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Papillary carcinoma/thyroid cancer

Posted by @janetbennett in Cancer, Aug 2, 2012

I just finiished my major surgery. One in 2004 total thyroidectomy and this last one, I had 6 masses which required much more extensive surgery removing all lympnodes in right side of neck. Now I find out that there is another spot on left side which doc says is most likely cancer too! I want to know if anyone else who has had similar surgeries, now have at least one vocal cord paralyzed, shortness of breath, choking and strangling on foods and liquids and also I am unable to totally use my right shoulder and have limited range of motion. I have read articles on this and have confirmed a lot of my suspecions but one of my two phys. does not agree that the shortness of breath is from the paralyzed vocal cord I now have as a result of surgery!!! I did NOT have these issues before surgery. My endo doc however does say it has all to do with it. I am so confused I don't know what to do. This is why I am seriously considering Mayo. What does anyone else think? Thanks Janet

Tags: Cancer, Thyroid cancer, thyroidectomy, thyroid surgery


Posted by @anon28380356, Sep 11, 2012

I'm sorry to hear you are going through so much right now! I also have papillary thyroid cancer. I had a total thyroidectomy in 1997 when I was 20 and have had 2 right neck disections, and this year I will have surgery again. I was told that people often get repeat surgeries for this because PET and CT scans are getting better and better and can detect small tumors that previously went unnoticed. My scar tissue hurts sometimes, but I do not have the vocal and breathing problems you described. I go to Sloan Kettering in NYC and they are wonderful. I recommend it. I would def get a 2nd opinion about your discomfort. I wish you all the best!

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