On Reclast for 15 years?

Posted by mrsdcb @mrsdcb, Dec 4, 2025

I have been getting Reclast infusions yearly for the past 10 years, and every other year for 5 years before that. My PCPs were prescribing it. I just got an actual Endocrinologist who told me Reclast only works for 5-6 years! Obviously, the PCPs didn’t know that. During this time, I had a broken wrist and a leg broken in 3 places from a non-traumatic fall. Now, I can’t get a different med till next August because there isn’t enough research on overlap with Reclast. Are any of you in the same situation? If so, what did you use after long-term Reclast?

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gravity3 | @gravity3 | Dec 5, 2025

Have you seen an endocrinologist?

mrsdcb | @mrsdcb | Dec 5, 2025

Yes, it says so in my post. He is the one who told me that Reclast only works for 5-6 years.

gravity3 | @gravity3 | Dec 5, 2025

In reply to @mrsdcb "Yes, it says so in my post. He is the one who told me that Reclast..." + (show)

@mrsdcb

What is the endocrinologists proposal for follow up drug? It would be helpful to know your age, sex, dexa scores, are you on hormone replacement therapy? If so what kind?

mrsdcb | @mrsdcb | Dec 5, 2025

Endocrinologist hasn’t made a decision on follow-up drug, since he said he can’t prescribe anything else till next August. Running other blood tests this month, plus a VFA this coming Monday. I am 71 yr old female, hysterectomy at age 42 due to endometriosis. No hormone replacement therapy . One ovary remains. Dexas have been consistently -2.5 in recent years.

berkeleybones | @berkeleybones | Dec 5, 2025

In reply to @mrsdcb "Yes, it says so in my post. He is the one who told me that Reclast..." + (show)

@mrsdcb my endo that I went to once ( not a fan) said I can only b on recast for 3 years. I just had my first infusion and I’ve got all the “ uncommon side effects”. Not happy and nearly 62

mrsdcb | @mrsdcb | Dec 5, 2025

I only had the "flu-like" symptoms the very first time. And it only lasted 12 hours. Hopefully, you will be a lucky.

dannyandebbie | @dannyandebbie | Dec 7, 2025

In reply to @berkeleybones "@mrsdcb my endo that I went to once ( not a fan) said I can only..." + (show)

@berkeleybones 18 months out from my first and last infusion! Just when I think the symptoms are getting better, Physical Therapist increases an exercise and the symptoms are back, thank God they do not last as long! It is obvious, Life is a Gamble