New to this support group

Posted by dar61 @dar61, Sep 6 1:31pm

Hi, everyone just want to introduce my self, I been living with chronic pain for over 10years I have Fibromyalgia, right knee replacement L4 and L5 fusion twice the first one the screws went through had to be fixed and more back issues and my last slap in the face to help relive some pain was I went through the SCS trial it hurt A lot, after the placement was in I felt great I could walk more then a 1/2 of block and stand without pain I was on top of the world and anyone that suffers from chronic pain, would understand how I felt.
Then the big slap in the face, I had to have a Thoracic MRI done first, before I could see the surgeon had all the other MRI done already, at the Neurologist surgeon appointment happy as can be he tells me according to my Thoracic MRI there would be know way to put in the wires I should not of even had the trail done my Pain doctor should of done the Thoracic MRI first the neurologist said I could of been paralyzed from the waist down and looking back on the day of the trial the doctor hit something and my hole body flipped on its side and my leg went straight up in the air I was told by the Neurologist he would not recommend the SCS either one of them the chance of being paralyzed is to high so now I have to figure out to live day to day with pain I hope this group will help me

Interested in more discussions like this? Go to the Chronic Pain Support Group.

Welcome to the group!
I know you will find this group is very supportive.
Wow you have been through it!
An SCS is a wonderful tool but it doesn't work for everyone. My lumbar stimulator has worked wonders for me but when a Thoracic one was implanted it did nothing to relieve the pain.
After 10 years you have probably seen multiple doctors. Have you tried a new one lately to get a fresh set of eyes on your issues?

REPLY
Profile picture for pack11 @pack11

Welcome to the group!
I know you will find this group is very supportive.
Wow you have been through it!
An SCS is a wonderful tool but it doesn't work for everyone. My lumbar stimulator has worked wonders for me but when a Thoracic one was implanted it did nothing to relieve the pain.
After 10 years you have probably seen multiple doctors. Have you tried a new one lately to get a fresh set of eyes on your issues?

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@pack11
I have only seen 1 chronic pain doctor for years, I will give it some thought about seeing someone new, I have good days and bad days I really wanted the SCS implant, the trial went so great for 1 week

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