries and messing around with your spinal cord . The stimulator I had you couldn’t get MRI’’s head only . I didn’t like that at all . X-rays don’t show all and you can’t get MRI’s with Stimulator next move is to insert needle in your back shoot die in your spinal cord big no!!!! no !!!! With Arachnoiditis
does more damage to your already delicate situation. Be an advocate for your own health
look up what there trying to do to you and see the side effects and your condition the do’s and don’t best advice I can give you know what your getting into before you do it with pandemic still going strong if you have a problem it might take awhile to get it resolved
especially surgery to reverse your situation
good luck

REPLY

I had a SCS (Boston Scientific) implanted about a year and a half ago. I only got slight relief from foot pain. I didn't like the pararthesia, so I had it removed 2 months later. It was the type that had to be recharged every day for about 30 to 40 minutes.
I am considering another type made by Abbott Industries. It's called DRG (dorsal root ganglion). It doesn't need to be recharged. They claim the battery, generator that is implanted lasts for about 5 to 7 years before it needs to be replaced. Plus they say there is no parathesia. My problem is in the toes of my foot. I had 2 surgeries on a couple of toes leaving painful surgical scar tissue and nerve damage. I spoke with three former patients who had foot or leg pain and they said they got significant relief from the DRG.
Please let us know if you choose the Stimwave and if it has helped.

REPLY
@martyk

I had a SCS (Boston Scientific) implanted about a year and a half ago. I only got slight relief from foot pain. I didn't like the pararthesia, so I had it removed 2 months later. It was the type that had to be recharged every day for about 30 to 40 minutes.
I am considering another type made by Abbott Industries. It's called DRG (dorsal root ganglion). It doesn't need to be recharged. They claim the battery, generator that is implanted lasts for about 5 to 7 years before it needs to be replaced. Plus they say there is no parathesia. My problem is in the toes of my foot. I had 2 surgeries on a couple of toes leaving painful surgical scar tissue and nerve damage. I spoke with three former patients who had foot or leg pain and they said they got significant relief from the DRG.
Please let us know if you choose the Stimwave and if it has helped.

Jump to this post

@martyk I have the DRG stimulator implanted in me, but it has been turned off for about a year. It never helped one bit, and towards the time of turning it off, I felt electricity running through me all the time, that hurt. Once I finally turned it off, I was burning from the waist down, and wound up with a severe sleep disorder that is now better. If you do get the DRG trial, make sure it lasts the full 10 days, and that easily 8 out of 10 days help your pain quite a bit. I had a 10 day trial, but I would say that only the last 3 had some improvement, but not enough. I was desperate to help my throbbing, contorted toes, and stabbing, throbbing. balls of feet. However, I don't think my trial was ever successful enough to implant the DRG. Just be careful, and I am glad you have heard of other success stories from real people, about the DRG. LoriRenee1

REPLY
@lorirenee1

@martyk I have the DRG stimulator implanted in me, but it has been turned off for about a year. It never helped one bit, and towards the time of turning it off, I felt electricity running through me all the time, that hurt. Once I finally turned it off, I was burning from the waist down, and wound up with a severe sleep disorder that is now better. If you do get the DRG trial, make sure it lasts the full 10 days, and that easily 8 out of 10 days help your pain quite a bit. I had a 10 day trial, but I would say that only the last 3 had some improvement, but not enough. I was desperate to help my throbbing, contorted toes, and stabbing, throbbing. balls of feet. However, I don't think my trial was ever successful enough to implant the DRG. Just be careful, and I am glad you have heard of other success stories from real people, about the DRG. LoriRenee1

Jump to this post

Sorry to hear that the DRG was unsuccessful for you. I had a 5 day trial a few months back. It did cut the pain in half during the day time but I don't think it helped much for the evening. So, as of yet I haven't had the permanent one put in. The 3 people who had success I talked to had a different doctor than the one who did my trial. Perhaps, success depends on the skill of the doctor who places the leads in the DRG. I have lower back pain too. I might have an epidural injection on Thursday in the lower back possibly @ L4, L-5. They are the nerves that service the toes of the foot. Perhaps that could help alleviate the pain I have in the toes from two prior surgeries I had on the toes.

REPLY
@alh123

Wow , that’s quite a scary story , especially since I am probably going to trial one in a couple of months . Can you say which clinic you had it installed ..or even the city or state? It’s hard to get good outcome data , especially with quality of life as the outcome , not the pain score etc. Are there any good Nalu PNS stories out there that I can be encouraged by ?

Jump to this post

I would also like to know if there are any good NALU stories since I am considering the 2-wk trial. I have pudendal neuropathy (MUCH pain when sitting), most likely caused by riding my bicycle too much.

REPLY
@martyk

Sorry to hear that the DRG was unsuccessful for you. I had a 5 day trial a few months back. It did cut the pain in half during the day time but I don't think it helped much for the evening. So, as of yet I haven't had the permanent one put in. The 3 people who had success I talked to had a different doctor than the one who did my trial. Perhaps, success depends on the skill of the doctor who places the leads in the DRG. I have lower back pain too. I might have an epidural injection on Thursday in the lower back possibly @ L4, L-5. They are the nerves that service the toes of the foot. Perhaps that could help alleviate the pain I have in the toes from two prior surgeries I had on the toes.

Jump to this post

@martyk I think it is very wise of you to try an epidural. That could relieve your pain, and is way less invasive than getting a spinal cord stimulator. I tried epidurals twice, and they did not help. However I do know a few people that swear by them. Both have sciatica. My best to you. Lori

REPLY
Please sign in or register to post a reply.
  Request Appointment