Mayo Clinic Connect
I have osteonecrosis in both my knees but am too young (39) for a knee replacement. I really would like to find someone who also suffers from this condition.
I keep hearing more and more about the average age of patients having knees replaced. I’d look into it!
Hello Kristi. I also have osteonecrosis in both knees. I have had two knee replacements, allograft w/ cadaver, and several arthroscopic surgeries. I was diagnosed in my twenties with my first knee replacement at 33, I am 40 now. For me there are some days that the pain is unbearable. I have to have another revision on my left knee. I would love to talk to you more about this condition.
Kristi, I am deeply sorry for your painful knees. I was struck with osteonecrosis in my right leg bones at age 45. It was not comforting when my surgeon read my MRI report and said “ewe, this is something that happens to women in their 80s and usually in their hips”. If we exclude osteo. of the jaw, only 2,000 Americans get the disease each year. We are rare individuals. I recommend you see another orthopedic surgeon until you find one that will be proactive NOW. I went to several local surgeons + Johns Hopkins and they all agreed with my surgeries. I have been on Social Security Disability since I was 46. My employer was very unsympathetic. I will keep you in my prayers.
Thank you for replying to me. I had no idea that our condition was that rare. That surprised me. I have had 2 surgeries on my left knee to scrape down to bleeding bone and to drill the 4 holes in hopes of new bone growth but it didn’t turn out well so my primary ortho said he wouldn’t attempt surgery on the right knee even though it has the same issues..just not as severe yet. I got a second opinion from MCV Hopital – the prominent teaching hospital in Richmond, VA several years back and that Dr agreed. I just found out I have 3 bone spurs forming in the left knee and now the pain is unbearable. I go to a Pain Clinic and am currently on 40mg of Percocet and 3 Tylenol #3’s daily. Those meds aren’t covering the increased pain and my ortho sent the pain mgmt Dr a letter stating that he recommends something stronger. I don’t go until Nov 3rd so I am trying to make it until then. It seems like an eternity to wait and I’m not sure the pain Dr will add/change meds..it’s all up to him. So, that’s where I’m at now. It was so good to hear from you. I am also on Social Security Disability. I will keep you in my prayers also.
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