Parkinson's disease will be curable with cortisol

Posted by robjohn @robjohn, May 26, 2019

I just ran across this article while researching a blood test that showed my cortisol is very low. PUBLIC RELEASE: 25-APR-2017
Parkinson's disease will be curable with cortisol

Does anyone know more about this?

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.


I was on Amantidine at the beginning and that really helped my gait and stiffness. Unfortunately 2 weeks later I developed severe skin rashes all over so that had to be stopped. Was also on Azilect prior to Amantidine, that helped, but it also caused skin rashes, obviously that was stopped. I am now on Stelavo, Primaxine , also Neupro patch ; they don't work that well but I can function. They are considering doing DBS on me, but decision has not been made.
Does anyone have experience with DBS and would like to share it?

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My experience with DBS occurred in 2021. After the scars healed and a lighter parkinson's cocktail prescribed, I spent a longer period with the surgeons physician associate than with the surgeon itself. The PA got my left hand without tremor after about the 3rd session. The right hand was another story . My right hand is my dominant and after two years it still has tremors. I've seem to have lost parts of my brain which formerly bought me great passionate i.e. crafts, hand writing/ printing that I and others could read what is written. If asked "would you do this again?" My response would be "that depends". How bad are your tremors? Are you willing to give up part of your intelligence? Do you fully understand both the limit of the expectations and the possible side effects. You are on the right path, talk to as many patients as you can and doctors as little as possible.


Well, this is interesting since I have been told I may be a candidate for DBS as my principal PD symptom is the tremor in both hands. So, my first question about your particular case (@lovesfabric) is would you get the DBS procedure reversed? My current understanding is that should be possible either by just turning off the battery or removing the electrodes? This to me is the principal advantage of DBS over a high intensity ultrasound ablation which is a far less invasive procedure but is not reversible.

I think most of us are somewhat trepidant about any kind of brain surgery, so I would like to hear from others who have had either DBS or another form of surgical intervention.


My son 33 has uncontrolled seizures, we've done the laser ablation, with limited success, then last year we had a VNS procedure with limited improvement. Now our PD is recommending DBS. Its referred to a the last resort in treatment options. Surgery is set for December but we want to wait and look for medication alternatives that are comin down the pipe. What would you recommend? How do you feel about having the procedure?


James, well, we know DBS is brain surgery. They drill a hole in your skull to insert the electrodes. It is a three day hospital stay and I am told about a month recovery and fine tuning the device. Still I was/am seriously considering it as opposed to my tremor dominant symptoms which medication have thus far been unable to control. I fully understand your ambivalence although I will tell you that my PCP tells me that he had two other patients who received DBS and both had remarkably successful outcomes. It sounds like focused ultrasound may be an option in between where you have been and where you are going that it may be wise to learn more about. It is being aggressively promoted by the manufacturer Insightech, so much info is available on line or at their many centers performing the procedure.

Then there is the fact that neither FU nor DBS are really a cure for the underlying PD, so there is always the chance that if we simply endure the symptoms for a bit longer, the REAL answer may emerge? Sorry not to be more helpful, but we are both facing the same dilemma.

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