Pediatric bronchiectasis (new diagnosis)
Greetings everyone. My 13 year-old has a history of frequent pneumonia’s. Newly diagnosed with bronchiectasis (right loser lung lobe) this week. Most recent pneumonia last month appear to have been successfully treated with Levaquin however he had recurrent shortness of breath with activity prompting them to do a CAT scan and bronchoscopy. He had mucous plugs and a lot of gray mucus in his right lower lobe.They’re having him do three times a day albuterol and 3% saline and a flutter device. His shortness of breath hasn’t improved. They’re waiting to get cultures back from the bronchoscopy. I am absolutely terrified. They also started him on three times a week azithromycin “through the winter months and possibly longer.” He had no other health history except for a few pneumonia‘s five years ago within an 18 month time span that they attributed to a reactive airway even though he never had classic asthma symptoms, and then two recent pneumonia‘s in the last six months.￼￼￼￼ I’m getting the house tested to make sure there’s no mold hiding anywhere in the walls. ￼￼he’s shortness of breath didn’t improve after the bronchoscopy and lavage. Has anyone just had a consolidated area surgically
Removed and had good results? I don’t understand why his shortness of breath didn’t get better after removal of the mucous plug and other secretions that were trapped in the right lower lobe. I am so so scared, I can’t sleep, any words of encouragement or personal experience that I may draw some strength and hope from would be much much appreciated. God bless you all￼￼ 💗 (FYI his immune system workup was normal and he tested negative for cystic fibrosis).