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kandyd
@kandyd

Posts: 1
Joined: Oct 15, 2012

Neuromyelitis Optika

Posted by @kandyd, Oct 15, 2012

I went 4 years undaignosed – they now think it is NMO, however, there is not optical involvement only spine. Now having difficulty walkin (lately having to use wheelchair totally). Has anyone had NMO diagnoses of NMO for spine only? what meds are you taking and is it workingl thanks
kandyd

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LoveLife100
@lovelife100

Posts: 3
Joined: Aug 09, 2015
Posted by @lovelife100, Aug 9, 2015

Well I have a daughter who is NMO last year and she as feels alone she is now eighteen years old she is always in pain but pushes through it.


LoveLife100
@lovelife100

Posts: 3
Joined: Aug 09, 2015
Posted by @lovelife100, Aug 9, 2015

My daughter take several medications like cyclobenzaprine, sulfamethox/tmp *ds\trimethoprim ,Mycophenolate/Cellcept, Carbamazepine, Polyethylene and infusion with steroids
Sometimes it work but some day she is in continuous pain


LoveLife100
@lovelife100

Posts: 3
Joined: Aug 09, 2015
Posted by @lovelife100, Aug 9, 2015

Transverse Myelitis maybe the name of your disease if you don’t wear glasses

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