Pain in eye after cataract surgery 1 year

Posted by sunny1971 @sunny1971, Apr 28 7:11am

Hi friends has anyone had pain behind the eye 9 to 12 months after the cataract surgery? My husband still going down a dark road fighting the pain in his eyes he’s been to so many physicians no one seems to know what it is they all say his eye and cataracts are fine the surgery went well he had a expensive cataract lens put in which is called a panoptic, he feels the doctor did not place it properly or that is too strong for his eye. He’s been on drop after drop five or seven different drops sometimes they help most of the time they don’t.

@gocy

Too often patients suffering adverse effects following cataract surgery have no medical recourse. This is unacceptable for patients. Ophthalmologists seem inflexible to revisit undesirable post surgical outcomes. Patients are made to carry the adverse effects when the risks were not addressed before surgery.

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Was "only" an Iridotomy" referral from my Optometrist; Ophthalmoloigst… she did it and I left office. I have read should wait fifteen minutes to check? Month later Covid had closed Optometrist so Ophthalmologist saw me again as I was getting some double vision. Her staff did some normal tests but my eye pressure was not taken; my angles were not checked.
Dr. had told me over phone beforehand, dont worry your angles are nice and wide…how would she know without checking in person? My Optometrist shied away.
Anyway before I left her office she said to me: you have the eyes/vision of a 20 year old I am 77) and when I asked about the double vision when looking at objects close but seeing objects in background double (and vice versa) she said, its age-rleated. I agree, and of course not all eye drs. the same, but there doesn't seem to be much accountability for follow up or further issues.
I think getting copies of medical notes from our files might be useful, if any are made/kept?
GOOD IDEA OR NOT…. BEFORE procedures, ask the referring doctor: should I have issues after the surgery/treatment, "who" will take care of me you or the referred doctor?? and get it in writing or have someone with you.
I know especially through Covid it has been difficult for all medical professionals, and most are amazing: but as patients, we need to know the risks and who will be responsible should there be a negative outcome to some procedures, shouldn't we? Or are we to be just left to our own resources?

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@becsbuddy

@gocy it doesn’t sound like anyone really wants to help you and that’s not so good. Maybe its time to think about another ophthalmologist because your eyes shouldn’t be hurting! I have cataract surgery coming up and this is one more question i need to ask! Can you let me know what you find out?

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No I am not getting any help. My internist is doing the best she can to help. Ophthalmologists say the cataract surgery was done correctly, and I might have neuralgia or neuritis. There doesn't seem to be any recourse or resolution.

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@lacy2

Was "only" an Iridotomy" referral from my Optometrist; Ophthalmoloigst… she did it and I left office. I have read should wait fifteen minutes to check? Month later Covid had closed Optometrist so Ophthalmologist saw me again as I was getting some double vision. Her staff did some normal tests but my eye pressure was not taken; my angles were not checked.
Dr. had told me over phone beforehand, dont worry your angles are nice and wide…how would she know without checking in person? My Optometrist shied away.
Anyway before I left her office she said to me: you have the eyes/vision of a 20 year old I am 77) and when I asked about the double vision when looking at objects close but seeing objects in background double (and vice versa) she said, its age-rleated. I agree, and of course not all eye drs. the same, but there doesn't seem to be much accountability for follow up or further issues.
I think getting copies of medical notes from our files might be useful, if any are made/kept?
GOOD IDEA OR NOT…. BEFORE procedures, ask the referring doctor: should I have issues after the surgery/treatment, "who" will take care of me you or the referred doctor?? and get it in writing or have someone with you.
I know especially through Covid it has been difficult for all medical professionals, and most are amazing: but as patients, we need to know the risks and who will be responsible should there be a negative outcome to some procedures, shouldn't we? Or are we to be just left to our own resources?

Jump to this post

Hi @lacy2 I read that your vision is that of a 20 year old. Congratulations, that's wonderful!

You make a great point about obtaining your medical records. Good idea! Each patient is certainly entitled to their records. Although there are incredible doctors out there, sometimes we are left to our own resources. That is called self advocating. You are your best advocate and you should always follow your gut.

I'm sorry to hear of your double vision. I have battled it as well, and it is no fun. Are you still experiencing double vision @lacy2 ?

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@gocy

No I am not getting any help. My internist is doing the best she can to help. Ophthalmologists say the cataract surgery was done correctly, and I might have neuralgia or neuritis. There doesn't seem to be any recourse or resolution.

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@gocy Hello there. I'm sorry to hear you are not getting any help. Perhaps you should be seen by a neuro opthamologist, or a neurologist? Your current opthamologist should not have a problem referring you to a specialist if he or she can not properly diagnose.

There may be mitigating circumstances such as nerve pain that ironically came after your cataract surgery. It may unrelated to the surgery, but ruling out is the only way to tell. Neuritis or neuralgia can be helped with a nerve medication such as Gabapentin (Neurontin) or Pregabalin (Lyrica).

I experienced sharp nerve pains in my eyes and because I had had cataract surgeries and cornea transplants, I blamed it on that. when in fact I had developed small fiber neuropathy and central sensitization. The only way I got to the bottom of things was to keep persevering and being my own advocate.

Good luck with resolution. I'm sure it will all work out, and I'd love to hear an update. Will you keep me posted on your progress?

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@gocy

Too often patients suffering adverse effects following cataract surgery have no medical recourse. This is unacceptable for patients. Ophthalmologists seem inflexible to revisit undesirable post surgical outcomes. Patients are made to carry the adverse effects when the risks were not addressed before surgery.

Jump to this post

Spot on @lacy2 I wish I had been made aware by my Dr. that secondary cataracts were possible, after having cataract surgeries. I was left fending for myself with kooky double vision and discomfort for months, after one specialist missed it. I eventually found out I had secondary cataracts because I had a stitch lose from my previous cornea surgery that sent me to the ER while on vacation. The young opthamologist who went to snag my stitch, noticed immediately the secondary cataract.

This is a good reason to be here on Connect. To offer experience to others so they can advocate for themselves. Knowledge is power. And I will say, not all doctors overlook details we should be made aware of. There are some real good docs out there.

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@rwinney

Spot on @lacy2 I wish I had been made aware by my Dr. that secondary cataracts were possible, after having cataract surgeries. I was left fending for myself with kooky double vision and discomfort for months, after one specialist missed it. I eventually found out I had secondary cataracts because I had a stitch lose from my previous cornea surgery that sent me to the ER while on vacation. The young opthamologist who went to snag my stitch, noticed immediately the secondary cataract.

This is a good reason to be here on Connect. To offer experience to others so they can advocate for themselves. Knowledge is power. And I will say, not all doctors overlook details we should be made aware of. There are some real good docs out there.

Jump to this post

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@rwinney

@gocy Hello there. I'm sorry to hear you are not getting any help. Perhaps you should be seen by a neuro opthamologist, or a neurologist? Your current opthamologist should not have a problem referring you to a specialist if he or she can not properly diagnose.

There may be mitigating circumstances such as nerve pain that ironically came after your cataract surgery. It may unrelated to the surgery, but ruling out is the only way to tell. Neuritis or neuralgia can be helped with a nerve medication such as Gabapentin (Neurontin) or Pregabalin (Lyrica).

I experienced sharp nerve pains in my eyes and because I had had cataract surgeries and cornea transplants, I blamed it on that. when in fact I had developed small fiber neuropathy and central sensitization. The only way I got to the bottom of things was to keep persevering and being my own advocate.

Good luck with resolution. I'm sure it will all work out, and I'd love to hear an update. Will you keep me posted on your progress?

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I was prescribed Gabapentin by my internist. I have not taken it because of all the serious possible side effects, including dementia, eye rollings and others.

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@gocy

I was prescribed Gabapentin by my internist. I have not taken it because of all the serious possible side effects, including dementia, eye rollings and others.

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Great, I'm glad you were prescribed a nerve medication. I understand your concerns about Gabapentin side effects…it's new territory and that can be scary. Please keep in mind that your Dr. must feel the benefit will outweigh the possible side effects. I believe each person is different in how they experience medications, and one must form their own opinion from their personal experience.

There are a great deal of folks receiveing benefit from Gabapentin. Typically you will start on a small dose then gently taper up as needed. If you psyche yourself out ahead of the game, you may defeat the purpose of receiving relief.

Ultimately, it is your decision. I wish you well and hope for you to find relief of your pain and discomforts. Will you please keep me posted on how things are going?

.

REPLY
@rwinney

Great, I'm glad you were prescribed a nerve medication. I understand your concerns about Gabapentin side effects…it's new territory and that can be scary. Please keep in mind that your Dr. must feel the benefit will outweigh the possible side effects. I believe each person is different in how they experience medications, and one must form their own opinion from their personal experience.

There are a great deal of folks receiveing benefit from Gabapentin. Typically you will start on a small dose then gently taper up as needed. If you psyche yourself out ahead of the game, you may defeat the purpose of receiving relief.

Ultimately, it is your decision. I wish you well and hope for you to find relief of your pain and discomforts. Will you please keep me posted on how things are going?

.

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Yes, I am tempted to start the Gabapentin and hope for the best.

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@willows

I have burning and watering eyes when watching TV for an hour or more. Had cataract surgery two years ago and this problem began following the surgery. I have tried many over the counter eye drops but they just make things worse. Anyone have any suggestions?

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My husband uses Bromfenac eye drops and it is an NSAID for pain. The eye Dr. gave it to him for pain but he is not having any pain. You should contact your eye Dr about that. I am not sure you can get that because my husband was told by express scripts that there is a delay from the company. The eye doc might have something else that would be helpful.

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Will speak to her about this medication. Thanks for the advice.

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@lacy2

Was "only" an Iridotomy" referral from my Optometrist; Ophthalmoloigst… she did it and I left office. I have read should wait fifteen minutes to check? Month later Covid had closed Optometrist so Ophthalmologist saw me again as I was getting some double vision. Her staff did some normal tests but my eye pressure was not taken; my angles were not checked.
Dr. had told me over phone beforehand, dont worry your angles are nice and wide…how would she know without checking in person? My Optometrist shied away.
Anyway before I left her office she said to me: you have the eyes/vision of a 20 year old I am 77) and when I asked about the double vision when looking at objects close but seeing objects in background double (and vice versa) she said, its age-rleated. I agree, and of course not all eye drs. the same, but there doesn't seem to be much accountability for follow up or further issues.
I think getting copies of medical notes from our files might be useful, if any are made/kept?
GOOD IDEA OR NOT…. BEFORE procedures, ask the referring doctor: should I have issues after the surgery/treatment, "who" will take care of me you or the referred doctor?? and get it in writing or have someone with you.
I know especially through Covid it has been difficult for all medical professionals, and most are amazing: but as patients, we need to know the risks and who will be responsible should there be a negative outcome to some procedures, shouldn't we? Or are we to be just left to our own resources?

Jump to this post

yes we should. My husband was seeing a dark spot on his eye and was sent to an optometrist who told him that its like the sun on the horizon and if certain things happened to come back. Well certain things that she told him didn't happen however his retina was detaching. After eye surgeries and appts. his vision is not great. He is lucky to see at all. I was so angry. He now goes to an opthmalogist that keeps tabs on his eyes. I am a retired nurse but have always said to myself if I am not happy with a doctor and don't feel right or feel like my questions are not answered then I will change doctors. My husband had an event at the table and I knew something was not right. I went with him to his doctor because I saw it and he didn't know what happened. I won't repeat what I am thinking right now but when I left I was very mad. His dr. was wishy washy and didn't do anything. So when he had his second event and fell on the floor I saw he was doing the same thing. I told him he was going to my cardio dr no ands ifs or butts. I made an appt with my cardio doctor and she did ekg they said his heart rate was below 46. She checked everything. He had Bradycardia. He ended up with a pacemaker because the pacemaker in his heart was dying. My husband has had to change drs and he does not like change so I know what needs to be done. I have had patients tell me their doctor is GOD. No he is not. Everyone makes mistakes and so can doctors. It can be very disheartening when things happen or don't.

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