Is there anyone out there who has this condition and who would join me in discussing what’s going on in your treatment? I’ve had them for about 18 years now and have recently tried dropping my gabapentin and going to another medication called Topiramate (.50mg) 2x a day, but I find they don’t last the whole day so about 1/2 way through the day I feel l can hardly wait to get my next dose. I still take Clonazepam (.5mg) 3x a day. I so wish they’d come up with something new for us to try. This Topiramate (or Topomax) has my mouth and eyeas all dried out, my stomach upset and I think is causing me to be constipated. I do not like life right now. I’m always tired and any amount of stress or effort only makes things worse. Anybody out there know what I’m talking about? I’m too young (at heart, at least) to be feeling this way. I want to be out kicking my heels up, and I still try to do it, but boy do I pay for it. This week while taking a walk, holding my 3 week old granddaughter I was in fear the whole time of tripping and falling–thankfully I didn’t, but that’s no way to live. Mayo Clinic, are you doing any studies on orthostatic tremors?
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