Osteonecrosis of the jaw

Posted by sandy03 @sandy03, May 8 10:51am

I am a 79 year old female and was diagnosed with osteoporosis in my sixties. I had taken Forteo for 2 years and then Reclast infusions for 4 years. Then several years later I started Prolia. I talked to several doctors and they felt I needed to start on another drug. I had been on Prolia for 2 years when I was diagnosed last year with Osteonecrosis of the jaw.
Has anyone else been diagnosed with this condition? I have been told by my doctor that I can not take anymore bisphosphonates.

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@saxibaqayev

I do not understand your post. Please clarify.

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A friend of mine went down the same path as you. She also has Osteonecrosis of the jaw. They took her off bisphosomates and put her on Evenity. She is seeing a specialist for this. Good luck

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Profile picture for maryandnana @maryandnans

A friend of mine went down the same path as you. She also has Osteonecrosis of the jaw. They took her off bisphosomates and put her on Evenity. She is seeing a specialist for this. Good luck

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@maryandnans But isn't Evenity supposed to be followed with a bisphosphonate to maintain gains? But it sounds like your friend can't take those due to her jaw problems. So then she will lose any gains from the Evenity.

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I no longer have the link, but have read that Forteo can help heal Osteonecrosis of the jaw. I had that after 6 months of Prolia, following my two years on Forteo, and was told because I had been on Forteo, my healing went well. I did not get second shot of Prolia and opted instead for Raloxifene . I did that for 5 years and now on my second round to Forteo, but the biosimilar brand of Teriparatide.

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Profile picture for maryandnana @maryandnans

A friend of mine went down the same path as you. She also has Osteonecrosis of the jaw. They took her off bisphosomates and put her on Evenity. She is seeing a specialist for this. Good luck

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@maryandnans A friend of my Mom's developed the osteonecrosis of the jaw. I will never take a bisphosphonate - no matter what. Your doctor should be talking to you about what options you have. If your osteoporosis/osteopenia is not severe, I personally would not go on any of these drugs. But I understand that a lot of people have no option.

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I am not planning on going on any drugs, since I have improved my bones from osteoporosis to osteopenia.

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Profile picture for daisy17 @daisy17

@maryandnans But isn't Evenity supposed to be followed with a bisphosphonate to maintain gains? But it sounds like your friend can't take those due to her jaw problems. So then she will lose any gains from the Evenity.

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@daisy17 that is a good question.

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Profile picture for daisy17 @daisy17

@maryandnans But isn't Evenity supposed to be followed with a bisphosphonate to maintain gains? But it sounds like your friend can't take those due to her jaw problems. So then she will lose any gains from the Evenity.

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@daisy17 Evenity is also associated with increased risk of osteonecrosis of the jaw, plus, as you said, suppposed to be followed with a bisphosphonate.

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I developed spontaneous osteonecrosis of the jaw after one Prolia shot. The area was around my jaw dental implants which had been in place for twenty years.

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Profile picture for scpartain @scpartain

I developed spontaneous osteonecrosis of the jaw after one Prolia shot. The area was around my jaw dental implants which had been in place for twenty years.

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@scpartain I'm sorry to hear that! Did the ONJ ever resolve?

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