I have osteonecrosis in both my knees but am too young (39) for a knee replacement. I really would like to find someone who also suffers from this condition.
Kristi, I am deeply sorry for your painful knees. I was struck with osteonecrosis in my right leg bones at age 45. It was not comforting when my surgeon read my MRI report and said "ewe, this is something that happens to women in their 80s and usually in their hips". If we exclude osteo. of the jaw, only 2,000 Americans get the disease each year. We are rare individuals. I recommend you see another orthopedic surgeon until you find one that will be proactive NOW. I went to several local surgeons + Johns Hopkins and they all agreed with my surgeries. I have been on Social Security Disability since I was 46. My employer was very unsympathetic. I will keep you in my prayers.