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ann2
@ann2

Posts: 5
Joined: Aug 27, 2018

Osteoporosis Treatment - Running Scared

Posted by @ann2, Mon, Aug 27 11:09am

What are the differences between an oral biphosphonate such as Fosamax and Prolia. Is it problems with gerd, ulcers in the stomach? What other differences beside weekly oral med or 6-month injection? I'm very afraid to start any drug. Have – 3.4 in spine and some form of inflammatory arthritis. Two diffferent doctors–one recommended Forteo, the other Prolia. Scared to death of either. At least with oral weekly, it could be stopped. How important is it to start. Could osteo be managed through diet and exercise?

REPLY

I refused to take Prolia. and I can't take the biphosphonates because of my kidney disease. So I found a wellness coach at a local physical therapy company. She is amazing. I started out with twice a week and after 9 months convinced my endocrinologist to prescribe physical therapy once a week for resistance therapy. I have been doing that and once a week with my wellness coach. I am on medicare with a supplement and the physical therapy is paid for. My wellness coach costs me $30 a visit. After 1 1/2 years, I halted the bone loss in my spine which was -2.5. My hip which was -4.5 did not halt. So my physical therapist gave me 4 different exercises to do at home for 5 days a week. I take K2, Magnesium, and Centrum Silver along with other drugs for my other issues. I only take 1 Citracal tablet a day and sometimes not even that. I am the victim of being prescribed and taking too much calcium and now my cardiologist said I have a lot of calcification in my arteries. I also drastically reduced my saturated fat. I don't think the physical therapy will reverse bone loss but at least I have stopped it in one place. We are hoping the added exercises will help my hip.

@suemer

I refused to take Prolia. and I can't take the biphosphonates because of my kidney disease. So I found a wellness coach at a local physical therapy company. She is amazing. I started out with twice a week and after 9 months convinced my endocrinologist to prescribe physical therapy once a week for resistance therapy. I have been doing that and once a week with my wellness coach. I am on medicare with a supplement and the physical therapy is paid for. My wellness coach costs me $30 a visit. After 1 1/2 years, I halted the bone loss in my spine which was -2.5. My hip which was -4.5 did not halt. So my physical therapist gave me 4 different exercises to do at home for 5 days a week. I take K2, Magnesium, and Centrum Silver along with other drugs for my other issues. I only take 1 Citracal tablet a day and sometimes not even that. I am the victim of being prescribed and taking too much calcium and now my cardiologist said I have a lot of calcification in my arteries. I also drastically reduced my saturated fat. I don't think the physical therapy will reverse bone loss but at least I have stopped it in one place. We are hoping the added exercises will help my hip.

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@suemer kudos for you exercise ,some weights for the bones ,watching sat fats .plus trans fats is good low amounts of calcium like your doneing I wish more where pro active like you are

@suemer

I refused to take Prolia. and I can't take the biphosphonates because of my kidney disease. So I found a wellness coach at a local physical therapy company. She is amazing. I started out with twice a week and after 9 months convinced my endocrinologist to prescribe physical therapy once a week for resistance therapy. I have been doing that and once a week with my wellness coach. I am on medicare with a supplement and the physical therapy is paid for. My wellness coach costs me $30 a visit. After 1 1/2 years, I halted the bone loss in my spine which was -2.5. My hip which was -4.5 did not halt. So my physical therapist gave me 4 different exercises to do at home for 5 days a week. I take K2, Magnesium, and Centrum Silver along with other drugs for my other issues. I only take 1 Citracal tablet a day and sometimes not even that. I am the victim of being prescribed and taking too much calcium and now my cardiologist said I have a lot of calcification in my arteries. I also drastically reduced my saturated fat. I don't think the physical therapy will reverse bone loss but at least I have stopped it in one place. We are hoping the added exercises will help my hip.

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Thanks for the reply. You have given me some encouragement. Have you ever broken any bones? Do you know why you have bone loss? I have a low BMI (thin) and some kind of inflammatory arthritis where I've had to take prednisone a few times, which possibly explains. However, no doctor can give me a certain answer. I'm 59 and I've eaten fairly healthy for some time but it didn't seem to help. I wasn't taking any supplements for a couple of years because I though I had taken too much calcium previously, too. Hard to find answers. Why won't you take Prolia?

I understand how you feel I had the same issue when they told me I took Fosamax for six weeks not allergic reaction. My doctor suggested start taking the oral pill first for the injections because if you're allergic to it you can stop there or close with ejections are in your sister for a while so if you've never taken it before I would suggest taking the pills first now I'm doing exercise and food cuz I'm not on anything when you're allergic to one you're allergic to most

Prolia as I understand is a different than bisphosphonate way to reduce the extent of your bone's turnover Both attempt to preserve what bone you have. I don't think they will prescribe Prolia unless there is some reason that a person cannot take Fosamax– gerd or otherwise. I took Fosamax for several years, and did a lot of exercise and my density numbers improved a bit, But then they went down. I did decide to go with a drug like Forteo, called Tymlos– it does not require refrigeration. I inject it daily. Is that fun? No. But I do it because it is a bone builder– I want to increase my bone density, and do worry about getting spinal compressions which would compromise my quality of life. You can only take Tymlos or Forteo for max 2 years because of cancers found in lab animal studies. I spoke to scientist friends of mine and they thought it worth the risk to preserve quality of life in the next decades. I still exercise. And yes, I always eat a pretty healthy diet, have low cholesterol, low blood pressure. But I am lightweight and blue eyes, and am told those are associated with lower bone density. I did not exercise much when I was young, and those are the crucial years. Here is a link to Mayo summary of osteo drugs– https://www.mayoclinic.org/diseases-conditions/osteoporosis/in-depth/osteoporosis-treatment/art-20046869. Good luck with whatever you decide.

I have had a recent compression fracture and the doctors are suggesting Prolia. I am terrified of this drug from everything I have heard others report. I have been on Evista since February, which is not really long enough I don't think, to see benefits. I do well on it and wondered if anyone here has had success with Evista/Raloxifene combined with low dose Fosamax. One doctor had me try Forteo, and I had a terrible reaction to it. No one seems to want to know why I am spilling calcium into my urine, either. Very frustrated!

@harborside24

I have had a recent compression fracture and the doctors are suggesting Prolia. I am terrified of this drug from everything I have heard others report. I have been on Evista since February, which is not really long enough I don't think, to see benefits. I do well on it and wondered if anyone here has had success with Evista/Raloxifene combined with low dose Fosamax. One doctor had me try Forteo, and I had a terrible reaction to it. No one seems to want to know why I am spilling calcium into my urine, either. Very frustrated!

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Harborside24th I have a L2 compression fracture since 05 Dr treated it with 3months wearing a turtle shell brace then Water P T 6months He never even suggested any drugs for bones as you are I found using a walker I can walk further without to much pain I also have a messed up lower back ,bulging disc and fibromyalgia Im not doing any drugs your Dr is suggesting My girlfriend has scilosos, osteoporosis and took Fosemex lost some of her teeth and pain in jaw she now exercises ,swims Vit D3 and is fine The walker is what took my pressure of back .I use ice,heating pad and learn to say No when your tired This is what I do and have been fine. Yes it hurt to exercise but building up your muscles in back does help ,in my opinion not more drugs. Your position maybe different from mine but just giving you my experience as a retired nurse also.

Thank you. I am very active and have been for years and am still suffering the bone loss. My compression fracture does not keep me from being active, so I am very lucky, at least for now.

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