Paraplegia from Adhesive Arachnoiditis
I had an arachnoid cyst (just one) removed in December 2020. In March 2021 my MRI showed dozens of cyst/scar tissue up and down my spine. I was having trouble controlling my legs. I was admitted right away into the hospital and within a few weeks I was losing the use of my legs. Then the paralysis started moving up my spine to just under my armpits. The surgeon said at this rate I had less than 10-days before I would lose the use of arms as well. I was sent to Salt Lake City for surgery to relieve some of the pressure in my spine. That was in April and today (today is December 21, 2021) I still have the use of my arms except I do have the pain. Nobody has an explanation for why I create scar tissue/lesions so quickly. Just a few weeks after my surgery in April my MRI showed more cyst being formed. I am home but my wife is now my 24×7 caretaker. No treatment to speak of is recommended at this time. My surgeon said he has not seen anything like this in his 30+ years. Any suggestions from this group would be appreciated. Since I am a Viet Nam Vet I am receiving some help from the VA with chairs, bed, drugs, etc. I also have good insurance but at this point, nobody has had a recommendation for any treatment to keep this from moving further up my spine. The surgery was a lamenectomy from T-3 to the lumbar. 8.5 hours or surgery. My surgeon says I am not a candidate for further surgery so if this moves up I do not know what to do. I have faith..so I hold onto that. Any suggestions appreciated. We live in Utah BTW….