New Ostomy: Any help would be appreciated

Posted by zxyoma @zxyoma, Jul 15, 2020

I’m new to this site, and new to having an ostomy. My surgery was on May 10th, (Mother’s Day). I’m still experiencing lots of leakage no matter what I try. I found a support group not too far away, however they don’t meet again until September, I’d like to talk to someone before that. Any help would be appreciated.

I have a colonoscopy, my surgery was in September so I am still in the learning process. My home care nurse determined a convex wafer would be best for me because my stoma is retracted and we tried a couple different ones. I still was experiencing leaks almost daily but at a visit to the ER due to bloody stool leaking, the on call doctor used Tincture of Benzoin to "glue" everything to my skin. My husband is the one who changes my appliance because I can't see to do it, due to the placement on my body. He first uses a crusting technique to protect my skin when it is reddened, and uses the tincture over that when dry. He also uses it on top of the seal before applying the wafer and bag. We don't use paste. This has been a world of difference for us. The tincture is most widely used before applying Steri-strips to a wound to help them adhere to the skin. Removing the residue from my skin is somewhat more laborious than it was before we started using the tincture, but it's worth it. We have gone from daily changes due to leaks, to being able to go 5 or 6 days between changes.

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@blinken

I have a colonoscopy, my surgery was in September so I am still in the learning process. My home care nurse determined a convex wafer would be best for me because my stoma is retracted and we tried a couple different ones. I still was experiencing leaks almost daily but at a visit to the ER due to bloody stool leaking, the on call doctor used Tincture of Benzoin to "glue" everything to my skin. My husband is the one who changes my appliance because I can't see to do it, due to the placement on my body. He first uses a crusting technique to protect my skin when it is reddened, and uses the tincture over that when dry. He also uses it on top of the seal before applying the wafer and bag. We don't use paste. This has been a world of difference for us. The tincture is most widely used before applying Steri-strips to a wound to help them adhere to the skin. Removing the residue from my skin is somewhat more laborious than it was before we started using the tincture, but it's worth it. We have gone from daily changes due to leaks, to being able to go 5 or 6 days between changes.

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Hi @blinken, I see this is your first post since joining. Welcome to Mayo Clinic Connect. Thank you for sharing your experience with the group. Going from every day to every fifth or sixth day is wonderful! Did one of the physicians suggest not using paste or was this a personal decision that just led to a better application of the wafer and bag?

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Not using the paste was my husband's preference. He does my appliance changes and found it much messier to apply and much less secure than the tincture. My home care nurses guided us from the start as to what products are available and demonstrated their various techniques. But it was only because an ER doctor used tincture of benzoin and supplied us with some packets to try at home that we found secure adhesion. My home care nurse had never heard of or thought of using that product in this application but she said she will definitely suggest it to other patients who might have adherence issues. You don't need to use very much and it can be a bit of a challenge to remove but it is worth the trouble.

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@blinken

Not using the paste was my husband's preference. He does my appliance changes and found it much messier to apply and much less secure than the tincture. My home care nurses guided us from the start as to what products are available and demonstrated their various techniques. But it was only because an ER doctor used tincture of benzoin and supplied us with some packets to try at home that we found secure adhesion. My home care nurse had never heard of or thought of using that product in this application but she said she will definitely suggest it to other patients who might have adherence issues. You don't need to use very much and it can be a bit of a challenge to remove but it is worth the trouble.

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i use a belt and it is very effective.

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@zxyoma What type of ostomy? Colostomy?

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Take a look at these sites:
https://www.newbieostomy.com/get-support/ostomy-support-groups
http://www.uoaastl.org
https://www.ostomy.org
They all provide support for ostomy patients. Hope this helps. Perhaps be more specific on what you are looking for.

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@katydid77

@zxyoma What type of ostomy? Colostomy?

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this should have been addressed to @zxyoma

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@katydid77

this should have been addressed to @zxyoma

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@katydid77 I have tagged that member in your post above.

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@blinken

Not using the paste was my husband's preference. He does my appliance changes and found it much messier to apply and much less secure than the tincture. My home care nurses guided us from the start as to what products are available and demonstrated their various techniques. But it was only because an ER doctor used tincture of benzoin and supplied us with some packets to try at home that we found secure adhesion. My home care nurse had never heard of or thought of using that product in this application but she said she will definitely suggest it to other patients who might have adherence issues. You don't need to use very much and it can be a bit of a challenge to remove but it is worth the trouble.

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I second the use of tincture of benzoin. It is an old-fashioned remedy. I remembered having to use it many years ago to help keep bandages adhering to my very active son's skin and tried it when I was having issues keeping my wafer in place. My home care nurse practitioner never heard of it, either. It works better for me than any other of the products such as "Skin-Tac" that I've tried.

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I am an 81 year old ostomy wearer, 6 months, and have many questions. Primarily what are, if any, consequences of not having the procedure reversed?

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@amandajro

@katydid77 I have tagged that member in your post above.

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Good afternoon. I am not very tech savey with using this "Chat" stuff. .I have some questions about my ostomy bag due to some bowel removal for a non cancerous blockage. Am I at the right place to make those inquiries?

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@grandmairene

Good afternoon. I am not very tech savey with using this "Chat" stuff. .I have some questions about my ostomy bag due to some bowel removal for a non cancerous blockage. Am I at the right place to make those inquiries?

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@grandmairene Welcome to Mayo Clinic. We’re a community of patients, family members, and caretakers who all help each other with resources, information, and personal experience. Sounds like to have lots of questions about your surgery and ostomy. Do you have anyone who helps you with changing your appliance? Have you contacted the surgeon who did the surgery? They should be able to give you the name of an ostomy nurse who can help.
You are in the ‘ostomy discussion group’ so maybe @kenc and @riverwatcher might also be able to help.
Do you have a family member or neighbor who might be able to help you with the computer? You’ve done a great job so far!

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