Living with Mild Cognitive Impairment (MCI)

Posted by Janie @dougjanehaltom, Nov 20, 2020

I have recently been diagnosed with MCI and I'll be attending Mayo Clinic group on this. Each day just seems to bring me challenges. I have days when I get depressed because I feel like I'm being a burden to others. I will be attending MCI seminar at Mayo Clinic in January. I need help and support in this area.

Interested in more discussions like this? Go to the Brain & Nervous System group.

@flind

I would like to know more about clonazapam. My husband recently started taking this because all his Parkinson's meds make it impossible for him to fall asleep without it :-/

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@flind Clonazepam is one of the benzodiazipines. Medical information for doctors is to reconsider use of benzos for the elderly as they may cause some problems. It is not an order, but something for doctors to consider when deciding what to prescribe. Your doctor or pharmacist should be able to tell you more about any possible side effects.

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@flind

I would like to know more about clonazapam. My husband recently started taking this because all his Parkinson's meds make it impossible for him to fall asleep without it :-/

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@emyliander

I did not know that Clonazapam could affect memory. I have been on it for yrs for anxiety but only in the last yr has my memory declined. I only take 0.5 mg daily.
I asked my PCP for a referral to a neurologist, she said I needed to go to a geriatrician for testing. Would. You agree . I’ve been waiting 2 weeks for them to call with an appointment.

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Thinking of you, @emyliander, and hoping the doctor's office has called and set up the testing appointment(s) now?

@rachelanne – I'm wondering how things are going for you? Are you noting any MCI symptoms?

@beverlymarks and @lindaburdett – would love to hear from you about how the memory-related symptoms are going.

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@dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind –long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety – don’t need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example–these are all things I have been really good at — until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. “not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am “to remain concerned but not consumed over these results”, call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

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I have the exact same issues. Mine was diagnosed as Multiple Sclerosis. Especially the cognitive deficits and the eye issues are hallmark signs of the disease. It took me 10 years to get the correct diagnosis. If I can help you in any way, please feel free to reach out to me. I wish you the very best.

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@bunny2

I have the exact same issues. Mine was diagnosed as Multiple Sclerosis. Especially the cognitive deficits and the eye issues are hallmark signs of the disease. It took me 10 years to get the correct diagnosis. If I can help you in any way, please feel free to reach out to me. I wish you the very best.

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@bunny2 – what was it that finally brought you to a point of diagnosis after 10 years?

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@dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind –long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety – don’t need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example–these are all things I have been really good at — until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. “not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am “to remain concerned but not consumed over these results”, call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

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Thank you to all that have enquired after me. Yesterday I noticed the “ view more “ box, I was thinking that no one was writing anymore, I should have known. I called the referred Dr’s office weeks ago and was told they do so many referrals a month, guess it hasn’t been my month yet. Now with COVID 19 all appointments we had have been postponed. My memory problems continue, my husband keeps telling me “ you don’t listen to me” trouble is he talks so much, I have a hard time filtering out what I really need to listen to. I have to laugh sometimes at the things I do. I made a meal for a man who’s wife had died and called to ask what time he would like me to bring it. I didn’t hear from him so just took it when it was ready. A few weeks later I was listening to my messages on my cell phone and found the message for the man. Apparently I called from our home phone and left the message on my cell phone, no wonder he didn’t answer. 😬 our house goes on the market in 11 days, we’ve been unable to find a place in NY, complicated by having 2 cats and a dog. Also trying to get our daughter set up with a day program to attend. Some days are better than others.

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@lisalucier

Thinking of you, @emyliander, and hoping the doctor's office has called and set up the testing appointment(s) now?

@rachelanne – I'm wondering how things are going for you? Are you noting any MCI symptoms?

@beverlymarks and @lindaburdett – would love to hear from you about how the memory-related symptoms are going.

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I’ve just written a reply in the box at the bottom of the screen and posted it. But I don’t know where it went.

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@artscaping

@emyliander, Greetings and good afternoon, Sarah. You made it to the top of my list today. Just teasing…..I have been trying to imagine walking in your shoes for a day.

If it is ok with you I will use Sarah. It is a bit of a good memory. Living in Hawaii, I decided to finally adopt a Cavalier King Charles Spaniel. Bringing them in from the mainland required 3-month isolation. Many doggies died from kidney disease because they had to use their cage.

Bringing a Cavalier in from Australia was a 24-hour hold. So…I soon have an Australian puppy named Sarah. Only problem, Sarah as a name doesn't work. Before her native blessing, we had to change it to Kala, Hawaiian for Sarah. Remember, there is no "S" in the Hawaiian language. So Sarah is sweet memories of my first Cavalier and how much I loved her.

It is probably getting very challenging for you. Just living with uncertainty……can create anxiety. It is bad enough when your memoryless moments create anxiety. Have you and your husband had a good chat about how the household will deal with the realities of now…..divide up the tasks and share in the planning? Does he help with your daughter?

Fishing won't happen for a while. They are spawning right now. Is there any news on your house sale and your move or did everything screech to halt.

Does your memory let you down when it comes to math? Wow….I have to stay focused. And another thing while I'm at it…..do you find background music disruptive? I use music to mask the tinnitus in my right ear. I have to turn it up a bit because I don't hear well out of my left ear which gets drowned out by the tinnitus crickets in the right ear. Then if I try to concentrate (LOL)…….all of those other things are way too distracting.

I am laughing now, just reading it over. Can't believe it is true. We have to do a lot of adapting. I hope you are adapting to the refreshing nature of spring?
What are you doing for yourself at this time? I am applauding positive steps in practicing self-compassion.

Be safe and secure. You are still on my list and in my thoughts.
Chris

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Hi Chris, I also am laughing to myself, “I hope you are adapting to the refreshing nature of Spring “. Are you kidding, we just had 8” of snow ! Actually we could see signs of Spring before the snow covered it up and they will be there when the snow melts.

I am an animal lover, having at present to cats and a rescue dog Molly, 3yrs old.
I am originally from England and have a brother in Queensland Australia.

Actually I think this time of isolation makes things a little easier on the memory, because I don’t have to remember to go anywhere. The exception was a chiropractic appointment which I forgot, but they they were able to fit me in later that day.

My husband does help with our daughter, but being female the majority of it falls to me.
Our house sale has been postponed till the beginning of May and we’ll reassess then.
I was thinking yesterday about the running of the household in our new home and setting up an equalizing of responsibilities but we haven’t talked about it yet.

Next on my list of things to do is to find my credit card and bank card and the paperwork that I need to send out for my daughters medical care in NY. I’ve been looking for a week now.
How is this restricted time period for you, is it easier or harder ? What are the main problems your memory causes for you ? Right now, for myself I’d say appointments, when I have them, and loosing things.
What I do for myself is get up around 6am and enjoy an hour or so to myself while everyone is in bed. I’m reading again a book “Don’t Sweat the Small Stuff”
They are up now so it’s time to eat breakfast.

Thank you for writing, enjoy your beautiful State and a quieter time.
Sarah.

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@emyliander

Hi Chris, I also am laughing to myself, “I hope you are adapting to the refreshing nature of Spring “. Are you kidding, we just had 8” of snow ! Actually we could see signs of Spring before the snow covered it up and they will be there when the snow melts.

I am an animal lover, having at present to cats and a rescue dog Molly, 3yrs old.
I am originally from England and have a brother in Queensland Australia.

Actually I think this time of isolation makes things a little easier on the memory, because I don’t have to remember to go anywhere. The exception was a chiropractic appointment which I forgot, but they they were able to fit me in later that day.

My husband does help with our daughter, but being female the majority of it falls to me.
Our house sale has been postponed till the beginning of May and we’ll reassess then.
I was thinking yesterday about the running of the household in our new home and setting up an equalizing of responsibilities but we haven’t talked about it yet.

Next on my list of things to do is to find my credit card and bank card and the paperwork that I need to send out for my daughters medical care in NY. I’ve been looking for a week now.
How is this restricted time period for you, is it easier or harder ? What are the main problems your memory causes for you ? Right now, for myself I’d say appointments, when I have them, and loosing things.
What I do for myself is get up around 6am and enjoy an hour or so to myself while everyone is in bed. I’m reading again a book “Don’t Sweat the Small Stuff”
They are up now so it’s time to eat breakfast.

Thank you for writing, enjoy your beautiful State and a quieter time.
Sarah.

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@emyliander……, Hi Sarah, you have risen to the top of my list again. Thanks so much for responding so that I can imagine just chatting with you and discovering ways to support each other when we run into those memory walls. Since Friday is May 1, I am wondering about your house sale. I think you said you would be reappraising the issues.

I liked the topic you put at the top of your list…."develop an equalized list of home responsibilities" and how you can support each
other.

Does your family have group chats? We are doing that more now…..especially to be able to see how much our little ones have grown and developed words and other ways to express their feelings besides screaming. In Texas it is warm, and so the 3-year-old is running around completely naked and laughing at his Mom because she can't catch him. My adorable Milly (Amelia) will be one next week and she just might be walking.

So, I get quite excited about being included in these once a week family chats. Do you think we will be allowed to fly to Texas soon?

And you are so right….this time of isolation can be quiet and contemplative. You know what Sarah…….sometimes the fatigue just takes over. I think it takes a lot of energy to keep our memories in ready mode. I have tried texting myself, recording a message for myself, and writing notes to pin on my planning desk. Then the anxiety starts when I can't remember which process I used if any.

Day by day, my dear, planning before acting, double-checking our lists before giving up.

My biggest thrill this week……walking outside along the river in beautiful 60's temperatures. Saying hello to the geese and the ducks and doing a little bit of self-love……just enough to give me some "get up and go" energy.

May you have happiness and the causes of happiness.

Chris

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@dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind –long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety – don’t need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example–these are all things I have been really good at — until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. “not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am “to remain concerned but not consumed over these results”, call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

Jump to this post

Hi Chris, hope you are doing ok during this pandemic, who would have imagined that we would be going through this. I hope your family has kept well. I have two Grandchildren who graduated from HighSchool, all their senior activities were cancelled. Another came home from college early to finish out the term. My Grandson got a new job and about a month later was laid off, as were all people hired within the past 6 months. Another Granddaughter starts college this fall if everything is back to normal.
Our house is sold and we move out June 12th, we don’t have a place to go to yet, something will workout. My daughter has been home, I took her out of her program before they closed it, now they have opened again but I haven’t sent her back, we still have a number of people in Maine getting diagnosed each day.
Selling the house and going through the inspection was nerve wracking, the first day on the market 3 people came to see it, of course we had to get the 2 cats ,dog, and the three of us out of the house each time. We didn’t spend much time at home that day. The first person bid the highest, over what we were asking and will pay in cash, so that part went well.
We’ve all had our doctor and dentist appointments cancelled and I never did get an appointment to check my memory, I can give them a call again and explain that we are moving, I’m not sure they are even open yet. If it doesn’t get done I’ll have to start all over again in NY……..find a PCP, get a referral and wait again.
My husband and I have had a stressful time with each other, a lot of work to get done on the house and yard, he has a problem with the muscle on his hip replacement pulling away from the bone. Will probably have to have surgery again to reattach it. This has all made him quite irritable and he continues to get impatient with me when I don’t remember things he’s told me. “You don’t listen to me “ which is upsetting to me. But I get through each day with a little help from my friends and mostly thru God
My last brother in Australia has just been diagnosed with a brain tumor, is 85 but otherwise in good health, he says they are a little reluctant to do surgery because of his age so I don’t know yet what they will do.
My flowers seem to be extra pretty this year so I’ve been enjoying them, we’ve had some nice warm days, the birds are all back and singing happily so all is not lost.
Sorry this letter hasn’t been uplifting, I hope that you too are enjoying the Spring and warmer weather, sunny days help a lot.
Stay safe, Sarah.

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@dorty

Hi,
I am 63 yr old female and have been reading the boards relative to effexor xr withdrawal (highest dose 2015 375 mg), slow taper to May 2018 took last dose of Effexor XR 37.5 mg May 28th 2018, I started to have some balance dizzy issues in April and then by first week in June I had horrible anxiety (not my usual, had to be from the Effexor withdrawal), nausea, jitters, balance, dizzy issues, depth perception problems, was sensitive to light and sound, thought I was losing my mind –long story trying to make this shorter. Over summer through present time I have had gradual relief, still have some balance, dizzy issues, depth perception and mental challenges, which brings me to my latest diagnosis in subject line. (I was and still am taking wellbutrin XL 300 mg/daily for depression). I am not depressed and my anxiety has been reduced greatly (I think in part due to stopping the Effexor quite honestly), not taking any additional medication for anxiety – don’t need it! Praise God!

One of the changes I noted as Effexor was tapered was cognitive decline. Having difficulty multi tasking , making financial spreadsheets, challenging to make sense out of complex situations or interrupting the difference between 3 different options for scheduling (as an example–these are all things I have been really good at — until April/May of this year). Met with neurologist, (primary care ordered brain MRI which was neg), he ordered over 20 labs and they were all within normal limits and he referred me to neuropsych for testing – showed deficits in visual spatial ability, graphomotor reproduction of complex visual figural information, weakness in divided attention in verbal fluency format, block patterns and abstraction ability. “not severe enough to warrant a diagnosis of dementia but not normal, so mild neurocognitive d/o; predominately executive and right hemisphere pattern of deficit present etiology not clear in light of normal MRI. They are thinking perhaps i am having ophthalmologic migranes/seizures (only experience in right field of vision) and this may be part of what is impacting my cognition.

I will have follow up more specific/detailed MRI in May 2019, in mean time I am “to remain concerned but not consumed over these results”, call or make appointment if symptoms increase, (balance, dizziness, cognition etc).

Long story shorter I know that wellbutrin is typically not prescribed for people with known seizure d/o; from what i have read and know (i am RN behavioral health) wellbutrin can lower seizure threshold. Can you help me find any research or information that may relate to effexor withdrawal and or wellbutrin potential impact on cognition or correlation with optical seizures impacting brain function. I will have follow up more detailed MRI..not until may 2019, . I have been trying to put most of this puzzle together myself, I had to request initial MRI in June, request referral to neuro, self referred to opthamology and found my prescription was way to strong — leading to some of my depth perception and balance problems — new script/glasses now helping somewhat.

I appreciate any feedback you may have. Thank you, Barb

Jump to this post

@emyliander, Good afternoon, Sarah. It's been a few weeks since I got your update. You do cover the waterfront very well. I appreciate every word.

The first thing I loved was imagining your extra pretty flowers. Take time every day to put your feet on the earth and focus on something beautiful. I also love listening to all the birds. The beautiful Piliated screeches, the Eagle has a gentle whistle.

My heart goes out to you for all of your work to sell the house. Sounds like it worked…..the very first buyer…..and cash. Wow!

And, the most distressing thing is to learn about the difficulty within your marriage. I know it would be difficult to find a therapist right now as you prepare to leave. I am wondering if there is a self-help series of exercises or better yet a Zoom encounter option. If you think that might work……let me know and I will see what I might be able to find.

It is sad to see that because of a lack of understanding of the cognitive issues that interfere, you become fearful of not remembering something. We, my life partner and I, have an understanding that works pretty well. We even rehearse. If I need help in a conversation, I say "Jay, please help me with the name of the person who came to fish with us last year". I have to give him a little more info in my request. When I get it right, he gets it right, and no one would ever know that i completely forgot the name.

We are very open about my "disabilities" and we don't feel like we have to explain everything. And now for the chuckle……I have tinnitus in my right ear and compromised hearing in the left hear. If the head in the middle ever gives up on me………..

Be safe and wear your mask, be protected and free.
Chris

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@artscaping

@emyliander, Good afternoon, Sarah. It's been a few weeks since I got your update. You do cover the waterfront very well. I appreciate every word.

The first thing I loved was imagining your extra pretty flowers. Take time every day to put your feet on the earth and focus on something beautiful. I also love listening to all the birds. The beautiful Piliated screeches, the Eagle has a gentle whistle.

My heart goes out to you for all of your work to sell the house. Sounds like it worked…..the very first buyer…..and cash. Wow!

And, the most distressing thing is to learn about the difficulty within your marriage. I know it would be difficult to find a therapist right now as you prepare to leave. I am wondering if there is a self-help series of exercises or better yet a Zoom encounter option. If you think that might work……let me know and I will see what I might be able to find.

It is sad to see that because of a lack of understanding of the cognitive issues that interfere, you become fearful of not remembering something. We, my life partner and I, have an understanding that works pretty well. We even rehearse. If I need help in a conversation, I say "Jay, please help me with the name of the person who came to fish with us last year". I have to give him a little more info in my request. When I get it right, he gets it right, and no one would ever know that i completely forgot the name.

We are very open about my "disabilities" and we don't feel like we have to explain everything. And now for the chuckle……I have tinnitus in my right ear and compromised hearing in the left hear. If the head in the middle ever gives up on me………..

Be safe and wear your mask, be protected and free.
Chris

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Beautiful and informative writing!
God bless you.
Would that we all had your understanding of life.

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