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ovarian cancer

Posted by Anonymous-5c235dbc in Cancer, Aug 23, 2011

I have just had debulking surgery for ovarian cancer. I will learn about my chemo plan at my doctor appointment tomorrow He has placed an IP catheter in my LUQ. . I would like to connect with other OC survivors for information and support. How do I know my doctor is up on the latest chemo treatments? He told me the cancer vaccine trials have not been sucessful.

Tags: Cancer

Lillian, Sungkwon Kang, Anonymous and 3 others like this
laidyn

Posted by @laidyn, Sep 21, 2011

Yes my hair was teal, it is no more. Have survived since May of 2009.Now have reoccurance in lymph system. IP therapy wasn't used in my therapy but I researched that USA doesn't use it as much as the rest of the world. Seems to have better results but side effects. Have to have someone doing it that is well trained in procedure. Apparently my hospital doesn't have someone: Geisinger Medical Center.
Research treatments, that is what I am doing now. It was difficult in the beginning to just swallow that I had cancer. Now I'm getting proactive. Please write and let me know how you are doing. Those stitches were awwful! The only way I could get out of bed was to roll on my head while trying to get my body as straight as possible. You are probably just getting out of that pain now. It gets easier, truly. That was the hardest part.

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bevvigil

Posted by @bevvigil, Sep 30, 2011

Getting out of bed was really tough. I had to hold on to the back of my head board and roll my self onto my side and then roll off the bed. Not a pretty picture. It does get easier after a week. What research treatment are you going through and have you heard of Avastin? Good luck with your treatments! I am cheering for you all the way!! Did you get neuropathy in your feet in hands when you went through your chemo?

laidyn

Posted by @laidyn, Oct 5, 2011

Never heard about it but going to new onc/gyn today. Will ask her about Avastin. Thanks for the lead. Old dr. not suggesting anything new. No clinical trials. Have been w/ him two years and when the carboplatin built up a resistence in my body I was miffed that he said we'll just do the Taxol. (6 cycle/wkly) Lymphs went up to 41 this passed week. I don't think that is good but will discuss at 1 pm today w/ female onc/gyn. Hopeful.... I saw her one time before and she put her hands on my shoulders when she gave me the news of the reoccurance and said, "We'll take care of you Nancy." So reassuring.

Now I want to thank everyone who chimed in. When I got on this sight there was noone communicating. Well I got one crude picture of link sausage writing out something I didn't even want to read after I read the content of the text. I was ready to give up on the site. Thanks Bev for starting and all who have responded. Especially the 10 yr. survivor. Miracles can happen and we, who are given this diagnosis, need to hear it!

P.S. If you have neuropathy and fingers slide off keys, we understand and will figure it out.

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laidyn

Posted by @laidyn, Oct 6, 2011

ok everybody, have some good news and some bad news. GOOD news first: NED (no evidence of disease) results from CAtscan. yAHOOOOOO! bAD NEWS IS THAT MY COMPROMISED IMMUNE SYSTEM BROUGHT ABOUT sHINGLES:( iT APPEARED WHILE i WAS DRINKING THE BARIUM FOR THE CATSCAN. Quoting my lady Gilda "It's Always something" If you haven't read or listened to Gilda Radner's book on her battle with ovasrian cancer I highly reccommend it. The audio was different from the book and she narrates it herself. I prefer the audio version.

cutloose

Posted by @cutloose, Oct 6, 2011

Laidyn how aweful to have to go through shingles. I hope and pray that it will be quick and as pain free as it can be. Some how I pary you find some joy amongst the pain. Good news that no disease. God Bless you.

realdeal

Posted by @realdeal, Nov 14, 2011

My sister-law was just operated on and had two huge tumors that turned out to be cancer. We do not know what stage yet,before this she had breast cancer in both breast,had them both removed a few years ago,it was very aggressive cancer.She had two children that died of cancer,one with brain tumor and one with it in her sinus cavity,now it is back in her ovaries,they were able to get about 99% of it but don't know yet what the pathology results are yet,i am really worried,was wondering if anyone out there that could tell maybe what to expect,thank-you for listening

bevvigil

Posted by @bevvigil, Oct 18, 2011

Congratulations on the good news from the CT scan!! I just got the same results from my CT scan last week. I am sorry to hear about the shingles. That is very painful. Where are the shingles?
I have not read her book. I will have to check out the book on tape!! Stay in touch and let me know how it is going. I started my avastin therapy last week and I actually did not get nauseated!!! Hurray!!! No Nausea for 2 weeks...just completed my 16 weeks of Taxol/Carbo, and Avastin...It was not easy. The Avastin is causing exfoliated dermatitis...I feel like a lizard...peeling from my hands and arms...Aveeno with oatmeal does help and the oatmeal bath by Aveeno if anyone has experienced it. I am really worried about the neuropathy and going back to teaching Adapted P.E. next week. I will have to be on my feet for long periods of time. Any good therapies for neuropathy???

laidyn

Posted by @laidyn, Oct 6, 2011

asked about it. Some Dr.s swear by it and some don't use it anymore. It was considered a mahor breakthrough and then lost popularity. My dr. doesn't prescribe it. I think it was due to side effects but I am foggy on that. Chemo brain.:(

cutloose

Posted by @cutloose, Oct 6, 2011

Bev in regurad to the neuropathy. It has been 10 yrs and I still suffer from it. My doctor told me that it would be a side effect and that it could last any where from 2-10 yrs. It is not as bad, but I still suffer with it. I'm sure that's not what you wanted to hear. I've been told everybody is differant.

saveunborn

Posted by @saveunborn, Sep 22, 2011

Good for you with the teal hair! My daughter bought me teal nail polish but I haven't had the energy or can't reach my toes comfortably yet. It has been 6 weeeks since my surgery and I am feeling better. I had my first chemo IV a week ago and it went well. I had a bad day 3 days later with bad aches and weakness but it was better by the next day. I have primary peritoneal cancer which is related to ovarian cancer and the treatments are the same. I have been in the medical field 35 years and never heard of PPC. I had chemo IV last week with the taxol and the carboplatin. I have some fears about the IP chemo because I know it is more toxic to you but my faith in God is still strong. I know this is a test of my faith and praying that God will use me through all this to help someone else. I will pray for you. I always feel better when I start my day in devotion and prayer. I have a list of names in a box that I go through and pray for each one. They all have different needs in their life. I also have a list of things I am thankful for. I never thought I would get cancer and was almost in disbelief when the doctor told me I had it. I have always eaten neutriitional foods and thought I was a healthy person
You can still make it through this. Have you looked into clinical trials?
Gannie Annie

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bevvigil

Posted by @bevvigil, Sep 30, 2011

I have stage 2C ovarian cancer and Stage 1 Uterine cancer. I love that you take the time to pray for others. I find helping others in the community takes your mind off your pain and fatigue. It feeds me energy to get through the day. I was really surprised when they told me I had cancer too but when I really thought about it I was doomed with having an aunt die of breast cancer, another aunt die of lung cancer, a great aunt with stomach cancer, and a grandma with bladder cancer who survived hers. I am in a research study for Avastin. Tomorrow is my last day of 16 weeks of chemotherapy! Thank God for that. They had to poke my three times last Friday before they found a vein to use. I am worried about them finding one tomorrow.
After tomorrow I will be receiving Avastin next week and will get it intravenously every three weeks for a year. How many treatments will you have to have and how has your nausea been through it all? Bev Vigil

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laidyn

Posted by @laidyn, Oct 4, 2011

I was at stage 3-c when they found ovarian cancer. Was cancer =free 1 1/2 yrs. Shocker but knew it was coming. Do you have aport? I had pic line then port when they couldn't get any good viens anymore.

laidyn

Posted by @laidyn, Oct 6, 2011

Nausea hasppened first couple days but held at bay if I could remember to take the Zofran or Compazene (generics). Explosive diarea has plagued me from the onset. Have had many public outings that were spoiled by that side effect. Never have any warning when its going to trigger.

cutloose

Posted by @cutloose, Oct 6, 2011

Bev your ovarian cancer stage2C same as I. I didn't have the Uterine cancer. My chemo was every 3 weeks. For 6 treatments. They gave me steriods to keep that yucky nausea feeling down and it worked. The only thing was that it also kept me awake. So I baked all night after my treatment day. I was refered to as the bold headed baking queen by family and freinds. A standing joke to this day. By Gods grace I found the joy some where in each day, and I still do. I look at that 16 weeks of treatment you have gone through and find it to be so long. How often was the chemo in those 16 weeks? I too did not do a port. They went through my vein too. It was the last treatment that caused problems for me. Looking for a good vein that would hold up. . I need to check on that Avastin not familar with it. I'm sure your treatment being longer is due to the Uterine cancer. I'll check in on your progress so keep me up dated. GodBless

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cutloose

Posted by @cutloose, Oct 3, 2011

I went through ovarian cancer 10 yrs ago come Nov. My treatment was the same as yours. IV taxol and carboppatin. My strength came from the Lord and my faith was strong and still is. James 1:2-4 was a verse I claimed early on. What I am facing now is trying to decide if my lack of strength and being tired is a long team after effect from the chemo. I am 57 still like to walk, bike and even water ski, but am finding that my strength and energy is fading. My prayers are with you. Shaun

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laidyn

Posted by @laidyn, Oct 5, 2011

Don't know but I admire the energy you have to do the things you listed you are capable of doing now. I have a dream to go parasailing. A friend of mine who has lung cancer went with her mother (70's). tHEY SAID IT WAS LIKE FLYING AND GENTLE. I have a fear of falling (almost fell 220 ft. in a cave but people grabbed me under the arms when I was jumping from a pinacle to a cliff) so I never wanted to parachute. Parasailing is my goal before I die.

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cutloose

Posted by @cutloose, Oct 5, 2011

I'm afraid of heigths. I like to keep my feet on the ground, but good for you. I say if you have a goal or desire to do something go for it. After going through ovarian cancer, my look at life has changed alot and for the good. As I said God is my strength. He and I spend our mornings in prayer praying for those who are suffering and are wondering why. God has a plan for us and for all who go through cancer. I do beleive that we strengthen each other. I hope that my story of being cancer free for 10 yrs. gives others hope. I was a stage 2C. Thankful that I was in tune with my body. I knew that 3lb 7oz tumor was more than just a weight gain. I now look at women with large stomachs and pray. Strange where our minds go. To all who are going through ovarian cancer now, know that I'm in prayer for you. Believe that this too will pass. There is life after cancer. God Bless, Shaun

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laidyn

Posted by @laidyn, Oct 5, 2011

Teal nail polish looks great on. I bought some and was skeptical but when I found out about the reoccurance I applied it and it is stunning. Thanks, I think I'll go put some on now. Wear your cancer color proudly. When I had the teal hair (don't have any hair to talk about now) I used it to educate women about ovarian cancer. The old ladies in their 80's were the most receptive and usually smiled when they saw me.

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laidyn

Posted by @laidyn, Oct 8, 2011

Got CATscan results back. N.E.D. (no evidence of disease) Yipee!Yahoo! and Thank you God. Have a lot of work to do on this planet yet. Trying to start a gyno cancer support group in my area (Northeastern PA). Closest one is two hours away. Have started the process with the onc/gyno staff at Geisinger Medical Center in Danville, PA. Unfortunately it came with some discouraging news. Due to my low immune system from the chemo. I have developed Shingles. It kind of dampened my celebration so I just ate a Snickers as I was brooding the new problem. Have to look at the big picture. Cancer free for a while.

cutloose

Posted by @cutloose, Oct 9, 2011

Not for a while you are cancer free! Positive thinking always...Forever! As you said, have a lot of work to do on this planet! Congrats! Now get rid of those shingles. Prayers are with you.....

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