Pancreastatin level at 1500

Posted by Phxsuns @cfuller84, May 1 5:40am

Hi,
I have had 2 pancreastatin test 1st at 1,000 2nd at 1500 . My gallidium pet showed diffuse uptake in the pancreas but thought it probably not cancer otherwise normal. I am having chronic severe abdominal pain and fatigue. I feel like my scan missed the tumor due to my symptoms and the high pancreastatin. The GI said they cant do anything other than pain meds because nothing showed up on the scan. Has anyone else had this happen? Any suggestions?

Hi @cfuller84

Yes, all of those scans do get frustrating! I've had more scans these past two months and it does get tiresome after a while.

I can only imagine how thrilled you must be in the lower pancreastatin numbers, I'm glad that your lifestyle changes have worked so well for you.

Do you have an appointment yet for the next scan with contrast?

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@hopeful33250

Hi @cfuller84

Yes, all of those scans do get frustrating! I've had more scans these past two months and it does get tiresome after a while.

I can only imagine how thrilled you must be in the lower pancreastatin numbers, I'm glad that your lifestyle changes have worked so well for you.

Do you have an appointment yet for the next scan with contrast?

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Yes I am so ready to be done with the scans. At least they said I will not have to get a new pet scan because my pancreastatin came down. Yes seeing my pancreastatin come down has really motivated me to continue with lifestyle changes to improve my health. They should be calling me soon to schedule the new ct scan I haven't heard anything yet. The contrast ct scans are my least favorite I the contrast always gives me palpitations and tachycardia for a while afterwards.

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@cfuller84

Yes I am so ready to be done with the scans. At least they said I will not have to get a new pet scan because my pancreastatin came down. Yes seeing my pancreastatin come down has really motivated me to continue with lifestyle changes to improve my health. They should be calling me soon to schedule the new ct scan I haven't heard anything yet. The contrast ct scans are my least favorite I the contrast always gives me palpitations and tachycardia for a while afterwards.

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Hello @cfuller84

I've heard from other members on Connect who have reactions to contrast. Some of them had been given an IV of fluids before the contrast was administered. You would probably have to have your doctor put in an order in advance to try this but perhaps it would help.

I don't usually have after-effects from the contrast but I do get flushed and have a strong metallic taste in my mouth during the process (not to mention that it is hard to find a good vein)!

I hope it goes well for you. If possible, will you let me know when the scan is scheduled?

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