Optune device for Glioblastoma GBM

Posted by suez5 @suez5, Aug 13, 2021

Who is using this device and what are the pros and cons?

Interested in more discussions like this? Go to the Brain Tumor group.

Otis used this device for about 10 months while he was getting every other week infusions of Avastin. His MRI's showed tumor decrease during this time until the 10th month when it showed an increase. If you look through all my posts for Otis, I had given a summary of the Optune Cap and even posted pictures. They are still on the site.

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Thank you so much for the information. I am new to the site and considering Optune. Do you and your husband feel like using Optune was beneficial to his health?

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@suez5

Thank you so much for the information. I am new to the site and considering Optune. Do you and your husband feel like using Optune was beneficial to his health?

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Good morning, Sue. I encourage you to read @otis123's story here:
– My Husband's journey with Glioblastoma https://connect.mayoclinic.org/discussion/my-husbands-journey-with-glioblastoma/

Also see this discussion with @marcyprof @bjh369 and @daughterfuturemd
– Glioblastoma (GBM) trials and therapeutic devices (Optune): https://connect.mayoclinic.org/discussion/gbm-trials-ttfields-brain-device/

I just read in your profile bio that this is a very new diagnosis for you and that you just completed proton radiation therapy and chemotherapy. How are you doing today?

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Thank you for the information. I am doing very well. My next option is Optune so that is why I am trying to gather information so I can make an informed decision.

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@suez5

Thank you so much for the information. I am new to the site and considering Optune. Do you and your husband feel like using Optune was beneficial to his health?

Jump to this post

I have to believe it helped him for 10 months when his tumor showed decreases. Unfortunately, nothing seems to keep on working indefinitely. It also is very expensive ($21,000/month) so the insurance companies fight about paying it. They gave us a hard time because Otie was getting Avastin treatments every other week while wearing optune. They want optune to be the only treatment. The good news is that Novocure will work with your financial situation to quote a price that will not go up regardless of what the insurance companies do. Our quote was $250 per month.

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