Anyone out there have PKD?
my boyfriend has pkd and just had a tube put in his belly for pd. Whats your story?
Hi! I have esrd, my docs are at mayo, havent transplanted yet. I have searched for good docs.I see docs in Rochester MN, Tulsa, OK - Wichita, KS and Jacksonville, FL--I could recommend one any of these places- well not so much Jacksonville, yet. 🙂
I too have PKD, so did my dad, aunt, grandma and a few cousins. My dad and Aunt both were lucky enough to live long lives after getting transplants. I'm living on dialysis 4 hrs a day three days a week. I hate it and it's hard with kids because I have no energy. I am getting ready to go to Mayo to see if I can get on the transpalnt list. I understand about all the pills. I take about 17-20 a day too. I have days when I skip all the pills and actually feel better but I know that won't last long.