Pain: How can I find the underlying cause?

Posted by suzetteirons @suzetteirons, Sep 3 2:37am

Hello my name is Suzette and I am new here, I don’t know if anyone is going through what am going through but I just need a little help. I have been going to doctors after doctors and no help, I have been living with pain for years and no doctor can’t fine what seems to be the cause of the pains one doctor say it’s fibromyalgia and she sent me to a specialist and she say I have Sjögren’s syndrome and she have me on all these meds but she did not do any test to confirm so I decide to get a second opinion and that's when I found out I don’t have Sjögren’s but the next doctor did blood works and he said a lot of inflammation is in my blood but he only say it can be from a cold to cancer and 300 other different things in between and am tired of going to doctors after doctors and no help in sight. Anyone have any suggestions?

Have you ever visited a doctor specialized in pain treatment. A specialized pain doctor worked with me until he pinpointed my problem, and successfully treated it.

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@suzetteirons Welcome to Mayo Clinic Connect! It sounds like you certainly have been having a difficult time. Have you kept a journal, listing the times you have the pain, location, time of day, what you were doing, etc. Then also a list of medications you have tried [successfully or not], and the drs you have seen? If you are near a Mayo Clinic campus, it might be worthwhile to see about getting an appointment, or go to a large teaching hospital.
Ginger

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@gingerw

@suzetteirons Welcome to Mayo Clinic Connect! It sounds like you certainly have been having a difficult time. Have you kept a journal, listing the times you have the pain, location, time of day, what you were doing, etc. Then also a list of medications you have tried [successfully or not], and the drs you have seen? If you are near a Mayo Clinic campus, it might be worthwhile to see about getting an appointment, or go to a large teaching hospital.
Ginger

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Hello Ginger thanks for responding to my message no I don’t keep a journal but I can kinda remember the different doctors I have visit and the medication s I have taken, I am living in Georgia and I don’t think a Mayo Clinic is close by but this is my last resort because am so tired of going to different doctors with no answers, I try to keep records of my blood works. My pain will start in the morning as I wake and it would run for days and the only pain killers I notice work is Tylenol extra strength but all the other meds they have me on don’t help.

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@suzetteirons

Hello Ginger thanks for responding to my message no I don’t keep a journal but I can kinda remember the different doctors I have visit and the medication s I have taken, I am living in Georgia and I don’t think a Mayo Clinic is close by but this is my last resort because am so tired of going to different doctors with no answers, I try to keep records of my blood works. My pain will start in the morning as I wake and it would run for days and the only pain killers I notice work is Tylenol extra strength but all the other meds they have me on don’t help.

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@suzetteirons Here is a list of the top teaching hospitals in Georgia:
1. Emory University Hospital, Atlanta

2. Emory University Hospital Midtown, Atlanta

3. Grady Memorial Hospital, Atlanta

4. The Medical Center, Navicent Health, Macon

5. Memorial University Medical Center, Savannah

6. Augusta University Medical Center, Augusta

7. WellStar Atlanta Medical Center, Atlanta

Are any of these close to you, that you could get an appointment?
Ginger

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@lindes

Have you ever visited a doctor specialized in pain treatment. A specialized pain doctor worked with me until he pinpointed my problem, and successfully treated it.

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No I have never seen a pain doctor before so I think I could look into that one.

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@gingerw

@suzetteirons Here is a list of the top teaching hospitals in Georgia:
1. Emory University Hospital, Atlanta

2. Emory University Hospital Midtown, Atlanta

3. Grady Memorial Hospital, Atlanta

4. The Medical Center, Navicent Health, Macon

5. Memorial University Medical Center, Savannah

6. Augusta University Medical Center, Augusta

7. WellStar Atlanta Medical Center, Atlanta

Are any of these close to you, that you could get an appointment?
Ginger

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Yes Emory, Grady and Wellstar

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@suzetteirons

Yes Emory, Grady and Wellstar

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What about an alternative medicine doctor who will detox you?

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I did a couple detox, this is the one I did

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Am trying to send you a picture of the detox that I did but it not going through but I did it with my food in water with a little salt

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@suzetteirons

Yes Emory, Grady and Wellstar

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@suzetteirons May I suggest you try for an appointment at one of these institutions, then? Write down what you can about your symptoms, medications tried, etc., so a new medical team can see what you have gone through before.

I'll be waiting to hear from you, how you fare getting an appointment, and what they can do for you.
Ginger

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@suzetteirons, You may also find the following discussion helpful — Getting a Diagnosis for Chronic Pain: https://connect.mayoclinic.org/discussion/getting-a-diagnosis-for-chronic-pain/

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I am sorry you have this pain. I think many of us on this site are dealing with chronic pain. It is very debilitating and tends to wear a person down. I hope you can find a dr to help you sort out what may be causing the pain.

Something I noticed in your note – one dr found Sjogren’s but another dismissed it. Sometimes Sjogrens antibodies are found and sometimes a person with sjogrens does not have those antibodies. So you could have it even though some of the blood markers aren’t present.

If that doctor put you on hydroxychloroquine (plaquenil) for Sjogrens it can take up to 6 months to a year to get the full benefit of the drug, as it slowly builds up in your system. A yearly optical exam to detect possible retinal involvement is imperative. Many of us stay on it for years with no bad side effects.

Another website similar to this one that use to get help from other patients is called smartpatients.com. You can ask questions and read or participate in conversations about various topics. It is very helpful.

The best sjogrens site was created by a doctor who also has Sjogrens.
https://www.sjogrensadvocate.com/
I wish you luck in your search for a doctor. My first step upon finding out I had the antibodies that pointed to sjogrens was to find a rheumatologist.

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