Share this:

Pelvic Floor Dysfunction

Posted by @trishie in Women's Health, May 13, 2012

Are any females in the US coping with Pelvic Floor dysfunction, Vulvadynia, Clitordynia? I was recently diagnosed with Pelvic Floor Dysfunction and have had some therapy but my insurance is fighting me so hard. On August 4, 2011, this agonizing pain began and has signifcantly progressed to the entire vulva area both inside and out. I am in constant, agonizing, burning, seering pain! I only have relief when taking sitz baths or soaking in Epsom Salts. I have only had one physician in my area to say that he believes I have "real" pain. I recently discovered a letter in my files stating that the GYN nurse practictioner thought I needed a mental evaluation, after telling me she would be there for me and help me through this horrible ordeal. When I initially asked her if I might have Vulvadynia, she had never heard the disease and I find that many doctors are not aware of it and after seeing me, they just pass me off as the National Vulvadynia Association states that this is what patients will experience. Even though I read this, it doesn't make it easier to accept. Just wondering if anyone else is experiencing this pain and what you might have found for relief or "cure". I would love to have a moment of relief from this feeling that acid has been poured on my private area and that I just burning. I would love to think that I could sit down in a chair and not have to lie down whenever I rest.

Tags: womens health, clitordynia)

PamEganNP and China like this

Posted by @china, May 14, 2012

That sounds bad. Constant pain down there. Have u tried the er. Never heard of that but I hope u get better soon.


Posted by @trishie, May 18, 2012

Yes, I went to the ER and that nurse practitioner was the worst one yet!!! He never so much as introduced himself, much less examined me or listened to what I had told him my symptoms were. He wrote up my pain as exactly "the one thing I asked him to understand that it was not--no pain when voiding". BUT THAT WAS HOW HE DIAGNOSED ME. So much for him. I am in the midst of filing forms against him, not to get him fired, but to get him more training, or at least to the point that he can't work in the ER without a doctor. He isn't properly trained enough!


Posted by @lizkat, May 14, 2012

Hi trishie
Vulvadynia is horrible. I had it a number of years ago, it resolved on it's own. Maybe googling for a doc that is aware might help?
I never wore pants like jeans that are tight or have thick seams, skirts were always best. I found a heavy pad helped when I did wear pants

gigiwolf and Trishie like this

Posted by @trishie, May 18, 2012

Did you do anything at all to help make life easier while you had it other than what you have told me here. I am literally not having a life at all because of this agonizing pain. It eases off between 3 am and 10 am if I am lucky. Once I stand up or take a sip of water or anything, I feel the pain begin in the urethal area. If I didn't know better I would think I was getting a kidney stone because it feels as though something with stickers is in the uretha. Then the horrible pain in the clitoris begins of painful "unwanted" arousal that is never ending. I use lidocaine and vitamin E oil. I do my therapy at home with the ball and breathing exercises and very limited squeeze with the knees. I know that the muscles have tightenend below and I am working to relax them, but I still feel as though there is a bladder or urethal issue here that is being overlooked; however they tell me that this nerve ending battle does involve all the nerves and can imitate a lot of problems. I certainly hope my pain goes away just as it appeared. Thanks for replying.


Posted by @lizkat, May 14, 2012

Oh! I saw on the news years ago that there is a doc that is treating it with a surgical procedure, maybe google that?


Posted by @pamegannp, Mar 18, 2013

I really feel for you and I sincerely hope that a cure is found --- and soon.

PamEganNP likes this

Please login or become a member to post a comment.